Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2023

Actemra injection

Hi yet another question re actemra. Can I change time of day or day I do the weekly injection? I have tried to speak to nurse but not available ....your help...

Hi yet another question re actemra. Can I change time of day or day I do the wee...

WaltzG

•1 year ago

10 Replies

Supplementary question re Lansoprazole

I have been very interested in the responses to the question posed by crochetgardener as I have been on Lansoprazole ever since I was diagnosed in 2020, and I...

I have been very interested in the responses to the question posed by crochetgar...

calibriel

•1 year ago

6 Replies

Totally non PMR request

My Border Colie Meg, who as some of you know is very poorly. She is on 25mg of Pred a day and one of her other drugs, is Salazopyrin, which is also used for...

My Border Colie Meg, who as some of you know is very poorly. She is on 25mg of P...

Bcol

•1 year ago

30 Replies

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Newly diagnosed with PMR

Hi all I did post a couple of weeks ago to say I’d been put on pred as GP decided to try to see if it helped with my pain, which within hours improved my pain...

Hi all I did post a couple of weeks ago to say I’d been put on pred as GP decide...

Mercat

•1 year ago

7 Replies

Between a rock and a hard place :-(

Hello. I’m looking for advice from the experts on here and others who may have been in a similar quandary. In December 2020 I paid privately for a...

Hello. I’m looking for advice from the experts on here and others who may have b...

Pangolin43

•1 year ago

25 Replies

bad pain in left shoulder and down arm.

rummy says arthritis,but I have other thought. 🤷🏽‍♂️ Aches most of the time, herts to touch, comes and goes like swollen lumps. 😵‍💫😖

rummy says arthritis,but I have other thought. 🤷🏽‍♂️ Aches most of the time, h...

Ronzy

•1 year ago

15 Replies

Fine tremors all over!

hi everyone just wondering I have been reducing my prednisone from 10mgs which I feel fine on, now down to 6:5mgs (started yesterday) dropping by half of 1mg...

hi everyone just wondering I have been reducing my prednisone from 10mgs which I...

Heidiypi1

•1 year ago

7 Replies

UPDATE to Covid, continuous dry cough causing sleep loss and what to do next?

GP just called me back. Advised carry on with same home remedies ( fluids, rest, elevated sleeping etc) unless cough becones very productive and temperature...

GP just called me back. Advised carry on with same home remedies ( fluids, rest,...

Queenie1901

•1 year ago

13 Replies

newly diagnosed, need advice on steroid reduction planning.

how slow can I go? The overstretched GP wants me to try to reduce from 15mg a day to 12.5. Functioning just about ok on 15. I need a reduction plan…. I am on...

how slow can I go? The overstretched GP wants me to try to reduce from 15mg a da...

peggy1920

•1 year ago

14 Replies

Prednisolone

Hi my husband was put on 25 mg of prednisolone for 10 days then reduce by 5 mg every 5 days wasn't doing him anygood was down to 10 doc said just stop them but...

Hi my husband was put on 25 mg of prednisolone for 10 days then reduce by 5 mg e...

Keemo

•1 year ago

5 Replies

Correct way to take Lansoprozole

Morning all, I have been on prednisolone for about 16 months and didn’t want any more chemicals inside me so didn’t ever take the Lansoprozole, however am...

Morning all, I have been on prednisolone for about 16 months and didn’t want any...

Crochetgardener

•1 year ago

19 Replies

Newbie………Is it possible to be diagnosed with and treated for PMR when blood test results are “normal”?

Has anyone been diagnosed with and treated for PMR when their blood test results are “normal”? Please forgive my lack of technical knowledge but my situation...

Has anyone been diagnosed with and treated for PMR when their blood test results...

Bigbaldgit67

•1 year ago

77 Replies

Covid, continuous dry cough causing sleep loss and what to do next?

Tested positive for Covid 3 days ago after previous 3 days of cold/ flu like symptoms. Temperature (38°C for one day) and deadly sore throat now gone....

Tested positive for Covid 3 days ago after previous 3 days of cold/ flu like sym...

Queenie1901

•1 year ago

7 Replies

No One Can Answer This For Me but I'm Asking Anyway!

G'Day lovely people! I am in a quandry and I feel very torn. I am an actor and have been invited to audition for a play which doesn't start rehearsals until...

G'Day lovely people! I am in a quandry and I feel very torn. I am an actor and...

Louisa1840

•1 year ago

29 Replies

hair loss

I have lost a lot of my hair and you can see my scalp and the back of my head Think it’s stopped dropping out now mostly anyway. Been a mess gor about 5...

I have lost a lot of my hair and you can see my scalp and the back of my head ...

zoey12

•1 year ago

36 Replies

New Year , and I've Come Down With Strep. Here's Some Info if You Suspect It and Need to Get Tested Safely

So a New Year begins , but rather than hitting the ground running I've hit it with a thud. We had guests for the first Christmas since COVID and one of them...

So a New Year begins , but rather than hitting the ground running I've hit it wi...

