Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for April 2024

Spring Covid booster

Have had text from my surgery offering me a Spring Booster for Covid. Have been on 4.5mg Prednisolone for a couple of months now. Would my immune system...

Have had text from my surgery offering me a Spring Booster for Covid. Have bee...

jaycee444

•6 months ago

31 Replies

Six hour time change

Going from US to EU for an 8-day river cruise. Should I take my prednisone at the same UTC time, or make a temporary adjustment to the new time zone?

Going from US to EU for an 8-day river cruise. Should I take my prednisone at th...

papadapadoo

•6 months ago

2 Replies

Vasculitus, a promising road ahead- let’s hope so!

https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as...

https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fullt...

Exflex

•6 months ago

7 Replies

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Is it my adrenals playing up?

I have been stable on 3mg since early December and am planning to start a taper to 2.5 mg on Saturday. I had meant to do this, in January but I had covid...

I have been stable on 3mg since early December and am planning to start a taper...

jinoadby

•6 months ago

22 Replies

plantar fascia

we’ll, I took advice and increased my pred to 10mg. For the weeks holiday and it was successful. Came home last weekend and reduced to 6..still okay. But...

we’ll, I took advice and increased my pred to 10mg. For the weeks holiday and it...

Jeanlindenburn

•6 months ago

21 Replies

% Taking Pred at .5

Somebody very kindly posted the % one would one would drop on each .5 taper from about 9mg. I wrote it all down to show my GP and now I can't find it anywhere!...

Somebody very kindly posted the % one would one would drop on each .5 taper from...

Dinahmite

•6 months ago

2 Replies

pain killers

I am now on 4 mg on a very slow taper and a low blow has knocked me sideways - sciatica /, sacroilliac origin of some form yet to be confirmed but agonising...

I am now on 4 mg on a very slow taper and a low blow has knocked me sideways - s...

Trovatello

•6 months ago

17 Replies

pmr symptoms

has anyone else had posterior base of head pain with pressure headaches that also wrap around anterior upper chest and neck area with a tight, vise like...

has anyone else had posterior base of head pain with pressure headaches that als...

EagleCliff

•6 months ago

15 Replies

Yet Another Tapering Question

I had been doing well after tapering from original 15mg dose (start date 08/03/22) using DL’s slow taper. I got down to 5 and stayed there for the next two...

I had been doing well after tapering from original 15mg dose (start date 08/03/...

Donna5658

•6 months ago

6 Replies

PMR/Sciatica

I have had PMR since autumn 2016 and have been on 5mg for some time..I do try regularly to reduce ,so far unsuccessfuly..hopefully I will get there...

I have had PMR since autumn 2016 and have been on 5mg for some time..I do try re...

Mellow-Yellow

•6 months ago

26 Replies

Down to 2mg

I began the journey with PMR and Prednisone in July of 2021. Very scary time as theories were circulating throughout the world that the Covid-19 vax was...

I began the journey with PMR and Prednisone in July of 2021. Very scary time as ...

iblue

•6 months ago

5 Replies

reduced prednisone

I’m now reducing prednisone from 20mg to 15mg only second day and my stomach has swollen like a balloon making it very uncomfortable for me to move around. I...

I’m now reducing prednisone from 20mg to 15mg only second day and my stomach has...

Numptybrain

•6 months ago

16 Replies

My story- thanks for listening, understanding & caring

Hi everyone- I haven't written for a long time but feel the need to do so today. 4 years ago on 14/4/2020 my life changed forever as I was diagnosed with...

Hi everyone- I haven't written for a long time but feel the need to do so today...

Uisce58

•6 months ago

29 Replies

weight loss question please

I would welcome some advice. Been on prednisone since February 2023, also on tocilizumab injections. Currently taking 7mg prednisone. I am trying to lose some...

I would welcome some advice. Been on prednisone since February 2023, also on toc...

Smellydog9

•6 months ago

19 Replies

Blood test results

Hi all, I had my blood test results back around 4 week ago, esr 19 mm/h, crp 14.3mg/L total white cell count 14.8. neutrophil count 10.2 lymphocyte count 3.9....

Hi all, I had my blood test results back around 4 week ago, esr 19 mm/h, crp 14....

Lynlea

•6 months ago

8 Replies

elevated b12

HI All. I am 2 years into my GCA journey. Has anyone else had elevated b12 blood levels from GCA ? Thanks

HI All. I am 2 years into my GCA journey. Has anyone else had elevated b12 bloo...

Lovemocha

•6 months ago

9 Replies

Lansoprazole /Prolia

In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various...

In my Sunday newspaper today the usual GP column has a question put to the GP ab...

