In the early stages of 'my' PMR, in June, July, last year I was a bit panicky about GCA as I started to get fleeting headaches with migraine style visual disturbance...similar to those I used to experience occasionally in my thirties and forties,( although those earlier migraines were longer and more intense, up to a couple of days and I felt afterwards like my head had been kicked in!)
In response to my query at that time, the information on this forum, however, was that a GCA headache was a headache like no other and I, and they, calmed down!
Over the last month I have been experiencing many more migraine style headaches, with migraine like visual disturbance, like fuzzy/fizzy edges to my visual field, say for 15 to 30 minutes and a sore head but not in any specific area. At least once per day but then maybe a couple of days with nothing. I have also woken in the night with a sore head. ESR and CRP are normal. Recent telephone discussion between GP and Rheumy (Rheumy appointment next month) is around whether to up the Pred to 40g. (Currently on 7mg and feeling fine on that). I said I would like to continue as normal and monitor, with the option of increasing Pred.? Do I wait then for the headaches to increase in frequency and intensity? I believe biopsies and ultrasound are not so valid with a high Pred dose. Of course I'm in a dither now.....did I do the right thing? I know there is no clear answer but would really appreciate the wisdom and experience of this group here. Thank you