My kidneys failed in 2009 & i nearly died, i was diagnosed with Diffuse Systemic Scleroderma 5 days after my kidneys failed. Over the past 2 & a half years i have had dialysis for 6 months, & have had vascular involvement & had to have an operation to unblock one of my major artery's, several mini strokes & now i have problems with my digestive system & my throat, i also have raynalds. Professor Denton from the London Royal Free Hospital in the united Kingdon has now told me that he can see the start of heart & lung involvement & my condition is spreading very fast, so he has now put me on a form of chemotherapy for 6 months to try and supress it. My question is, does anyone else have chemotherapy or a similar story to mine. also does anyone live in the United Kingdom. Sorry to bother you all but i sometimes feel that people don't understand because i don't no anyone with this awful condition, any comments would be appreciated.
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