Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for April 2023

One thing after another.

I got covid April 2nd and it seemed rather mild.After testing negative I developed a bad cough.Iam a non smoker but my x-rays showed pneumonia and copd.Could...

I got covid April 2nd and it seemed rather mild.After testing negative I develop...

Hunter134

•2 years ago

6 Replies

Bruising

Was diagnosed with PMR in August 2019 and have tapered very slowly, with a number of hitches to 0.5mg Pred. It's taken 4 attempts at this dose, but tonight I...

Was diagnosed with PMR in August 2019 and have tapered very slowly, with a numbe...

Portobello

•2 years ago

17 Replies

completion of two year course.

I have just completed a 2 year steroid course at the end of February , and whilst the pain has not returned to the original areas, I now have carpal tunnel...

I have just completed a 2 year steroid course at the end of February , and whils...

BadStanley

•2 years ago

5 Replies

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another flare - how do I cope with this one?

I was doing so well - nearly down to 1 mg. pred 4 days in a week - when suddenly I had a flare about a week ago. My hands and wrists are swollen and painful,...

I was doing so well - nearly down to 1 mg. pred 4 days in a week - when suddenly...

humlies

•2 years ago

7 Replies

Exercise and muscle pain

I have had PMR for 5+ years now, 76 yrs old and still weaning down on Prednisone, now at 2 mg. I have strained my lower back with lifting and bending too much...

I have had PMR for 5+ years now, 76 yrs old and still weaning down on Prednisone...

fishingnut

•2 years ago

6 Replies

2 months into PMR, tried cutting back pred again, get pains but not PMR symptom pains?

What does it mean is I cut back an evening dose from 10 to 5, and then in the am my right wrist sore and swollen, left forearm hurts, pain in the buttocks-...

What does it mean is I cut back an evening dose from 10 to 5, and then in the am...

sdowney717

•2 years ago

28 Replies

So sad

This morning I spoke to my rheumatologists secretary only to be told that he’s leaving the trust today. He’s had enough and is taking a complete break. She and...

This morning I spoke to my rheumatologists secretary only to be told that he’s l...

Suet3942

•2 years ago

19 Replies

No Rheumatologist currently available 🙀

Bit of a rant but need to get it off my chest . You couldn’t believe what I was told when I called my help line to ask for advice after a major flare up , (...

Bit of a rant but need to get it off my chest . You couldn’t believe what I was ...

Gaz227

•2 years ago

22 Replies

Accessing results on line

"Many hospitals, GP practices and clinical teams work with Patients Know Best to provide their patients with access to a patient-controlled health record. See...

"Many hospitals, GP practices and clinical teams work with Patients Know Best to...

Mayadill

•2 years ago

11 Replies

pain….is it PMR or something else?

I posted about a month ago with pain in my mid back, worse laying down. I saw my GP’s Nurse Practitioner who said it was coming from the long muscles...

I posted about a month ago with pain in my mid back, worse laying down. I ...

Mstiles

•2 years ago

19 Replies

Abnormal blood result

Thought I was doing well. Down to 2mg of prednisolone daily and not really any pain as such. Sometimes just a bit stiff when I move my head but mainly only on...

Thought I was doing well. Down to 2mg of prednisolone daily and not really any p...

Karendeena

•2 years ago

29 Replies

Has anyone had to stop actemra?

I am two years into GCA, was down to 5mg of prednisone, had adrenal tests to if glands were working or trying to and had positive results. Last week I was...

I am two years into GCA, was down to 5mg of prednisone, had adrenal tests to if ...

pmac22

•2 years ago

8 Replies

Statins and Cholesterol

I have been told that my blood test shows that my Cholesterol is 6.9.Are statins and prednisolone compatible? Not enthusiastic about adding any medications...

I have been told that my blood test shows that my Cholesterol is 6.9.Are statins...

Mazxstitch

•2 years ago

19 Replies

3 Year Anniversary!

Coming up on 3 years with PMR- how should I celebrate 😩 ? Does anyone have an opinion on sarilumab ? Recently approved in US for treatment of PMR. My...

Coming up on 3 years with PMR- how should I celebrate 😩 ? Does anyone have an...

kimsaunsc

•2 years ago

14 Replies

Alendronic Acid

Friend of my wife is taking Alendronic Acid, it rings bells with me and I seem to remember getting of the medication ASAP. But after 8+ years with PMR I seem...

Friend of my wife is taking Alendronic Acid, it rings bells with me and I seem t...

DavidMF

•2 years ago

21 Replies

Update on blood test results.

Hi, all. I said I'd check in with you when I received my blood test results. ESR is at 43, CRP seems to be normal. This was only read by the receptionist and I...

Hi, all. I said I'd check in with you when I received my blood test results. ESR...

Feathercraft

•2 years ago

23 Replies

Blood test

I had a blood test recently to check my crp and esr levels at my request, my last was over a year ago. I have been on pred for over 4 years for PMR. Levels...

