Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2023

update: tapering, nausea, steroid withdrawal, adrenal glands

Three weeks ago, I wrote about having nausea and dizziness at the beginning of my taper from 6 mg to 5.5 mg. I had just taken 5.5 mg for the first time on the...

Three weeks ago, I wrote about having nausea and dizziness at the beginning of m...

LucilleG

•1 year ago

6 Replies

Roller Coaster Ride

I haven’t been very present in the group this last week. It’s been a very up and down time. Briefly I’ve had an awful time, feeling confused, exhausted and...

I haven’t been very present in the group this last week. It’s been a very up and...

BigEric

•1 year ago

5 Replies

Prednisolone some effects

My partner has had cancer 3 times in 3 years and has been on prednisolone since September. She started on 55mg per day, down to 10mg per day. Last week she...

My partner has had cancer 3 times in 3 years and has been on prednisolone since ...

Samson08

•1 year ago

11 Replies

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Methotrexate - a history lesson

This popped up in my feed this morning to celebrate MTX's 75th birthday - I thought others might find it interesting....

This popped up in my feed this morning to celebrate MTX's 75th birthday - I thou...

PMRpro

Ambassador•1 year ago

75 Replies

It Is NOT just Prednisolone

I have just posted this on another thread. How our bodies and muscles in particular, react to this drug is critical to the way we need to address dosage and...

I have just posted this on another thread. How our bodies and muscles in particu...

cycli

•1 year ago

152 Replies

Getting pred abroad

I’m currently in Lanzarote and have another 5 weeks here. I’ve just checked my pred supply and I’m two weeks short😱😱😱 What options do I have to get some? I...

I’m currently in Lanzarote and have another 5 weeks here. I’ve just checked my p...

Griggser

•1 year ago

14 Replies

Covid - some thoughts……

Well after 13 days I am finally testing negative (2nd clear test today). The whole experience has has left me feeling a bit angry that the government ditched...

Well after 13 days I am finally testing negative (2nd clear test today). The wh...

jaycee444

•1 year ago

34 Replies

possible GCA flare post covid

I tested positive for covid on 1/10 and was coughing nonstop, fever, headache….they gave me 3 infusions of remdesivir, they said the paxlovid oral med was not...

I tested positive for covid on 1/10 and was coughing nonstop, fever, headache….t...

pmac22

•1 year ago

15 Replies

First Rheumy Appointment......PLUS Surgery

Hi everyone :) I have been a bit busy with appointments and today a Rheumatologist appointment was booked for Feb 9th.... This will be the first for me as...

Hi everyone :) I have been a bit busy with appointments and today a Rheumatologi...

discoballs

•1 year ago

102 Replies

Sick day rules - for adrenal suppressed patients only?

Just had a bit of a grilling from GP about use of sick day rules. First of all he had no idea what I was talking about then he said they were intended only for...

Just had a bit of a grilling from GP about use of sick day rules. First of all h...

chriss48

•1 year ago

56 Replies

Advice on a lower GI investigation with a swallowed camera as a hospital in-patient.

I gave up Tocilizumab /Actemra early because of lower abdominal pain and diahorrea about a year ago. My Colonoscopy showed diverticulosis and polyps which were...

I gave up Tocilizumab /Actemra early because of lower abdominal pain and diahorr...

SheffieldJane

•1 year ago

104 Replies

What is tenderness on upper cheek?

I have had on and off, the last three weeks a tenderness in my right cheek. Only the fleshy part no aches in facial bones. I just wondered if this is...

I have had on and off, the last three weeks a tenderness in my right cheek. Onl...

Fetlar73

•1 year ago

10 Replies

empty capsule cases

Hi, I’m prone to gastric problems and just had a stomach ulcer heal but now I’m on Prednisolone I’m finding they are irritating my stomach to how it was...

Hi, I’m prone to gastric problems and just had a stomach ulcer heal but now I’m ...

lennysmummy

•1 year ago

29 Replies

Hello!

Not having a good morning, lot of discomfort in left hip/ lower back but…..I’ve got 5 days left of the Motor Neurone Challenge of 15000 steps a day in January...

Not having a good morning, lot of discomfort in left hip/ lower back but…..I’ve ...

Allcraft

•1 year ago

13 Replies

Prednisone and Kenalog 40 mg. injection question

This week I went to my Orthopedic Surgeon for follow-up on a long standing right shoulder issue (DJD) and he recommended an injection of Kenalog (40mg). I...

This week I went to my Orthopedic Surgeon for follow-up on a long standing right...

Abikitty

•1 year ago

19 Replies

Zoe on Exercise and Blood Sugar Spikes

https://joinzoe.com/learn/podcast-improving-blood-sugar-control-with-exercise?utm_source=uk_newsletter&utm_medium=email&utm_campaign=newsletter_week34&utm_conte

https://joinzoe.com/learn/podcast-improving-blood-sugar-control-with-exercise?ut...

Alchemy8

•1 year ago

1 Reply

Alchemy8 - response to your chat

Sorry, even though DorsetLady has told me how to respond to your chat for some reason I can't seem to. Quite agree with what you say - there can be more than...

