Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2022

Depression

please share your coping mechanism for depression and what techniques help you feel better. A response would be very much appreciated.

please share your coping mechanism for depression and what techniques help you f...

days70

•1 year ago

22 Replies

daily digest?

for some strange reason I have received a daily digest today from 8 days ago. Anyone else received this

for some strange reason I have received a daily digest today from 8 days ago. A...

Koalajane

•1 year ago

12 Replies

PMR Returns

I had PMR 13 years ago, which was diagnosed by my Doctor as I walked towards him, (no blood tests or path involved at all). He started me on 60mg Prednisolone...

I had PMR 13 years ago, which was diagnosed by my Doctor as I walked towards hi...

tonythecatx

•1 year ago

33 Replies

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update on biopsy

I have just received my results from temporal biopsy which is showing no sign of inflammation which doesn’t really surprise me. I will speak to rheumatologist...

I have just received my results from temporal biopsy which is showing no sign of...

Lynlea

•1 year ago

6 Replies

prednisone replacement

asking the Pros. what do you think about this…..hope you can download the feed what do you think?...

asking the Pros. what do you think about this…..hope you can download the feed ...

icu2

•1 year ago

18 Replies

An update on recent tapering blip...

Following my recent attempt to taper from 4mg to 3.75 and the return of symptoms I abandoned all thoughts of continuing with it and remained on 4mg in the hope...

Following my recent attempt to taper from 4mg to 3.75 and the return of symptoms...

Louisnhoe

•1 year ago

18 Replies

Can you crush or dissolve 1mg Prednisilone Tablets

Can anyone tell me if its ok to crush 1mg tablets or dissolve them in water please. I tried putting one in a small amount of water in a glass this morning and...

Can anyone tell me if its ok to crush 1mg tablets or dissolve them in water plea...

HappyDiamonds

•1 year ago

11 Replies

non treatment of GCA double blind now

A very helpful member on this site diagnosed my GCA before I saw a Locum at my Docs: she probably saved my sight. At a party yesterday I learned that a friend...

A very helpful member on this site diagnosed my GCA before I saw a Locum at my D...

Lollybygolly

•1 year ago

21 Replies

Sad and in pain

I feel so sad and depressed. As I type this, it is causing such pain in my left arm, brings tears to my eyes - sadness or actual pain? When diagnosed with...

I feel so sad and depressed. As I type this, it is causing such pain in my left...

LMali

•1 year ago

99 Replies

Could this be a flare?

Hi all PMR since 2020 . Couple of flares along the way. Im now down to 3 mg. I wake in the morning no pains can literally jump out of bed !! However after a...

Hi all PMR since 2020 . Couple of flares along the way. Im now down to 3 mg. I ...

Nanny71

•1 year ago

10 Replies

Tingling sensation like ants crawling in neck

I have GCA but have been told post MRI I have trapped nerves in neck ..the thing is I have swelling in a distinct line running down the right-hand side of my...

I have GCA but have been told post MRI I have trapped nerves in neck ..the thing...

Nyci

•1 year ago

7 Replies

PMR & INFLUENZA

Hi...I've had the flu (not Covid) for about 10 days at this point. I don't know what to expect in terms of will it last longer due to PMR and the autoimmune...

Hi...I've had the flu (not Covid) for about 10 days at this point. I don't know ...

Missus835

•1 year ago

30 Replies

[b]Need Clear description of these diseases please[/b]

PMR = sore/stiff muscles (very tired achy muscles in shoulder and neck area. GCA = visual problems? I started with double vision which my optometrist never...

PMR = sore/stiff muscles (very tired achy muscles in shoulder and neck area. G...

jarn

•1 year ago

10 Replies

sick days

I know I've read about these here, but can't remember exactly what it said and can't find a link. I think I might be in need. Was doing not too badly, having...

I know I've read about these here, but can't remember exactly what it said and c...

Maggiechris

•1 year ago

4 Replies

VIT B12

Just found my Vit B 12 is low and need injections. Been complaining for months about exhaustion and fobbed off about fatigue and PMR. Anyone else this happened...

Just found my Vit B 12 is low and need injections. Been complaining for months a...

daisylazy

•1 year ago

16 Replies

Weaning aches vs flare up pain?

How can you tell the difference between prednisone weaning aches and pains versus an impending flare up of pmr inflammation? I don’t want to trigger a full...

How can you tell the difference between prednisone weaning aches and pains versu...

Missmymuscles

•1 year ago

4 Replies

Sudden pain and exhaustion

I wonder if anyone else has experienced this. Sometimes just after I have had my breakfast and my Prednisolone I experience sudden cramping pain in my arms and...

I wonder if anyone else has experienced this. Sometimes just after I have had my...

