Covid with TCZ: I am on my second bout of Covid... - PMRGCAuk

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Covid with TCZ

Sharitone profile image
19 Replies

I am on my second bout of Covid. Because I am on TCZ, I have had the antiviral Paxlovid both times. The first time it effected a rapid cure, but not this time. Although I am not particularly ill, I still have a productive cough and have tested strongly positive again this morning. Proper fed up. Have to keep on postponing blood test appointments, and it's hard enough to get one in the first place. And as for all the isolating! This morning I practised all the swear words I know.

I'm just wondering whether anyone else has had such a long experience of acute Covid?

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Sharitone profile image
Sharitone
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19 Replies
SnazzyD profile image
SnazzyD

How long has it been?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Can't help on the Covid/TCZ front... but might be able to supply a few more swear words.. and a virtual hug. 😂🤣

Hope you soon feel better - and are negative [if you see what I mean]!

PMRpro profile image
PMRproAmbassador

Oh pooh! Get well soon.

piglette profile image
piglette

How rotten. I do hope you feel better soon.

Sharitone profile image
Sharitone

Two weeks. Noone else I know has been positive for more than 11 days.

PMRpro profile image
PMRproAmbassador in reply to Sharitone

I know several who have been positive for 20 - mostly immunocompromised patients. Which you are on TCZ.

Sharitone profile image
Sharitone in reply to PMRpro

Oh thank you, that i actually encouraging. I was beginning to wonder whether I was producing my own personal mutation. But I guess I can still pass it on all the while the test is positive.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Sharitone

Think test is only positive when you are infectious… which is why some seem to get negative tests even though they have Covid. Remember seeing something the Gov put out ages ago when the LFTs first came out. ..

HeronNS profile image
HeronNS in reply to DorsetLady

And unfortunately one can be infectious even when test is negative, which these days it often is at the beginning. Word lately is that one has to repeat the test several times, up to four days to be sure. Something to do with viral load. The tests have not been adapted to latest variants; like the vaccines it's impossible to keep up. :(

Which is why universal masking should have been encouraged rather than minimised.

HeronNS profile image
HeronNS in reply to Sharitone

My husband had covid in 2022 and he tested + for twelve days. He is old, but not on any immune suppressants. Twelve days seemed at that time to be a fairly common length of time. I think it must have been the omicron variant, but of course we don;t know.

It's a good idea to get two consecutive negative tests (over two days) before relaxing completely.

Sharitone profile image
Sharitone in reply to HeronNS

Tricky. My parents have mild dementia and don't seem to understand that they can't come here.

HeronNS profile image
HeronNS in reply to Sharitone

Wear a respirator.

If you can, run an air purifier in your home.

They should use antiviral nasal spray and CPC mouthwash if entering a potentially risky situation, especially if they don't wear masks.

I've just heard that the s-i-l who is supposed to have dinner with us tomorrow has a "barking cold". They've recently arrived from Vancouver with a stopover in Quebec for a wedding on her side of the family. B-i-l is spending afternoon with hubby, hopefully outdoors the whole time. No idea where they've got to. Fortunately we'd organised tomorrow's gathering in the garden of one of my sons so hopefully no one else will catch whatever it is, there being a multi-pandemic at the moment, most of which transmits through the air. 🙄😷

Sharitone profile image
Sharitone in reply to HeronNS

Yikes! A heavy cold is what my husband thought he had, before he kindly passed it on to me. No family hugs tomorrow, then!

Thanks for the advice.

Hunter134 profile image
Hunter134 in reply to Sharitone

Last year I tested positive for 11 days.Had a terrible cough for months.

