Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2023

possible flare or low cortisol

Hi, reduced my prednisolone about 2 weeks ago to 4.5mg from 5mg and have been okay until today. A couple of twinges here and there but manageable. Today I’m...

Hi, reduced my prednisolone about 2 weeks ago to 4.5mg from 5mg and have been ok...

Abcd123455

•7 months ago

9 Replies

operation steroid taper

Hi all, so I have managed to get down to 5.5 after raising for a week to 10 as thought I was having a flare.It’s difficult to tell if the pain in thighs is a...

Hi all, so I have managed to get down to 5.5 after raising for a week to 10 as t...

Holycow2

•7 months ago

9 Replies

cramp like pain at night from left buttock right down leg

Stargiver

•7 months ago

8 Replies

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Alendronic Acid

When I saw a new rhuemy yesterday she mentioned Alendronic Acid. I had not heard of it. I take Calcium D3 because a DXA scan showed osteopenia in my lower...

When I saw a new rhuemy yesterday she mentioned Alendronic Acid. I had not heard...

SudsSuds

•7 months ago

11 Replies

Rheumy visit

I previously posted that I thought my PMR was coming back and I was arranging an appt. By way of update I saw a new rheumy yesterday, my own being on holiday....

I previously posted that I thought my PMR was coming back and I was arranging an...

SudsSuds

•7 months ago

6 Replies

Living the dream, eventually

Hi folks, I have not posted for a while. So get your tea, wine and snax, and grab a comfy chair and a heated or weighted blanket (I can vouch for both). I've...

Hi folks, I have not posted for a while. So get your tea, wine and snax, and gra...

Singr

•7 months ago

28 Replies

Sick day rules after having IV cortisol?

On holiday in Majorca with family and had been fine although probably not pacing so much with increased activity compared to home in the UK. During the night...

On holiday in Majorca with family and had been fine although probably not pacing...

Supertech

•7 months ago

7 Replies

Is it tapering or adrenals?

I'm in hols at the moment, so probably have doing a bit too much! However, today I have shortness of breath doing the slightest thing, even sitting down, and...

I'm in hols at the moment, so probably have doing a bit too much! However, toda...

CoziNess

•7 months ago

8 Replies

possible diagnosis of PMR for my husband.

for the last 2 weeks my husband has had some headaches, neck ache, back ache, right leg ache and a pain in his groin. He’s found it difficult to sleep during...

for the last 2 weeks my husband has had some headaches, neck ache, back ache, ri...

JayceeJC

•7 months ago

75 Replies

Bright Lights and Halos

Hi, For a change, I am not asking for myself, but for a male friend who has literally just been diagnosed with PMR. He is on day five of taking 15mg Gastro...

Hi, For a change, I am not asking for myself, but for a male friend who has li...

Songbird69

•7 months ago

28 Replies

Atypical muscle aches?

Hi again everyone, I am really struggling to answer something and am hoping some of you might be able to help. Basically, I am on 7 mg pred, and I have mild...

Hi again everyone, I am really struggling to answer something and am hoping som...

sferios

•7 months ago

20 Replies

My cortisol test results

Hi everyone, I'm on 7 mg pred and I got my first ever cortisol test. It was done at 8 am, before I took my morning pred, and results were 15.0 ug/dL. This is...

Hi everyone, I'm on 7 mg pred and I got my first ever cortisol test. It was don...

sferios

•7 months ago

5 Replies

nhs app

Hi Just wondering if anyone else is unable to see medical records on nhs app. I have always been able to view my medical records, spoken to gp surgery who...

Hi Just wondering if anyone else is unable to see medical records on nhs app. I...

Lynlea

•7 months ago

11 Replies

Advice needed

A little advice please. I have undertaken a working trip to France for a few days. I have been on 4 or 4.5mg but upped the dose to 5mg as a?precaution. On...

A little advice please. I have undertaken a working trip to France for a few day...

marionofnorwich

•7 months ago

6 Replies

duloxetine

Hi - has anyone been put on duloxetine My consultant put me on it last week not sure what it is for I know it’s an antidepressant which I suppose I need to...

Hi - has anyone been put on duloxetine My consultant put me on it last week not...

Glutusmaximus

•7 months ago

22 Replies

Back again

Hello All, I have not been on this site for several years. I was diagnosed with GCA and PMR back in 2016/2017. Life has been stressful…our neighborhood...

Hello All, I have not been on this site for several years. I was diagnosed ...

Tj2017

•7 months ago

12 Replies

Any ideas for travel insurance for those with PMR

I have been taking Prednisolone for PMR about 18 months now. Have tried hard to taper but following flares have now been told by Rheumy to go back to my...

