finally diagnosed with Ankylosing Spondylitis not... - PMRGCAuk

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finally diagnosed with Ankylosing Spondylitis not PMR

Reedmaker profile image
4 Replies

having spent nearly two years on Pred thinking I had PMR . All credit to my rheumatologist who has been very thorough.

It is amazing how symptoms can mimic other arthritic conditions. This forum has actually been very useful and supportive, but I suppose I must now say goodbye and research a new condition which unfortunately will not burn itself out. Hard to get my head around but onwards and upwards.

Thank you to you wonderful dedicated people ..I will miss your daily wise words and wicked humour. The support and reassurance you provide is invaluable to so many.

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Reedmaker profile image
Reedmaker
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4 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Sorry to hear your new diagnosis. There are a few members on here who have the same, so please stick around -and I’m sure they’ll reach out to you with advice.

And nothing to say you cannot still enjoy our wicked humour😊

Good luck..

Reedmaker profile image
Reedmaker in reply to DorsetLady

Thank you 🙏

PMRpro profile image
PMRproAmbassador

No need to leave - many aspects of living with any rheumatological condition are similar and anyone can be a member. You wouldn't be the only person not with PMR specifically.

When someone talks about PMR that doesn't fit the general presentation we do often identify something that points in another direction - and AS comes up quite often. Would be good to have someone who can explain the differences they felt and knows about current differences in management. I know a lot of the theory but haven't the personal experience.

Do please tell us more about the journey to get the correct diagnosis.

123-go profile image
123-go

Wishing you all the best as you embark on your new journey and your research into AS. 💐

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