actemra: rheumatologist wants me to put me on... - PMRGCAuk

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actemra

GivenUp24 profile image
3 Replies

rheumatologist wants me to put me on Actemra since I’m not tolerating prednisone that well, what has everyone’s experience been?

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GivenUp24
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PMRpro profile image
PMRproAmbassador

I've been on Actemra for over 2 years and have had no problems at all. It has allowed me to taper from 19 to7mg pred but no lower.

GivenUp24 profile image
GivenUp24 in reply to PMRpro

That’s awesome… but sad you’re not off the pred.

SheffieldJane profile image
SheffieldJane

It does what it says on the tin. Got down to 10 mg from 40 mgs in record time. I have ended up with Diverticula disease and it is not recommended if you have gut problems., though.

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