return of throbbing after stopping prednisolone

[AlamedaCounty]

Diagnosed with temporal arteritis Nov 2021. Finally off prednisolone 2 weeks ago. Seem to be getting worse throbbing than when I started. 1. Is this usual? 2. Will it improve?

[DorsetLady PMRGCAuk volunteer]

Hi

In your previous post I said I thought you had reduced much too quickly -and I’m still of that opinion.

Had your GCA run its course you shouldn’t be getting the symptoms you describe.

In my view -

1. No they are not normal -and

2. I doubt they will improve without going back on Pred.

You may only require a small dose as a trial - but you need to discuss with doctor ASAP.

As it’s the weekend, I would ring nhs111 for advice…

[PMRpro Ambassador]

I agree 100% with DL's comments.

[piglette]

Listen to your body, perhaps you were not ready to stop he steroids yet.