Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,478 members • 38,439 posts

All posts for January 2023

Something else!

Has anyone had breast surgery or any other kind really while still on 15mg Prednisolone. It’s making me very nervous. Been down to 6mg but back on 30mg because...

Has anyone had breast surgery or any other kind really while still on 15mg Predn...

broomfield28

•1 year ago

7 Replies

Dexascan shows bone deterioration. Not keen on adcal so looking at Vit D3 supplement. Need to avoid K2.

Those who have read my previous posts will know that after discussion I had a flare (we think due to bivalent covid vaccine) so now back up to 12mg.So need...

Those who have read my previous posts will know that after discussion I had a fl...

Ebiker

•1 year ago

16 Replies

Rheumatology Phone call !!

I have received a letter from my rheumatologist saying that I will be having a phone call to see how I am getting along .I have now tapered down to 6.5 going...

I have received a letter from my rheumatologist saying that I will be having a p...

rachelbell

•1 year ago

22 Replies

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GCA source of GCA

I just saw this on facebook & thought I would post it here....

Shanghi

•1 year ago

7 Replies

GCA dither

Thank you to those who replied to my GCA dither posting from yesterday but I think, in the interests of avoiding a lengthy narrative, I misrepresented both...

Thank you to those who replied to my GCA dither posting from yesterday but I th...

Ryeland

•1 year ago

7 Replies

? increase Pred

I have just come back from skiing, which I only did for a couple of days we were away and didn't over do it at all. I feel sore all over, bilaterally and pain...

I have just come back from skiing, which I only did for a couple of days we were...

Bubble56

•1 year ago

13 Replies

Dropped to 20 mgs now for last 4 days

well as posted previously, rheumy did bloodwork, markers flagged "High" , put on40 mgs for one week , about 3or more wks ago, then drp to 30 for 2 weeks, now...

well as posted previously, rheumy did bloodwork, markers flagged "High" , put on...

arvine

•1 year ago

6 Replies

Slightly Worried

Hi everyone. I have been PMR free for just over two years now after having it for seven years. I was diagnosed with Shingles on 10th of January. For the last...

Hi everyone. I have been PMR free for just over two years now after having it f...

Attic

•1 year ago

14 Replies

Cold Weather

Hi Everyone, Is it normal for the cold to affect your joints etc with GCA, Methotraxate and Pred?? I dont normally get cold in fact I am the one still...

Hi Everyone, Is it normal for the cold to affect your joints etc with GCA, M...

Louiseiw

•1 year ago

11 Replies

kidney problem & PMR

I’m on 20 mil steroids. I’m up every night every two hours 3/4 times a night . Started getting swelling on ankles / feet / legs & knees . Painful cramps in...

I’m on 20 mil steroids. I’m up every night every two hours 3/4 times a night . S...

Vito5566

•1 year ago

25 Replies

GCA dither

In the early stages of 'my' PMR, in June, July, last year I was a bit panicky about GCA as I started to get fleeting headaches with migraine style visual...

In the early stages of 'my' PMR, in June, July, last year I was a bit panicky ab...

Ryeland

•1 year ago

5 Replies

Link to podcast featuring Dr Sarah Myhill.

I'd like to post a link to a podcast by Dr Myhill but I would like to check with someone before I do. I'm not sure how to message PMRpro or DorsetLady, for...

I'd like to post a link to a podcast by Dr Myhill but I would like to check with...

Miserere

•1 year ago

17 Replies

Potential Potency of Methotrexate taken by Metoject.

Firstly apologies for a convoluted question. I am taking 7.5mg of methotrexate by Metoject, the nurse who instructed me advised that this method could increase...

Firstly apologies for a convoluted question. I am taking 7.5mg of methotrexate b...

Rachmaninov2

•1 year ago

15 Replies

Metoject and water intake.

Not sure if this is a silly question but do I need to increase my water intake when taking Methotrexate by Metoject. I know it goes straight into the...

Not sure if this is a silly question but do I need to increase my water intake w...

Rachmaninov2

•1 year ago

24 Replies

Adrenal function results question

Hi All I am currently on 2.5 mg of Pred (and about to DSNS to 2 mg). I had a Serum Cortisol test in July 2022 which was 218 nmol/L. However, I had taken my...

Hi All I am currently on 2.5 mg of Pred (and about to DSNS to 2 mg). I had a S...

LBM1953

•1 year ago

14 Replies

Predisinol 5mg pain back

Morning all, husbands pain back at 5mg he is on day 4 of this dose .previously he was on 20 for 2 weeks 15 week 10 week .should we give it a few days longer...

