Pred reduction , feeling down: Hi, Been up and... - PMRGCAuk

PMRGCAuk

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Pred reduction , feeling down

Carathedog profile image
4 Replies

Hi,

Been up and down a bit, was on 8, but upped to 9, as I was going on holiday for a week, was on 9 for three weeks. Felt better, but still very tired.

I went down to 8.5 on Monday, and gradually feeling more pain, day by day.

Am I trying to decrease too quickly, or should I persevere, just sometimes seems never ending, really gets you down sometimes.

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Carathedog profile image
Carathedog
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4 Replies
PMRpro profile image
PMRproAmbassador

"I went down to 8.5 on Monday, and gradually feeling more pain, day by day"

That is a clear sign you are not on enough pred - to me is also suggesting that you had some pain at 9mg? Whatever your symptoms level was at the start, whatever dose that was, is your guide to the future: that is what you are aiming to stay at, you should never feel worse at the end of a taper step than you did at the start. You need to do the flare protocol and go back to at least 9mg - but only if you were pain-free there, I know you felt better.

Carathedog profile image
Carathedog in reply to PMRpro

Thank you, will go back to 9

PMRpro profile image
PMRproAmbassador in reply to Carathedog

Is that enough? It doesn't mean you won't get lower - just not yet.

Carathedog profile image
Carathedog in reply to PMRpro

I’ll see how it goes, feeling better already, thanks

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