We've been super busy here at the RSA Head Office preparing for Scleroderma Awareness Week which will take place next week (11th-16th June). We normally have our Awareness Week in November but thought this year it would be a good idea to have the week coincide with Anne's pedalo challenge.
For those of you who don't already know, Anne Mawdsley MBE, the RSA's founder and CEO will be pedalling a pedalo for 5 miles up Lake Windermere on 11th June. This will be a gruelling challenge that could take up to 6 hours and has never before been attempted. As many of you are aware, Anne has both Raynaud's and scleroderma and so this really will be a difficult challenge for her.
Luckily for Anne she has former Eastenders actor Don Gilet (he played Lucas Johnson) to help her on the day and to encourage her to keep pedalling! Don offered to help the RSA after a childhood friend who suffered from scleroderma died from septicemia following a leg amputation last year at the age of 42.
So far the challenge has raised over £17,000 for the RSA's Cool Million campaign but we're really hoping to reach £20,000. If you can help us by sponsoring Anne, visit justgiving.com/rsapedalo. Your support really does make a difference.
If you can help us to raise awareness during the week by displaying posters, giving out leaflets or, if you are a member, speaking to the media, please email firstname.lastname@example.org. Even just telling one person about scleroderma during this week can raise awareness.
Only by working together can we hope to raise awareness of this rare disease and work towards a cure.