Anyone been diagnosed with Interstitial Lung Disease

[singingloud]

Today I received a CT report that says I may have Interstitial Lung Disease. I have been researching to see the connection between PMR and that disease.

The prognosis is not favorable. Has anyone else been diagnosed with this disease?

Thanks for any help.

[Flutterbies57]

waiting to see your replies . Just discovered I have a lung problem too .

[PMRpro Ambassador in reply to Flutterbies57]

Same questions for you: What medications are you on? Have you had Covid?

[Flutterbies57 in reply to PMRpro]

Yes I have had Covid. I am only taking prednisone and loxamine an antidepressant. My lung problem was just accidentally discovered while I was on holiday in Darwin and ended up in Darwin Australia with a hip problem . The lung problem has not been looked into yet but scan showed scar tissue.

[PMRpro Ambassador in reply to Flutterbies57]

ILD is a consequence of Covid in some patients:

ncbi.nlm.nih.gov/pmc/articl...

Covid has a lot to answer for!!!

[singingloud in reply to PMRpro]

ncbi.nlm.nih.gov/pmc/articl...

Another article I found yesterday.

[PMRpro Ambassador in reply to singingloud]

Hmmm - I find it difficult to take that particularly seriously given how appalling the English is!! I'd have sent it back and told them to get a native speaker to correct it - or offered to do it at my usual rate!

To be honest, I think that there are a lot of questions to ask about it. I think the most likely conclusion has to be that it is a skewed population with a high rate of disputed diagnoses at least some of which should have been RA.

[singingloud in reply to PMRpro]

I have a pulmonologist appointment for the middle of July. Hard to wait to see what is next for me. I’m to have a CT scan every three to six months.

[PMRpro Ambassador]

What medications are you on? Have you had Covid?

[singingloud]

I had a mild case of Omnicrom {sp} 2021 but I believe I also had it in February of 2020 before it was announced.

[singingloud]

My list of medication is long. Losartan/hctz, Carvedilol, 10mg of prednisone, rovustatan, famodadine and the usual vitamins and minerals. Sorry my spelling is so bad this morning.,

[PMRpro Ambassador in reply to singingloud]

ILD can be a result of Covid - see my reply to Flutterbies - and I wondered about methotrexate which can cause a type of ILD but it isn't progressive.

[Flutterbies57 in reply to PMRpro]

Interesting article. Covid may still be able to claim us . 😡

[singingloud in reply to Flutterbies57]

Take care of yourself.