hippie

[Hippie22]

hi any advice please tapered down from 15mg to 8mg since March last year on 22 January this year down 8mg stating to feeling pain in muscles could it be I have just go down to 8mg and hopefully it will settle

[PMRpro Ambassador]

You aren't reducing the dose relentlessly to zero come what may. You are looking for the lowest effective dose - the lowest dose that works as well as the starting dose did. It sounds as if you have reached that goal - but 8mg is just is little bit too low so you need 9mg, possibly 8.5mg for the present. It doesn't mean you won't get to a lower dose, just not yet.

[Hippie22 in reply to PMRpro]

thank you it helps getting sum advice I give 8.5mg tomorrow morning see how I go

[Flivoless in reply to Hippie22]

If you're in pain, why not add another 1 or .5 today?

[DorsetLady PMRGCAuk volunteer]

Further to PMRpro’s advice try one of the tapering plans in future -and probably 0.5ng a time would be a good idea -

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

[Hippie22 in reply to DorsetLady]

thank you I have read though

[Hippie22 in reply to DorsetLady]

hi I look at tapering plans I am going to start tomorrow

[DorsetLady PMRGCAuk volunteer in reply to Hippie22]

👍

[SheffieldJane]

you also need to help the process by not overdoing things, particularly when you are tapering - take it easy. Good luck!

[tempusfugi]

I was interested in your post, since I am on a similar trajectory. I tapered to 8mg in early November 2022 and, not only did I start to get more aches and pains, but my hands and wrists started to trouble me (I have commented on this before). My medical centre put me up to 10mg and I felt better. Have slowly tapered to 9mg which I intend to stay on till 9 Feb, when I will do similarly to get to 8mg.

Trouble is, I've got an appointement with my rheumie on 3 Feb and I just feel he is going to push me to reduce more quickly. Well, I'm going to quote PMRpro, DL and Sheffield Jane to him (not literally!) and see how he reacts...

[Hippie22 in reply to tempusfugi]

hi I was looking simple Taper plans Doreset lady have look I no how you feel when on 9mg was all fine when down to 8mg pain in my muscles today when on 8.5mg PMR much better I had same in my wrists I brought myself sum wrist supports real has helped I have rheumatologist 31 January

[tempusfugi]

Hi Hippie22 - I will be interested to hear how you get on with your rheumatologist appointment. Funny about the wrists hurting too. I've seen that happening with others on this site too. Glad to hear 8.5 mg is suiting you better.