Been trying to write out the emotional roller-coaster of the past week.
So here we all are, sensible grown-up rational people, but we’ve found ourselves with two highly sensitive children, PMR and Pred. One’s a tot sobbing and whimpering, I can’t do all that, don’t you understand I can’t do that. Baby just wants to bury her head in Mummy’s skirt and it all to go away. The other one’s a stroppy teen snarling, why should I have to do that. This is your problem, idiots, you do the work here. Not how the world works, kids. Of course we can hack this, darling, dry your eyes and give Mummy a smile….Kids, what would you do with ‘em. I found I was actually feeling woozy. I had to laugh at myself. Once my head was on my nice soft pillow.
And just got my scrip, I think it may be said I got a result. Pred running out of my ears, all remaining well probably enough to last till Christmas. i think I said somewhere I didn't think it was down to my GP but rather some locum or possibly a trainee pharmacist.
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Mayadill
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I remember not so long ago, buying some new dish cloths and I put them in my oven! Absolutely no idea what I was thinking at the time and was as mad as a pig a few hours later when I couldn't find them. Hubby was cooking dinner that evening and he discovered them on the top shelf!! 😂
I found a packet of fresh leeks in my freezer, hadn’t even noticed they’d gone! Needless to say they were inedible, just a sloshy mess after defrosting 🤣
My friend thought her eyesight had suddenly gone...everything was out of focus. She really panicked until I noticed one of her lenses in her glasses had fallen out when she'd put them back on after cleaning them! She hadn't realised...the lens was in her lap! Haha! 😄
Reminds me of someone I knew years ago, who driving to work with her sunglasses on, thought her eye sight had 'gone peculiar' and other drivers were checking her out! Turned out she was driving with one lens, the other having fallen out. Boy! did we laugh: it was the image of her driving like that, that did it😂
Happened to me with my anticoagulant at over £100 per monthly pack - I rang and asked for a refil and fetched the 4 packs from the pharmacy. The next time I went in she gave me 2 more. And another 2 the next time ... Only just finished them!!! The cardiologist changed the dose - just as well it wasn't any earlier or they'd have been at risk of going to waste. Though my cardiologist happily takes them to use for patients while waiting for approval of funding.
You wake up to find your house on fire. Desperately you run from room to room but there is no way out. When you think all is lost, when you are screaming for help which never comes, a stranger smashes down your door and hauls you to safety in the street. The cool night air relieves your pain. You have no clothes, no shoes, your house still burns. But the stranger has thought of everything. He hands you a bundle of things rescued from the flames, and soon you are ready for your journey, clothed, with even your watch, a hat, and the comforting feel of a fat wallet in your pocket. You turn to thank your saviour but then you see it is not only your house which has burned but the whole city is ablaze. Only the stranger knows a safe way through the conflagration so you are in his hands.My name, he says, is Methyl/prednis/ol/one but you can call me Pred. I am your friend.Your dangerous, two-faced, necessary friend.Soon after you start your escape together he points at your coat pocket and says, let me see your wallet. And because he is strong and imposing and has saved your life you hand it to him. Later he decides he fancies the coat itself, and later still you have to give up your belt, and then, although you need it against chill of winter or heat of sun, your hat. Worse is when he takes your glasses and now the way becomes blurred. You know you are near the outskirts of the city and hope you can shed this acquisitive companion but then you see that even the suburbs, and the countryside, are dotted with small fires. As if to emphasize your need for him a cinder lands at your feet and as the debris underfoot flares up Pred stamps it out. He's with you for the long haul.As you continue on your way time seems to change its nature. You have to live each moment as it comes, not daring to look too far ahead, afraid of how long this unwanted unplanned journey will be before all the fires are left behind. And every so often Pred asks for another item from you. For a while you limp along with one shoe until he evens you out by taking the other. But what good are shoes without socks, he says. Soon you have nothing left, you are as naked as you were when you were pulled from the fire. But you notice your companion seems less substantial now as though he is fading out of existence and you dare to look ahead.There is a village nestled beside a lake. You can walk down a hill to it, over a sward of soft, cool, green grass. In the distance is the sea.I'll leave you now says Pred. Although he is nearly transparent his voice is as strong as ever. Without a hint of irony he says, go rest in that place, get yourself a new suit of clothes, you'll need it. He notices you still have your watch. I'll have that off you, he demands. And with it go all the days and months and years during which he was your thieving guide.You walk away from him but turn to say goodbye. He did save you, after all. Just before he winks out of your life he says, his voice strong and real, maybe we'll meet again some day.
it's absolutely fantabulously brilliant - but it's not quite my relationship with Pred. I think this is maybe because I was disabled to start with so a lot of the things normally able-bodied people have taken from them I don't miss because I didn't have them anyway. Also touch wood, cross fingers and according to medical evidence to date I'm not having any physical side-effects, I had cataract, now fixed, before PMR, HbA1C normal and so on, so the rest of my health hasn't been taken from me. A dangerous pal, certainly, but for me not so much that she nicks things. She's actually really helpful and enables me to do what I usually did. BUT she's absolutely unable to cope with stress and goes on a rampage, breaking the whole place up.
Oh dear. Tears or temper - I have had a week of that - again. Can be hard to get out of that cycle. Whoever can banish stress should be a world leader.
I have a playlist of soothing music and a meditation vid I've put together on YouTube, run it when I'm settling down to sleep. I'm usually asleep before it's over, not on truly calamitous days.
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