Blearyeyed

•1 year ago

88 Replies

Happy New Year and Thankyou

Happy New Year to everyone.! Special thanks to those who’ve given me personal advice and encouragement or just a chat! Have been trying to keep away from...

Happy New Year to everyone.! Special thanks to those who’ve given me personal a...

ClarkB

•1 year ago

1 Reply

PMR pain or arthritis?

I’ve been reAding on here for long enough I should know this!! Recent background -June 22 terrible pelvic girdle and lower back pain. X-ray =mild OA hips and...

I’ve been reAding on here for long enough I should know this!! Recent backgroun...

MiloCollie

•1 year ago

40 Replies

Severe anxiety resulting in muscle weakness and feeling heavy

Hi Everyone , firstly I wanted to wish you all a healthy or healthier new year ! and also to say thank you for all the positive help I received a couple of...

Hi Everyone , firstly I wanted to wish you all a healthy or healthier new year !...

Marek1

•1 year ago

32 Replies

Sharing Gratitude!

Happy and healthy new year to each of you!!! So grateful for this site!!!

Happy and healthy new year to each of you!!! So grateful for this site!...

Chiqui1950

•1 year ago

1 Reply

Flare During Tapering continued

I posted last week about trying to decide if a resurgence of bilateral gluteal pain was a flare or prednisone withdrawal. After a week of significant pain that...

I posted last week about trying to decide if a resurgence of bilateral gluteal p...

Donna5658

•1 year ago

20 Replies

Adrenals?

My very informed friends, I have a question . I think I know the answer, but I would love input from the experts. I am 2 1/2 years into my PMR journey....

My very informed friends, I have a question . I think I know the answer, but I ...

paleolady

•1 year ago

17 Replies

Very confusing

I stopped taking prednisone in Aug. after tests showed adrenals functioning, I had had a couple of bouts of vomiting and diarrhea after getting below the 3mg....

I stopped taking prednisone in Aug. after tests showed adrenals functioning, I h...

Tiredofpmr555

•1 year ago

2 Replies

Is this adrenal glands?

Hello people, have been on pred nearly 6 years, the last two on 4mgs. Dropping by 0.5 DSNS ,3.5 OK , now slight ache in shoulders BUT feeling like a runaway...

Hello people, have been on pred nearly 6 years, the last two on 4mgs. Dropping b...

Poshdog

•1 year ago

29 Replies

update on my GCA-LVV journey - back to weekly Actemra injections

just want to give a short update on what happened since my last post. As background info: I have been diagnosed with large vessel vasculitis (mainly general...

just want to give a short update on what happened since my last post. As backgro...

DeepThought2

•1 year ago

10 Replies

Torn knee cartilage

Am due to have an arthroscopy and repair as my knee MRI shows 3 separate areas of torn cartilage and a knee effusion- am in so much pain plus stiffness and...

Am due to have an arthroscopy and repair as my knee MRI shows 3 separate areas o...

bakingD

•1 year ago

35 Replies

Covid and prednisolone

I've just done a rapid antigen test for Covid and it is positive. Some time back when the variant was more serious and the vaccine less effective, I was sent...

I've just done a rapid antigen test for Covid and it is positive. Some time back...

Smithie49

•1 year ago

7 Replies

Actemra

Actemra shots, specifically the Epi-Pen....still having problems injecting...have to push hard until I feel needle pierce skin....this morning I felt medicine...

Actemra shots, specifically the Epi-Pen....still having problems injecting...hav...

Joseph14612

•1 year ago

5 Replies

Happy New Year!

Wishing you all love , health and happiness for the year ahead ❤️

York54

•1 year ago

1 Reply

Why Still the Awful Fatigue?

I am back on 8 mgs having tried to drop from 3 to 2 and a half and having a massive flare. I would have thought that 8 mgs being above the physiological...

I am back on 8 mgs having tried to drop from 3 to 2 and a half and having a mass...

Louisa1840

•1 year ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2023

Actemra injection

Supplementary question re Lansoprazole

Totally non PMR request

Newly diagnosed with PMR

Between a rock and a hard place :-(

bad pain in left shoulder and down arm.

Fine tremors all over!

UPDATE to Covid, continuous dry cough causing sleep loss and what to do next?

newly diagnosed, need advice on steroid reduction planning.

Prednisolone

Correct way to take Lansoprozole

Newbie………Is it possible to be diagnosed with and treated for PMR when blood test results are “normal”?

Covid, continuous dry cough causing sleep loss and what to do next?

No One Can Answer This For Me but I'm Asking Anyway!

hair loss

New Year , and I've Come Down With Strep. Here's Some Info if You Suspect It and Need to Get Tested Safely

Happy New Year and Thankyou

PMR pain or arthritis?

Severe anxiety resulting in muscle weakness and feeling heavy

Sharing Gratitude!

Flare During Tapering continued

Adrenals?

Very confusing

Is this adrenal glands?

update on my GCA-LVV journey - back to weekly Actemra injections

Torn knee cartilage

Covid and prednisolone

Actemra

Happy New Year!

Why Still the Awful Fatigue?

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