I have been taking Prednisolone for PMR about 18 months now. Have tried hard to...

Sukian

•7 months ago

23 Replies

antidepressants

any info on this subject please? How do they work in the very low stages of predisolone. Had a disturbing panic attack in the night and think the time has...

any info on this subject please? How do they work in the very low stages of pred...

Bedwell

•7 months ago

58 Replies

I’m still here!

I was diagnosed with PMR in September of 2017. I started out on 20 mg prednisone. For the last year or so I have been down to 1 mg. My rheumatologist doesn’t...

I was diagnosed with PMR in September of 2017. I started out on 20 mg prednisone...

Lanakay

•7 months ago

21 Replies

GCA - feeling strange!

I'm tapering down to 10mg from 12.5mg Pred & this is week 5 of doing this. I'm feeling very strange today- my head & face are feeling all 'fuzzy', pins &...

I'm tapering down to 10mg from 12.5mg Pred & this is week 5 of doing this. I'm f...

Janeval

•7 months ago

10 Replies

Reduce from 2 mg

After 9 years on pred i have been down to 2mg for 6 months and would like to go to 1 1/2 but dont know how to do slow reduction at such a small #. Can i cut 1...

After 9 years on pred i have been down to 2mg for 6 months and would like to go ...

izzyart

•7 months ago

3 Replies

Flare

How many days can I take a higher dose to curb a flare up before not being able to reduce again successfully.

How many days can I take a higher dose to curb a flare up before not being able ...

Deneez99

•7 months ago

4 Replies

Basal cortisol test

I’m a little confused ( not unusual). A response on another thread suggests that a basal cortisol level of 346 is ‘suboptimal’ and it’s prompted me to ask...

I’m a little confused ( not unusual). A response on another thread suggests th...

Hulotsholiday

•7 months ago

7 Replies

Do adrenals work like this?

After a yoga class I went for lunch with friends. We then went to do a bit of shopping, when my legs got a bit wobbly and my head felt woozy so I went back to...

After a yoga class I went for lunch with friends. We then went to do a bit of sh...

Viveka

•7 months ago

29 Replies

Thanks for Omeprazole query replies

Thank you to everyone who replied to my queries about Omeprazole. I’m afraid I haven’t been able to respond to all of them individually - there have been 53...

Thank you to everyone who replied to my queries about Omeprazole. I’m afraid I ...

Sibelius5

•7 months ago

3 Replies

Wbv plates

Hi everyone. I have been thinking about getting a wbv plate. I was going to try one out at a gym 1st but have had a couple of issues from a couple of weeks...

Hi everyone. I have been thinking about getting a wbv plate. I was going to try...

Clucket

•7 months ago

26 Replies

Is this PMR returning?

Having been down to zero and 0.5mg on a dead slow method of reduction, I had a few emotional upsets and my adrenal glands didn’t cope so Iwent back to 2mg per...

Having been down to zero and 0.5mg on a dead slow method of reduction, I had a f...

Crochetgirl65_

•7 months ago

4 Replies

Tapering withdrawal

Morning all , I am currently tapering from 3mg to 2mg , my blood test inflammation ratings are normal , but I am having very sore muscle pain whilst tapering...

Morning all , I am currently tapering from 3mg to 2mg , my blood test inflammati...

HorseyG

•7 months ago

9 Replies

Histamine Intolerance

Hi all. I've been ill for almost 14 years without a diagnosis. I have learned through my own trial and era that I have an intolerance to foods high in...

Hi all. I've been ill for almost 14 years without a diagnosis. I have learned t...

Dixzeland

•7 months ago

12 Replies

Cogentyx

The recent interview with Dr Mackie posted here mentioned Cogentyx (Secukinumab) as a possible treatment for GCA. Just curious if anyone's tried it. I've...

The recent interview with Dr Mackie posted here mentioned Cogentyx (Secukinumab)...

winfong

•7 months ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2023

possible flare or low cortisol

operation steroid taper

cramp like pain at night from left buttock right down leg

Alendronic Acid

Rheumy visit

Living the dream, eventually

Sick day rules after having IV cortisol?

Is it tapering or adrenals?

possible diagnosis of PMR for my husband.

Bright Lights and Halos

Atypical muscle aches?

My cortisol test results

nhs app

Advice needed

duloxetine

Back again

Any ideas for travel insurance for those with PMR

antidepressants

I’m still here!

GCA - feeling strange!

Reduce from 2 mg

Flare

Basal cortisol test

Do adrenals work like this?

Thanks for Omeprazole query replies

Wbv plates

Is this PMR returning?

Tapering withdrawal

Histamine Intolerance

Cogentyx

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