I had a blood test recently to check my crp and esr levels at my request, my las...

Blues1

•2 years ago

21 Replies

GCA Biopsy

Just had mine done this morning and am feeling a bit sore and headachy. Will take some paracetamol. Found the experience more stressful and more...

Just had mine done this morning and am feeling a bit sore and headachy. Will tak...

Menno1525

•2 years ago

13 Replies

Struggling to get a definite diagnosis

I was originally diagnosed with PMR in May 2021 by a very helpful GP. All was well for the first few months but on reducing I hit a wall at 8mgs. When I went...

I was originally diagnosed with PMR in May 2021 by a very helpful GP. All was we...

Paul76

•2 years ago

13 Replies

Alendronic acid

Since my flair up I've now been on 15mg pred ( up from 7mg)for 3 weeks. Well, iv'e not felt this good in years. I can actually walk properly, walk with a...

Since my flair up I've now been on 15mg pred ( up from 7mg)for 3 weeks. Well, i...

Bobbury

•2 years ago

10 Replies

Blood sugar levels when taking Prednisolone

Since starting my steroid journey last September I have tried to minimise my sugar intake and haven’t managed too badly seeing as though I have a very sweet...

Since starting my steroid journey last September I have tried to minimise my sug...

Bayleaf1

•2 years ago

29 Replies

Mixing MTX and Steroids

I have recently managed to to taper off Prednisolone, after two years of attempting to stop. I am currently being treated with Methotrexate at 20mg/week, but...

I have recently managed to to taper off Prednisolone, after two years of attempt...

JaiSea

•2 years ago

15 Replies

A supplementary question about Lansoprazole

Following the responses to Donaloge’s thread, I’m wondering if I need to be taking an ’azole at all. I always have yogurt and/or kefir with my breakfast (2-3...

Following the responses to Donaloge’s thread, I’m wondering if I need to be taki...

calibriel

•2 years ago

4 Replies

PMR, exercise & tapering

I’m aware that this is very early in a much longer journey. I’ve been on 15mg of Pred for 3 weeks and it has been like a wonder drug to me! I am normally a...

I’m aware that this is very early in a much longer journey. I’ve been on 15mg of...

Jancy2

•2 years ago

20 Replies

Blood pressure up and down like a yoyo...

My BP is going up and down all over the place. Last night I took two readings at around 7.30pm and had 117/70 (left arm) and 120/73 (right arm). This...

My BP is going up and down all over the place. Last night I took two readings at...

Hidden

•2 years ago

22 Replies

My PMR Journey so far

The condition started with a stiff neck and in early February I experienced a lot of pain in my upper arms, a great deal of stiffness and loss of energy and...

The condition started with a stiff neck and in early February I experienced a lo...

Cricket47

•2 years ago

8 Replies

Relapse after stopping Pred

Was first diagnosed 2007, responded well to Pred. Really slow reduction as seemed to get symptoms even with tiny reductions. On 1mg from about 2016 till 2022...

Was first diagnosed 2007, responded well to Pred. Really slow reduction as seeme...

Labyrinthlover

•2 years ago

26 Replies

Gardening wobbles

Hello, Today I had to prune the rose bushes and the bush roses, in a terraced front garden. However, I was disappointed to find that it was hard going,...

Hello, Today I had to prune the rose bushes and the bush roses, in a terraced f...

Hidden

•2 years ago

86 Replies

A neurologist in Greater London

I see that Dr Sarah Mackie is the main lead for PMR. Are there any people of her calibre and experience in the greater London area. My GP refused to refer...

I see that Dr Sarah Mackie is the main lead for PMR. Are there any people of he...

Motida

•2 years ago

12 Replies

Is there necessarily any necessity for Omeprazole?

Hello, I switched from Lansoprazole to Omeprazole because the Lansoprazole was causing diarrhoea. Now I have stopped taking the Omeprazole because that too...

Hello, I switched from Lansoprazole to Omeprazole because the Lansoprazole was ...

Donaloge

•2 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2023

One thing after another.

Bruising

completion of two year course.

another flare - how do I cope with this one?

Exercise and muscle pain

2 months into PMR, tried cutting back pred again, get pains but not PMR symptom pains?

So sad

No Rheumatologist currently available 🙀

Accessing results on line

pain….is it PMR or something else?

Abnormal blood result

Has anyone had to stop actemra?

Statins and Cholesterol

3 Year Anniversary!

Alendronic Acid

Update on blood test results.

Blood test

GCA Biopsy

Struggling to get a definite diagnosis

Alendronic acid

Blood sugar levels when taking Prednisolone

Mixing MTX and Steroids

A supplementary question about Lansoprazole

PMR, exercise & tapering

Blood pressure up and down like a yoyo...

My PMR Journey so far

Relapse after stopping Pred

Gardening wobbles

A neurologist in Greater London

Is there necessarily any necessity for Omeprazole?

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