Back @ work full time and slowly recovering - PMRGCAuk

PMRGCAuk

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Back @ work full time and slowly recovering

SpaghettiWestern99 profile image

I haven’t posted in a couple of months and wanted to share how my recovery has been going.

Aged 52, I was diagnosed with PMR in Aug-23. I was put on 15mg of Pred and off work until Jan-24.

After a phased return I am now working full time and getting stronger each month. Initially the physical and mental strain of working was tough, but overtime I’ve gotten used to it.

I’ve been able to take small increments in doing more exercise and whilst I’m nowhere near what I was doing pre-diagnosis, I’m able to run, play tennis and yoga.

I’m currently on 4.5mg of Pred and have to take vertigo tablets otherwise I go dizzy.

I’ve finally come to terms with PMR and accept that it’s a long road that just can’t be rushed. At the same time I’m grateful for the small improvements that come each month.

Good luck to everyone on your journey.

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SpaghettiWestern99 profile image
SpaghettiWestern99
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13 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good to hear… and hope things continue in same vein..

123-go profile image
123-go

I have to say, “Wow!” Best wishes.

PMRpro profile image
PMRproAmbassador

Good to hear - well done.

Kendrew profile image
Kendrew

That's remarkable. Really pleased for you. Long may it continue.

sidra1968 profile image
sidra1968

Hey Spaghetti! Great news!

agingfeminist profile image
agingfeminist

this is great..but I do wonder if you young guys have the same PMR as we tottering older ladies...or perhaps age takes it toll. On the whole it hangs around much longer for us. I do work (far too hard) but exercise !!#$% forget it.

Awful to have had to deal with PMR at your age...but pleased you have rebounded so well and so fast.

PMRpro profile image
PMRproAmbassador in reply toagingfeminist

Men often do have a different experience - but I know a few older ladies who had PMR for 2 years and got back to their previous lifestyle afterwards. But they are the ones who rarely figure on the pages of this forum or any other.

agingfeminist profile image
agingfeminist in reply toPMRpro

you are right we are a self-selecting group at the worst end of the spectrum...big sigh...as you probably realise I have definitely lost my bounce!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toagingfeminist

we are a self-selecting group at the worst end of the spectrum., 😳

Not all of us 😂🤣.. hope your bounce emerges soon…

agingfeminist profile image
agingfeminist in reply toDorsetLady

thanks for the chuckle

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toagingfeminist

Sounded as if you needed it.. 😊

PMRpro profile image
PMRproAmbassador in reply toagingfeminist

Not entirely - after all, the person who arrive here at the start of PMR cannot know or even dream their PMR will last well more than the 2 years bandied about at that stage. I may be at "the worst end of the spectrum" in terms of duration but it isn't PMR that stopped me skiing, or going on holiday or a lot of other things. Bear in mind the last 4 years have been very strange in terms of medical and physical effects for all of us.

There are things that may have to be adjusted to keep the bounce - and help to hang on to it.

SpaghettiWestern99 profile image
SpaghettiWestern99 in reply toagingfeminist

thanks agingfeminist .

Having read many of the stories on this forum I recognise how everyone’s journey is different.

PMR is an awful disease and life changing and I’ve had my share of dark days. I’m extremely grateful to be able to impart some good news and for the support of this group.

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