Now I have diverticular disease to go with the PMR, Thyroid, Reynauds and EM

[MDT1]

Hi all - me again, it seems that I now have diverticular disease to add to my collection, finally got a GP appt friday evenong. This is apparently another condition that is at least in part due to the effects of steroids and possibly also Omeprazole. The 2 drugs I cannot give up! I am so upset. I just hibernated yesterday.

So my question is - anyone else?? I seem to get all the side effects and its hell! My GP says that I am just particulalry sensitive to meds and that there are a few others like me. I wondered if any are on here?? Thanks Maggie x

[DorsetLady PMRGCAuk volunteer]

Yes there are -sure they be along soon…there has been a bit of discussion in this recent post - although it wouldn’t have necessarily come up in the related posts. But as with many posts, different issues come up as the thread progresses -

healthunlocked.com/pmrgcauk....

[MDT1 in reply to DorsetLady]

thank you x

[PMRpro Ambassador]

You CAN give up the omeprazole - there are several other PPIs which have different side effects and there are also h2 antagonists which wrk in a totally different way.

However - there are studies that suggest that long term steroid use actually PROTECTS against developing colonic diverticulitis in Asians! How good a study it is I can't tell but it does suggest that there are a lot of factors including genetics and the cause is a complicated thing.

ncbi.nlm.nih.gov/pmc/articl....

It has been suggested there is a link between thyroid disorders and diverticulitis and people with Raynauds are more likely to have inflammatory bowel disease. I don't think it is as simple as the pred or PPI.

[MDT1 in reply to PMRpro]

Thank you. Yes, very helpful research but funny, maybe we have asian heritage, my brither had Berghers disease, an asian one!! ...I'm supposedly allergic to H2 antagonists ..., I could ask for a different PPI but should I add anything new atm?? Rhetorical Q!

[PMRpro Ambassador in reply to MDT1]

That's an interesting one since H2 blockers are antihistamines and used in severe allergic reactions!

You are in the UK - they could switch you to enteric coated pred and gaviscon, reducing the need for the PPI at all.

[piglette]

I have had fourteen different side effects from pred. Some have gone away as I reduce. I am definitely sensitive to medicines including the Covid vaccine which really brought me to my knees!!

[MDT1 in reply to piglette]

My heart goes out to you - thanks for sharing x

[piglette in reply to MDT1]

on the other hand I was able to actually start to ‘live’ again after pre diagnosis.