Calling all who live in the USA for support~! - PMRGCAuk

PMRGCAuk

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Calling all who live in the USA for support~!

Grammy80 profile image
Grammy80
β€’12 Replies

I've been in need several times over the last three years; information, support, and always with more questions than answers. GCA??? What is that? Really? I live in Indiana across the pond.

Just now, I was reading a few posts from two years ago from the folks who started and have stuck with this community.....frankly, I was nearly moved to tears at the passion and level of commitment here!! So many of us look to the forum to know how to speak up to our doctors, to know if what we feel is expected or if we should be afraid~~quite simply to hold our hands and listen patiently and then explain.

Thank you to all the workers, volunteers, and fellow patients who are always there. I'd been on the forum for about a year before I inquired about giving back for some of the support I still receive.

If you aren't a member, go to virginmoneygiving.com, and you can sign up for a monthly donation charged to your Visa, Debit Card, or Mastercard. You know the saying ...many pennies a dollar make. It doesn't have to be a large monthly amount because it all adds up and makes a difference. If you have any problems, Fran Benson is a joy to work with.

I feel so grateful for the many times the forum saved me...from just falling apart and giving up...I thought I'd share this information in case folks in the states don't realize how easy it is to put a coin toward research and helping to keep things moving.

Thank you all..πŸ‘¨πŸΌβ€πŸ€β€πŸ‘¨πŸΌπŸ‘©πŸΎβ€πŸ€β€πŸ‘¨πŸΎπŸ‘©πŸΏβ€πŸ€β€πŸ‘¨πŸ½πŸ‘¨πŸ½β€πŸ€β€πŸ‘¨πŸ»πŸ‘¨πŸ½β€πŸ€β€πŸ‘¨πŸΌπŸ‘¨πŸ½β€πŸ€β€πŸ‘¨πŸ½πŸ‘¨πŸ»β€πŸ€β€πŸ‘¨πŸΌπŸ‘©πŸ»β€πŸ€β€πŸ‘©πŸ½πŸ‘©πŸ»β€πŸ€β€πŸ‘©πŸΎπŸ‘©πŸ»β€πŸ€β€πŸ‘©πŸ»πŸ‘©πŸ»β€πŸ€β€πŸ‘©πŸΌπŸ’•πŸ’•πŸ’•Marilyn

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Grammy80 profile image
Grammy80
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12 Replies
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SheffieldJane profile image
SheffieldJane

Loves Marilyn πŸ’–πŸ’–πŸ’–

Bcol profile image
Bcol

Fab, Marilyn. Hope you and family are doing OK. ❀️❀️

Grammy80 profile image
Grammy80β€’ in reply toBcol

Thank you, I am actually planning my trip to Maine again! It will be in between my husband's appointments. Finger crossed for everything.πŸ₯°πŸ’•πŸ’•

123-go profile image
123-go

Hi, Grammy. You write with touching sincerity and I applaud you.😍

Grammy80 profile image
Grammy80β€’ in reply to123-go

πŸ₯° very kind, we all love this forum!!πŸ’•

Koalajane profile image
Koalajane

A lovely post and I have to say this forum and the charity are something special

Grammy80 profile image
Grammy80β€’ in reply toKoalajane

πŸ₯°...where would we be? πŸ’•

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Thanks Grammy- forum helped me greatly early days - and to quote a well known supermarket chain in UK β€œ every little helps ” 🌸

Grammy80 profile image
Grammy80β€’ in reply toDorsetLady

Now, you help so many~! When I was diagnosed with GCA in 2019, everything I learned about it, came from the forum. The forum made me a better informed patient and talking to people who made it through 'all this'...convinced me I could too. Thank you DL xoπŸ₯°

Chicama profile image
Chicama

Marilyn... I've only been here since July and, I too, am deeply touched by the generosity and grace of this community ... and thank my lucks stars I found YOU. The forum collects a certain type of personality. Thank you for speaking up and linking to the donation website. Giving now is so rewarding... After you dead, not so much!

YuliK profile image
YuliKβ€’ in reply toChicama

Chicama good morning

Yes I totally agree, this forum has some super duper posters.

I have been here quite a few years now and I trust the opinions here more than my rheumatologist or GP.

Keep well folks. We are all warriors…

YuliK πŸ‘πŸŒ·

Grammy80 profile image
Grammy80

How true it is! It is joyful to have the opportunity to give a bit back to this forum. I lack the words to express ALL that it has and continues to give to me.πŸ’•πŸ’•

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