Purplegloss

•6 months ago

18 Replies

Aching arm and cold hands

Sorry…This might be a bit long and rambling…During March I completed a very slow taper to 1.5 mg pred and I stayed there for 3 weeks trying to decide whether...

Sorry…This might be a bit long and rambling…During March I completed a very slow...

KerryIreland

•6 months ago

5 Replies

GCA/PMR and spa treatments

As some of you may know my mum was diagnosed last March with GCA and since then has successfully tapered to 9mg using DL 5 week taper with no flares so far.She...

As some of you may know my mum was diagnosed last March with GCA and since then ...

Buchanan16

•6 months ago

12 Replies

Rinvok

Just began for RA wanting to know anyone elses experiences with this drug? Side effects, efficacy etc.

Just began for RA wanting to know anyone elses experiences with this drug? Side...

smalko

•6 months ago

2 Replies

3 weeks at zero Pred and about to travel

I’m delighted to be at zero (it’s almost 3 weeks) but I’m not complacent and I’m being careful to take good care of myself both body and mind. I’m driving to...

I’m delighted to be at zero (it’s almost 3 weeks) but I’m not complacent and I’m...

PipandDots

•6 months ago

5 Replies

If paracetamol helps, can it still be PMR pain?

Good morning. I began this journey in October 2022 on 15mg Pred. I managed, without much difficulty, to taper to 6.5 mg a few weeks ago (I previously reduced...

Good morning. I began this journey in October 2022 on 15mg Pred. I managed, with...

AgMuirhead

•6 months ago

5 Replies

Skin Tares and Showers

Like a lot of us I get skin tares and sometimes wind up with a nurse practitioner dressing the wound. Recently I had one on my leg and the dressing had to be...

Like a lot of us I get skin tares and sometimes wind up with a nurse practitione...

Thelmarina

•6 months ago

5 Replies

Confused

Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginning of December 2023 I had a loss of vision in my left eye, as well as a terrible...

Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginnin...

Azulmarino

•6 months ago

48 Replies

High platelet count due to iron deficiency anaemia maybe?

Just again when I thought all was going well ! High platelet count from recent blood test shows Platelet count 515 10*9/L Platelet count has been...

Just again when I thought all was going well ! High platelet count from recent...

gillsky8

•6 months ago

8 Replies

Has my PMR Gone?

Hello friends, I haven't posted for some time now partly because I've been feeling very depressed on account of my worsening health and my GP has prescribed...

Hello friends, I haven't posted for some time now partly because I've been feeli...

caftan

•6 months ago

9 Replies

low dose pred, odd symptoms?

hi all, currently tapering down from 5mg to 4.5 very slowly….seems to be going ok so far. But I’ve noticed I’m getting more hot flushes, not sure if PMR/low...

hi all, currently tapering down from 5mg to 4.5 very slowly….seems to be going o...

Cfmad298601

•6 months ago

6 Replies

4.00 am waking

in a reply two days ago PMRpro said: A new batch of inflammatory substances is shed in the body every morning at about 4-4.30am. Does that explain why I...

in a reply two days ago PMRpro said: A new batch of inflammatory substances is s...

Sibelius5

•6 months ago

9 Replies

Plasma Viscosity + Tapering

I’ve successfully tapered down from 15mg last June to 3mg now. I’ve been very lucky and had minimal problems getting down to 3mg. I had a routine blood test...

I’ve successfully tapered down from 15mg last June to 3mg now. I’ve been very l...

RedRum1968

•6 months ago

3 Replies

Totally Confused

I posted a few weeks ago asking about what I thought was a flair. I doubled the dose 5mg to 10mg as per instructions for a flair. Didn't solve the problem...

I posted a few weeks ago asking about what I thought was a flair. I doubled the ...

daisylazy

•6 months ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

Spring Covid booster

Six hour time change

Vasculitus, a promising road ahead- let’s hope so!

Is it my adrenals playing up?

plantar fascia

% Taking Pred at .5

pain killers

pmr symptoms

Yet Another Tapering Question

PMR/Sciatica

Down to 2mg

reduced prednisone

My story- thanks for listening, understanding & caring

weight loss question please

Blood test results

elevated b12

Lansoprazole /Prolia

Aching arm and cold hands

GCA/PMR and spa treatments

Rinvok

3 weeks at zero Pred and about to travel

If paracetamol helps, can it still be PMR pain?

Skin Tares and Showers

Confused

High platelet count due to iron deficiency anaemia maybe?

Has my PMR Gone?

low dose pred, odd symptoms?

4.00 am waking

Plasma Viscosity + Tapering

Totally Confused

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