Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for July 2024

chronic diarrhoea

I reduced to 5mg from 5.5 on 25/06. After about a week had intense nausea, headache for 2 days. From last week I’ve had chronic diarrhoea and stomach cramps....

I reduced to 5mg from 5.5 on 25/06. After about a week had intense nausea, hea...

lennysmummy

•1 month ago

20 Replies

Eyesight deterioration

My eyesight in my left eye has significantly deteriorated over a few weeks such that my optometrist is flummoxed by his own admission. He asked if my PMR was...

My eyesight in my left eye has significantly deteriorated over a few weeks such ...

LbHH

•1 month ago

8 Replies

Had anyone seen this?!

I just saw this and am intrigued! Ncbi.nlm.nih.gov

GivenUp24

•1 month ago

23 Replies

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Omeprazole Tapering Off

Hi all, as I'm now on a very low dose of Pred (0.5mg)I have decided that this is probably a good a time as any to stop taking Omeprazole, I've never had a...

Hi all, as I'm now on a very low dose of Pred (0.5mg)I have decided that this is...

Bcol

•1 month ago

15 Replies

G C A/ Temporal artery biopsy

Good morning all,I was diagnosed with RA, PMR, and ILD in January 2021 and have had 5 bouts of pneumonia requiring hospital treatment since then, the last one...

Good morning all,I was diagnosed with RA, PMR, and ILD in January 2021 and have ...

Oscardoggy

•1 month ago

11 Replies

Urgent advice needed re return of symptoms

Just this minute back from Italy (3.40am) a very stressful and sad trip (not a holiday). Temperatures were 39 degrees C, extreme weather warning was issued,...

Just this minute back from Italy (3.40am) a very stressful and sad trip (not a ...

Fatsiajaponica

•1 month ago

11 Replies

Is this a sign of adrendal recovery?

I am tapering down to 2 mg. I have been distinctly feeling like doing more in a day. I seem to feel motivated to get things done. I still find that I need to...

I am tapering down to 2 mg. I have been distinctly feeling like doing more in a ...

spacevoyager

•1 month ago

4 Replies

Diabetes

Just wondering what other members made of this. I have been on prednisolone for 10yrs now for GCA starting at 60mg tapering down slowly to 2.5mg but always had...

Just wondering what other members made of this. I have been on prednisolone for ...

Teddy23

•1 month ago

9 Replies

Adrenals Working ???

I am proceeding with DL's slow 5 weeks taper regime, now at 4mg - 3.5mg Pred. Will I get some physical indication that my Adrenals are working? if not how...

I am proceeding with DL's slow 5 weeks taper regime, now at 4mg - 3.5mg Pred. W...

Golf-1

•1 month ago

6 Replies

Continue Forever on Low Dose Prednisone?

Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone over 4 years to 0. Then after almost a full year off of prednisone, in 2021 I...

Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone ove...

Pamk1949

•1 month ago

16 Replies

actemra

rheumatologist wants me to put me on Actemra since I’m not tolerating prednisone that well, what has everyone’s experience been?

rheumatologist wants me to put me on Actemra since I’m not tolerating prednison...

GivenUp24

•1 month ago

11 Replies

What causes cold sweats?

I’ve been taking Prednisolone for PMR since May 2021. I’ve been very gradually reducing and have been on 4mg for 1 month. I take the Pred at about 5am with...

I’ve been taking Prednisolone for PMR since May 2021. I’ve been very gradually r...

Geology

•1 month ago

6 Replies

Methotrexate for my PMR

I've been on methotrexate for my PMR for over 1 year but I find that I am really tired. Before PMR I did love my sleep but now I seem to get tired so quickly....

I've been on methotrexate for my PMR for over 1 year but I find that I am really...

Musiclady18

•1 month ago

7 Replies

Achilles tendon

Hi all Joined three weeks ago with suspected PMR, prescribed Prednisolone 15mg , just had bloods done and results are CRP down from 19 to 8 which is brilliant...

Hi all Joined three weeks ago with suspected PMR, prescribed Prednisolone 15mg ...

Blodders2

•1 month ago

6 Replies

Worse after an UTI and Covid

Good afternoon. About five weeks ago I developed an UTI for which I took three separate courses of antibiotics as it wouldn't clear. In the same period I...

Good afternoon. About five weeks ago I developed an UTI for which I took three ...

Siena62

•1 month ago

3 Replies

PMRGCAuk Marathon in a Month Week 3

Thank you to everyone who's supporting us either with walking, cheering on, sponsoring or just generally being enthusiastic about this campaign! Here's some...

Thank you to everyone who's supporting us either with walking, cheering on, spon...

Fran_Benson

Partner•1 month ago

7 Replies

Smouldering Myloma

I didn’t want to comment on Lindloo’s post about MGUS but my story has similarities. During investigations last year2023 for PMR it was shown that I had...

I didn’t want to comment on Lindloo’s post about MGUS but my story has similarit...

Ladyhillingdon

•1 month ago

17 Replies

Progression of PMR

I'm interested to know how PMR changes over the course of the disease. I found reducing my pred (that's all I take, nothing else) from 10-7.5mg 3 months ago...