Morning all, husbands pain back at 5mg he is on day 4 of this dose .previously h...

andfio

•1 year ago

20 Replies

endoscopy and steroid dose

I have been having continuing stomach problems and have been sent for an endoscopy in early February. At the moment, I am reducing from 6.5 to 6.. The...

I have been having continuing stomach problems and have been sent for an endosc...

Hidcote

•1 year ago

10 Replies

hippie

hi any advice please tapered down from 15mg to 8mg since March last year on 22 January this year down 8mg stating to feeling pain in muscles could it be I have...

hi any advice please tapered down from 15mg to 8mg since March last year on 22 J...

Hippie22

•1 year ago

11 Replies

My rheumy visit today + METOJECT

I am happy with the outcome of my visit to my rheumy today. Unaccompanied due to Covid restrictions so my translator had to stay in the car. New X-rays...

I am happy with the outcome of my visit to my rheumy today. Unaccompanied due t...

IdasMum

•1 year ago

4 Replies

nospace

Icannotwriteonthiswebsite suddenly.Asyoucansee,nospace.Help

Gossiplady

•1 year ago

17 Replies

subscription

Good Morning Everyone My subscription has lapsed and I’m not sure how to resubscribe. Advice would be very welcome please.

Good Morning Everyone My subscription has lapsed and I’m not sure how to resub...

Hollyberry12

•1 year ago

3 Replies

Synacthen test, some information please from those who have had one.

I am due to have a Short Synacthen test in a few days and I have read that it can cause side effects. I have experienced an anaphylactic shock as a result of...

I am due to have a Short Synacthen test in a few days and I have read that it ca...

Predsharer

•1 year ago

13 Replies

Toe pain

I am currently down to almost 2.5mg daily. I take 3.75 about 3 days a week (cutting a 2.5 in half). For a few weeks I have had a bit of pain in my right big...

I am currently down to almost 2.5mg daily. I take 3.75 about 3 days a week (cutt...

Sandyowl

•1 year ago

30 Replies

Facial hair growth with steroids?

I have a hairy face but now I seem to have a lot of new black hair on my face, including practically on my eyelids. Is it steroids? Anybody else...

I have a hairy face but now I seem to have a lot of new black hair on my face, i...

Merryfield

•1 year ago

68 Replies

flareup and shaking

Hi Has anyone experienced a flareup and shaking when coming down pred?

Hi Has anyone experienced a flareup and shaking when coming down pred? ...

eyeBRing

•1 year ago

4 Replies

immune system back

After getting off prednisone how long does it take for immune system to function properly?

After getting off prednisone how long does it take for immune system to function...

JMT_hiker

•1 year ago

13 Replies

Very 1st Pred reduction

Hello all… I am just starting out and have a question. Diagnosed 2.5 weeks ago. Put on 20mgs by Dr (Rheumatologist) for 2 weeks. Blood markers all came back...

Hello all… I am just starting out and have a question. Diagnosed 2.5 weeks ago....

DesertLife10

•1 year ago

27 Replies

Newly diagnosed

I have recently been diagnosed with PMR I have just been managed by GP not referred to Rheumatology Is that right

I have recently been diagnosed with PMR I have just been managed by GP not ref...

Harry8388

•1 year ago

17 Replies

Back surgery soon. Should I stay at 9mg of prednisone?

Good morning, I meet with my neurosurgeon on Friday morning. My MRI of my spine showed the spinal process that the spacer was attached to on Aug 11, 21 broke...

Good morning, I meet with my neurosurgeon on Friday morning. My MRI of my spine...

singingloud

•1 year ago

8 Replies

decreasing and diarrhoea

hi all has anyone experienced diarrhoea when decreasing. I do every time then it calms. Although I have IBS usually under control. I’m also quite fatigued for...

hi all has anyone experienced diarrhoea when decreasing. I do every time then it...

Uglow

•1 year ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2023

Something else!

Dexascan shows bone deterioration. Not keen on adcal so looking at Vit D3 supplement. Need to avoid K2.

Rheumatology Phone call !!

GCA source of GCA

GCA dither

? increase Pred

Dropped to 20 mgs now for last 4 days

Slightly Worried

Cold Weather

kidney problem & PMR

GCA dither

Link to podcast featuring Dr Sarah Myhill.

Potential Potency of Methotrexate taken by Metoject.

Metoject and water intake.

Adrenal function results question

Predisinol 5mg pain back

endoscopy and steroid dose

hippie

My rheumy visit today + METOJECT

nospace

subscription

Synacthen test, some information please from those who have had one.

Toe pain

Facial hair growth with steroids?

flareup and shaking

immune system back

Very 1st Pred reduction

Newly diagnosed

Back surgery soon. Should I stay at 9mg of prednisone?

decreasing and diarrhoea

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