I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs in April labs were higher than at the start , but no increased pain etc. ( ESR 44 , CRP 19.7 .
Rheumatologist said to stay on 15 until I see him this week and see what labs are prior to visit.
in the meantime my vision was blurry and had some tingling on top of head . Opthamology exam was negative and Doc just twinged my prescription which was over due . He’s been a very competent Othamologist ,but when I mentioned a high steroid treatment if I did get GCA he remarked that once it “ happens” steroids don’t help. I wasn’t in the mood to argue with him . He said it would happen overnight and nothing to prevent it.
Since that visit I picked up my new lenses and vision is still blurry . Last few days shoulder & neck pain but I can tolerate the pain . In addition fasting B/S was 140 this am . That is a first for me . I started Keto three days ago .
I’m feeling labs will not have improved and he may tell me to up my dose. Right now though the blurry vision and BS a is my concern until I see him Friday .
any suggestions ?