I'm interested to know how PMR changes over the course of the disease. I found r...

Creas

•1 month ago

16 Replies

Finally, at zero prednisone...still Actemra~!

I've certainly been off the grid with my trip to Maine and then an eight-day visit from my 19-year-old granddaughter from Canada. My brain and heart are just...

I've certainly been off the grid with my trip to Maine and then an eight-day vis...

Grammy80

•1 month ago

11 Replies

Pred or PMR side effect: I can’t play Wordle anymore! And I don’t mind!

Before I started prednisone six weeks ago, I played Wordle, Quordle, and Octordle most nights. (If you are not familiar with these names, they refer to various...

Before I started prednisone six weeks ago, I played Wordle, Quordle, and Octordl...

Bunchberry

•1 month ago

5 Replies

PMR-Disability or not & Equality disability act 2010

Hi, I have read at length the 2010 Equality disability act ( through necessity😩). See link below. As I understand it, PMR is an autoimmune illness? If I am...

Hi, I have read at length the 2010 Equality disability act ( through necessity�...

Naim1

•1 month ago

10 Replies

Stuff to Do Before Comprehensive Arthroscopic Shoulder Surgery

Hi all, I'm scheduling for aka Comprehensive Arthroscopic Shoulder Surgery (Rotator Cuff Repair, Subacromial Decompression, and Shoulder Tenotomy). Fun! I...

Hi all, I'm scheduling for aka Comprehensive Arthroscopic Shoulder Surgery (Rot...

Jimmber

•1 month ago

19 Replies

Why taking anti-inflammatories including Pred could lead to a stomach ulcer

Dr Mark Porter who is a working GP writes most weeks in The Times. The link to today's article is below because he mentions steroids as well. I hope it...

Dr Mark Porter who is a working GP writes most weeks in The Times. The link to...

Motida

•1 month ago

9 Replies

MGUS Newly diagnosed

I'm 61, 2 years ago I was diagnosed with GCA and PMR, which was wrongly diagnosed as fibromyalgia 5 years ago.I'm now down to 4mg of prednisilone and weekly...

I'm 61, 2 years ago I was diagnosed with GCA and PMR, which was wrongly diagnose...

Lindilooo

•1 month ago

39 Replies

bradycardia

woke up after a motionless nights sleep , which I NEVER do. My Apple Watch said my heart rate was 44-48. My typical heart rate is 52, put in a call to...

woke up after a motionless nights sleep , which I NEVER do. My Apple Watch said ...

GivenUp24

•1 month ago

7 Replies

Reducing Pred with additional medication

Hi everyone I was diagnosed with PMR and GCA almost 3 years ago. I managed to reduce Pred from 40mg to 4.5mg by January this year but seem to have got stuck!...

Hi everyone I was diagnosed with PMR and GCA almost 3 years ago. I managed to r...

notsoperfect

•1 month ago

9 Replies

Covid with TCZ

I am on my second bout of Covid. Because I am on TCZ, I have had the antiviral Paxlovid both times. The first time it effected a rapid cure, but not this time....

I am on my second bout of Covid. Because I am on TCZ, I have had the antiviral P...

Sharitone

•1 month ago

19 Replies

Diarrhoea Newly Diagnosed PMR

I was diagnosed with PMR 4 weeks ago and commenced prednisalone 15mg which has been very effective. I started having acute diarrhoea 12 days ago that won’t go...

I was diagnosed with PMR 4 weeks ago and commenced prednisalone 15mg which has b...

Classicalgeeze

•1 month ago

11 Replies

Allendronic Acid and Cholesterol

Telephone consultation this morning went as I thought it would. What dosage of Prednisolone are you on? 2.75mg I answered. So you will be coming down to......

Telephone consultation this morning went as I thought it would. What dosage of P...

Mazxstitch

•1 month ago

21 Replies

Coronary Artery Disease and Prednisone

Hi all, I just got back from a much anticipated visit to my rheumy who surprised me with some of his comments. My symptoms, presently, alerted the rheumy...

Hi all, I just got back from a much anticipated visit to my rheumy who surprise...

montebello

•1 month ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2024

chronic diarrhoea

Eyesight deterioration

Had anyone seen this?!

Omeprazole Tapering Off

G C A/ Temporal artery biopsy

Urgent advice needed re return of symptoms

Is this a sign of adrendal recovery?

Diabetes

Adrenals Working ???

Continue Forever on Low Dose Prednisone?

actemra

What causes cold sweats?

Methotrexate for my PMR

Achilles tendon

Worse after an UTI and Covid

PMRGCAuk Marathon in a Month Week 3

Smouldering Myloma

Progression of PMR

Finally, at zero prednisone...still Actemra~!

Pred or PMR side effect: I can’t play Wordle anymore! And I don’t mind!

PMR-Disability or not & Equality disability act 2010

Stuff to Do Before Comprehensive Arthroscopic Shoulder Surgery

Why taking anti-inflammatories including Pred could lead to a stomach ulcer

MGUS Newly diagnosed

bradycardia

Reducing Pred with additional medication

Covid with TCZ

Diarrhoea Newly Diagnosed PMR

Allendronic Acid and Cholesterol

Coronary Artery Disease and Prednisone

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