Sorry, even though DorsetLady has told me how to respond to your chat for some r...

Miserere

•1 year ago

7 Replies

Knee replacement soon & on 8mgs pred

I am finally in the pipeline for one of my knee replacements in 6-8wks time. I have been reducing very slowly from 15mg and currently on 8mg. I have decided I...

I am finally in the pipeline for one of my knee replacements in 6-8wks time. I h...

Esradral

•1 year ago

24 Replies

feet and ankle swelling

I was wondering if anyone has had swelling in their legs, ankles and feet after travelling for 4 plus hours. I have never had this before and I’m wondering if...

I was wondering if anyone has had swelling in their legs, ankles and feet after ...

Shaza123

•1 year ago

29 Replies

Emergency kit for Adrenal Crisis

I tapered down to 4.5mg a few days ago. Thus far, I haven’t noticed any differences in how I’m feeling but that could of course change. I’ve read quite a few...

I tapered down to 4.5mg a few days ago. Thus far, I haven’t noticed any differen...

Siena62

•1 year ago

35 Replies

Another cancelled Rheumy appointment

Had phone call this morning cancelling my appointment with Specialist Rheumy Nurse due tomorrow. The nurse is off sick and next available appointment is March...

Had phone call this morning cancelling my appointment with Specialist Rheumy Nur...

Baner

•1 year ago

31 Replies

Cataract surgery imminent

I have cataract surgery scheduled for next Wednesday 1st February for both eyes. It is being done privately at a hospital nearby and the opthalmic surgeon is...

I have cataract surgery scheduled for next Wednesday 1st February for both eyes....

Raga72

•1 year ago

10 Replies

up coming urology procedure and sick day rules?

i am waiting to have laser surgery with general anaesthetic on a benign prostate problem shortly. I am successfully reducing my pred for PMR for the second...

i am waiting to have laser surgery with general anaesthetic on a benign prostate...

Pommygranny

•1 year ago

4 Replies

another disappointing rheumatologist visit

hi all , a very frustrating nurse visit yesterday after over 3 years on preds and methotrexate for 9 months they are now saying after a excruciating headache...

hi all , a very frustrating nurse visit yesterday after over 3 years on preds a...

Rottsuzi

•1 year ago

50 Replies

Pprednisolone and nitrofurantoin

Hello all - was going really down to 4mgs but stuck there for 4 years.Then the dreaded UTI struck and I was prescribed 6 tablets nitrofruantoin over 3 days....

Hello all - was going really down to 4mgs but stuck there for 4 years.Then the d...

Poshdog

•1 year ago

27 Replies

still waiting

further to a oreviose post….. AskMyGP 11/1/23 . Asked GP if I could increase my dose of Pred . Having problems getting out of bed /chair. My GP asked me to...

further to a oreviose post….. AskMyGP 11/1/23 . Asked GP if I could increase my...

Suffererc

•1 year ago

10 Replies

Jaw claudication - what is it like for you?

Can anyone please describe to me how jaw claudication feels to them? I experienced a sudden, very uncomfortable, strange sensation in my right jaw yesterday...

Can anyone please describe to me how jaw claudication feels to them? I experienc...

Octi

•1 year ago

7 Replies

How low should I go?

Did the slow taper from 5mg to 4 over a month's time. Felt great until I hit daily dose of 4mg, for seven days, then pain and stiffness crept back. Not...

Did the slow taper from 5mg to 4 over a month's time. Felt great until I hit dai...

christi48

•1 year ago

38 Replies

Adding on conditions

First I had residuals from Guillaine Barre and walking was poor. Then, I had breast cancer (no problem). Then I got PMR, walking worse. Husband died 18 months...

First I had residuals from Guillaine Barre and walking was poor. Then, I had br...

Abbeynan82

•1 year ago

72 Replies

conflicting opinions …

Hi All I have had a weird headache and some blurry eye for the past few days . Had bloods done ESR was normal , Rheumy has prescribed 30mg of pred for 3...

Hi All I have had a weird headache and some blurry eye for the past few days ....

KC6755

•1 year ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2023

update: tapering, nausea, steroid withdrawal, adrenal glands

Roller Coaster Ride

Prednisolone some effects

Methotrexate - a history lesson

It Is NOT just Prednisolone

Getting pred abroad

Covid - some thoughts……

possible GCA flare post covid

First Rheumy Appointment......PLUS Surgery

Sick day rules - for adrenal suppressed patients only?

Advice on a lower GI investigation with a swallowed camera as a hospital in-patient.

What is tenderness on upper cheek?

empty capsule cases

Hello!

Prednisone and Kenalog 40 mg. injection question

Zoe on Exercise and Blood Sugar Spikes

Alchemy8 - response to your chat

Knee replacement soon & on 8mgs pred

feet and ankle swelling

Emergency kit for Adrenal Crisis

Another cancelled Rheumy appointment

Cataract surgery imminent

up coming urology procedure and sick day rules?

another disappointing rheumatologist visit

Pprednisolone and nitrofurantoin

still waiting

Jaw claudication - what is it like for you?

How low should I go?

Adding on conditions

conflicting opinions …

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