Jomaur

•1 year ago

14 Replies

pain in wrist

I was diagnosed with PMR just over 2 years ago and with the usual ‘ups downs’ and occasional flares I’m now down from 40mg (with slow tapering) to 4.5 mg of...

I was diagnosed with PMR just over 2 years ago and with the usual ‘ups downs’ an...

Gettingbetter1

•1 year ago

9 Replies

Taking a magnesium supplement - any dependencies with other drugs?

After some research I have decided to add a magnesium supplement, to hopefully help with the muscle weakness in my legs. I’ve now got the supplement, but am...

After some research I have decided to add a magnesium supplement, to hopefully h...

Angel_doll

•1 year ago

8 Replies

leflunomide and diarrhoea

I now have pretty awful diarrhoea from the Leflunomide, going to hang in there because the plan is for it to take over from Pred. Just wondered if anyone...

I now have pretty awful diarrhoea from the Leflunomide, going to hang in there b...

HappyDiamonds

•1 year ago

7 Replies

Aches and Pains and tapering

After reading all blogs about what others have experienced on Prednisone I have many side effects. Blurry eyes, bruising and now a bladder infection that goes...

After reading all blogs about what others have experienced on Prednisone I have ...

flygirl65

•1 year ago

42 Replies

Sudden problems with vision

Hi Friends! Has onyone else, on Pred, suffered from vision problems? I've been on Prednisolone since August 2021. Starting on 15mgs and now very slowly reduced...

Hi Friends! Has onyone else, on Pred, suffered from vision problems? I've been o...

Allum

•1 year ago

25 Replies

antibiotics and a flare

hello does anyone know if ABX can cause a flare? I had tapered down to 2.5 then had 2 lots of ABX and flared so up to 6mgs for 5 days now down to 3mgs.......

hello does anyone know if ABX can cause a flare? I had tapered down to 2.5 then ...

ellarowan

•1 year ago

2 Replies

Flare?

Greetings from West Michigan, USA. I was diagnosed with PMR/GCA 3.5 years ago. I have not been treated for any flares with these diseases but have gone up and...

Greetings from West Michigan, USA. I was diagnosed with PMR/GCA 3.5 years ago. ...

knoone

•1 year ago

2 Replies

Question about remission when you have GCA/LVV+PMR, do they all go away together or in stages?

It's early days for me, but planning for better days ahead! When suffering from both GCA/LVV and PMR, do the conditions evolve independently of one another and...

It's early days for me, but planning for better days ahead! When suffering from ...

Dochaz

•1 year ago

5 Replies

Can anyone relate to strange pulsing like a tens machine

Quick back story, as I had a PET CT on Thursday I was trying to reduce the pred quite radically in the hope it would give a better picture of my inflammation,...

Quick back story, as I had a PET CT on Thursday I was trying to reduce the pred ...

Sophiestree

•1 year ago

16 Replies

Now what?

I have just been told by my dermatologist that the won't go away yeast infection my doctor told me I had was actually lichen sclerosis. After the initial shock...

I have just been told by my dermatologist that the won't go away yeast infection...

Logic

•1 year ago

14 Replies

no go in legs

started on 50 prednisolone august now down to 20. My biggest problem is energy, my legs don’t seem to have any go in them is anyone else like this.

started on 50 prednisolone august now down to 20. My biggest problem is energy...

CavalierKC3

•1 year ago

11 Replies

in remission

wow ladies thanks so much for your time in replying! As l write this l have now for the time being stopped taking co codamol having spoken to my doctor He...

wow ladies thanks so much for your time in replying! As l write this l have now...

Trip123

•1 year ago

3 Replies

30mg to zero in five days??

Not about PMR per se. Friend has a severe chest infection and as part of his medication has been prescribed 30 mg of steroids for five days, then zero. I am...

Not about PMR per se. Friend has a severe chest infection and as part of his me...

LBM1953

•1 year ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

Depression

daily digest?

PMR Returns

update on biopsy

prednisone replacement

An update on recent tapering blip...

Can you crush or dissolve 1mg Prednisilone Tablets

non treatment of GCA double blind now

Sad and in pain

Could this be a flare?

Tingling sensation like ants crawling in neck

PMR & INFLUENZA

[b]Need Clear description of these diseases please[/b]

sick days

VIT B12

Weaning aches vs flare up pain?

Sudden pain and exhaustion

pain in wrist

Taking a magnesium supplement - any dependencies with other drugs?

leflunomide and diarrhoea

Aches and Pains and tapering

Sudden problems with vision

antibiotics and a flare

Flare?

Question about remission when you have GCA/LVV+PMR, do they all go away together or in stages?

Can anyone relate to strange pulsing like a tens machine

Now what?

no go in legs

in remission

30mg to zero in five days??

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