Pixix profile image
Pixix

Yes. I tested positive for 15 days. I was in bed & very sick for five days. My husband was in hospital, & I spent a lot of time phoning to find out how he was doing. I also caught C.Diff from hospital visiting 2 days before Covid & had vertigo for ten days of Covid. Despite 12 diseases I was refused antivirals as I didn’t meet the new Govt changed rules. I am still sick after a month, I’m very breathless & cannot walk upstairs without stops, nor walk down length of garden. I treated it for asthma, but it’s not, & doesn’t respond to inhaler. I still have far worse fatigue. My Dr upped my pred from 2mg to 10mg, for one week, then 5mg for one week, then drop back to 2mg (I was on the phone to him to get an inhaler & thought it would be interesting to get his views re increasing pred). This was on about day 21. We are shielding atm as my husband has been in hospital twice in 2 months with pneumonia & cannot afford to catch it. We wear FFP2 masks to go everywhere. I could catch it again now, as it’s 5 weeks, but need to take care because of hubby. He was discharged from hospital to home while I was still testing positive. I moved into the motorhome on our driveway, & during the day I spent time outside our French windows to be near him, wearing an FFP3 mask. It was a very cold, sick & lonely time. We had to cancel our 2nd holiday this year. To me, it must be amazing to just have Covid & be able to get antivirals!! People moan so much about the isolation, when, for them, it’s just a few weeks. We only gave up mask wearing 3 months ago…from the very start of the pandemic & have only been in a pub once in 4 years, no restaurants, no cafes etc. there are a number of people suffering with cancers &, like me, with multiple diseases, who haven’t lead a normal life since the pandemic started. Me? I’m just grateful I’m not dead. Apologies for long comment.

Sharitone profile image
Sharitone in reply to Pixix

I'm also very grateful you're not dead! Surely there should be some proviso for people who are really sick to qualify for antivirals on the recommendation of physician. There are only 30 tablets; I can't imagine they would cost more than treating people who have been so sick as you.

At least the antiviral system has improved somewhat. The first time I had it, last New @Year, I was sent by 111 to Bmth hospital where they faffed around for 17 hours before I could go - 17 hours in A&E with all those people who were already sick!

My husband picked up our Covid in Guernsey. This was slightly ironic as it was the first time in 5 years that we had dared go on holiday, and had avoided cruises and planes because of the Covid risk. It seems however careful you are, the blighter can still get you. And there is no telling how much or how long it is going to affect you.

I sincerely hope you are back to where you were soon.💐

Pixix profile image
Pixix in reply to Sharitone

My Doctor recommended I should have them! But all he can do is put his case forward to the Govt agency in charge of dealing them out, they’ve no idea who you are & just rang & said I didn’t fit the criteria. I tried to argue my case but I was sick, & David was in hospital, & I had to cancel our Italy holiday that day to get some refunds (we had insurance, too). I asked if it was possible for me to purchase then privately, he said no. Wearing an FFP2 mask in all inside spaces is the only way to go. If you went into cafes,shops & restaurants in Guernsey, without good masks, there’s your answer! Or stayed in a hotel or B&B). Avoidingcruises & planes is good…so many people coming off cruises with it. When I worked in laboratory industry they called cruises floating Petri dishes’ because they carry so many bugs all the time (this is years before Covid)! Thanks very much for your best wishes, &, if you don’t want it again, I’m afraid the ‘rules’ above are the only thing you can do! It’s a restricted life, for sure, & not how I expected to spend my retirement! Just grateful we like the ‘big outdoors’ but wish the weather could be better here! S x

perceptual63 profile image
perceptual63

I tested positive for 15 days and was holed up in my bedroom the whole time I tested positive.

I'm the main cook in the house and needless to say my other two housemates were sorta at a loss as to what to eat. One, doesn't cook at all, and the other doesn't really cook the healthiest meals and he's very overweight and a diabetic.

But on a good note, I actually think prednisone helped me not drown so much in head and chest congestion by keeping my inflammation low which helped with breathing. It was labored but I think it could have been overall much worse and I'm grateful that it wasn't.

Sharitone profile image
Sharitone

That's a good point.

I hope your chaps are learning to cook now!

It's a relief to know it is 'normal' to test positive for more than 10 days, as it is quite difficult to find quality information on the internet. Also, I think that after the first panic, when everyone was told to stay at home, govts changed their minds and panicked instead about people not going to work, so the advice now about isolating, etc, is much more relaxed.

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