The Quick and Kirwan method of reducing dosing, which is sadly not widely known about or practiced widely by other rheumatologists, keeps people at 10mg for a year
Just found this in an old post from tangocharlie and truly startled. I was on 10 mg for nearly a year simply because I was left to my own devices and that's where I was happy.
Vanesssa Quick still uses it at Luton Hospital where she is a Consultant specialising in GCA - because it does work to reduce flares. I think it is because it makes the doctor pause at a point where normally they'd be rushing and taking the dose too low too soon.
Lets the patient pause. Just go with the flow...Not that I've been thinking about stress or anything but some people here are being pressured to/forced to reduce to order which doesn't sound good to me just from the emotional/psychological angle. Last thing any of us needs is anything hectic.
in my early days with pmr in 2015, this taper method of staying a year at 10mg was mentioned quite often on the Forum - mainly by PMRpro if I remember correctly.
Personally, I didn’t use it, but it took me over a year to get from 10 to 9mg. In fact, the 10mg mark was spoken about as a difficult level to get through, and it was helpful to me to know that.
It’s good that you’ve brought it up again, as it hasn’t really been spoken about for quite a while now.
10 mg was my first flare 6-8 months after diagnosis, having gone down painlessly from 20, 17.5, 15, 12.5.. Put myself back up to 20, by the time I saw the doc it was 17.5 and the dear man just said, as you were, so I mooched slowly back down to 10 - and stuck there.
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