Had anyone seen this?!

[GivenUp24]

I just saw this and am intrigued!

Ncbi.nlm.nih.gov

[DorsetLady PMRGCAuk volunteer]

Might have been useful if you’d given a link to whole article in your post [the one in email doesn’t work - or at least not in UK] … I have found 2 or 3 on subject but none seem to have this section.

If you cannot link - then full title or PMC reference would help.

[PMRpro Ambassador in reply to DorsetLady]

Wonder if it is this

ncbi.nlm.nih.gov/books/NBK4...

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Might be.. but as is often said [and in Fran’s welcome post] if you quote from something please link original -and I appreciate that’s not easy for everyone..

[PMRpro Ambassador in reply to DorsetLady]

Oh yes - pointless without the context.

[GivenUp24 in reply to PMRpro]

I put the link information at the bottom of the page it would not let me copy the link so I typed it in

[PMRpro Ambassador in reply to GivenUp24]

It isn't the full link though - just to the Home page for ncbi with thousands of articles.

[GivenUp24 in reply to PMRpro]

I typed in the link info at the bottom, wouldn’t let me copy paste

[GivenUp24 in reply to DorsetLady]

I put the info for the link at the bottom… it wouldn’t let me copy and paste it.

[DorsetLady PMRGCAuk volunteer in reply to GivenUp24]

For your info - when you attached a link - whether in your original post or a reply once you’ve hit the post/reply button the link should turn blue - if it’s doesn’t you know it not working.

If you know the title of the article I expect one of us can find it…

[piglette]

It should be NCBI not NBCI in your link.

[PMRpro Ambassador in reply to piglette]

But even so - it only takes you to the Home page, not a specific document.

[piglette in reply to PMRpro]

I agree. It does not make sense when you actually get the correct link!!

[GivenUp24 in reply to PMRpro]

Well I guess I don’t know how then

[piglette in reply to GivenUp24]

Click on More … at the end of your post below your name box. There is a line starting with Reply in a blue box. More is at the end of that line. You can amend your post.

[GivenUp24 in reply to piglette]

I did, but it only takes you to an information page , not the exact info I posted, and I no longer have that page… I’m sorry I caused such a fuss with people.

[GivenUp24 in reply to piglette]

Uh oh…. Sorry I’ll fix it

[GivenUp24]

well I didn’t know, I tried that’s all I knew how to do since it wouldn’t let me copy

[agingfeminist]

this is the link

ncbi.nlm.nih.gov/pmc/articl...

[GivenUp24 in reply to agingfeminist]

Cool Ty.

[agingfeminist]

please note this is a case study of one rather atypical case

[PMRpro Ambassador in reply to agingfeminist]

Thanks for doing the detective work!! And it most certainly is atypical.

It also smacks of something I have come across in papers submitted for publication in Proceedings - a load of students at some level who are collecting publications for their degree! I bet somewhere there are a few others using the same data with a different slant.

Almost certainly NOT applicable to the GCA we tak about here, Though I never say never ...

[SnazzyD]

Interesting but it’ll have to be just that until there are large studies done with patients with a comparable issue. The trouble with researching trying a different path to Pred is that it means withholding a treatment that is known to save sight, the ethics become a bit difficult.

[AtopicGuy]

VZV vasculopathy is not a new disease. The article below says:

"VZV vasculopathy was first described in 1896 (Baudouin and Lantuejoul, 1919) and included cases of varicella or zoster [chickenpox/shingles virus] that was temporally [simultaneously] associated with stroke, particularly when zoster occurred in the ophthalmic division of the trigeminal nerve (herpes zoster ophthalmicus with contralateral hemiparesis)."

In other words, it has long been known that some rare cases of shingles result in blocked arteries that restrict blood supply to the brain or nerves (strokes). Sometimes this happens in the face, causing similar symptoms to GCA. The authors of the above paper are pointing out that "GCA" caused by a current bacterial or viral outbreak should not be confused with autoimmune GCA, where no infective cause is apparent.

sciencedirect.com/topics/ne...

This article gives more information on shingles of the trigeminal nerve in the face:

college-optometrists.org/cl...