Hello Everyone
Am doing DL reduction of prednisone over 7 weeks and now on Week 4. Doing okay.. feeling fatigued …(who isn’t?) but wondered whether the steroid reduction changes in the taper causes more brain fog.
I keep hydrated but my memory doesn’t seem as sharp as when I was on 8 mgm, and now tapering to 7.5 mgm! Could be the heat at the moment too? Any other fellow sufferers out there with similar problems? Many thanks to you all. x
I recognise all of this if it’s any consolation. I lose nouns and proper nouns. I just say something similar that makes my husband laugh - like wig for mask. I agree about the heat, the tapering and the relentless fatigue, making things worse. Normal for us I fear.
Thanks SJ for your comforting reply. I came back home yesterday from Sutton Hoo mini walk, and was looking everywhere for mobile phone which I’d taken with me! I’d no memory of plugging it in to recharge it! 🙄 What am I like! Glad to know that we’re normal!! Whatever normal is! 🥵😵💫😴 🫶🌺
I've walked round the house looking for my mobile phone while I've actually been using it! Oh dear.
And you know how you mislay your phone then ring it to find it... Well once when my husband mislaid his glasses I told him he should just phone them... It took a while for me to work out why he was laughing. Oh dear.
Really glad I’m not alone with this! Thank you!! 🤣🌺
Luv it! 😊
🤣🤣 so funny!!
Heat certainly at the moment….and I’m not on Pred….😳
🥵 Too Much! 🌺
It will pass -bit cooler next week…
Hopefully the heavens will open -& we’ll get that magic word RAIN! I’ll dance in it when we do! X
Fur coat Day Monday 🤣🤣🤣
So good to know I'm not the only one!
I think your experience is very common for us on the same path. My husband handed me my car key this week and within five minutes l had no recollection of him doing so and was convinced he still had it until he found it down the side of my seat in the car🤔 l also seem to have lost the ability to spell and use words like where and we're correctly.l don't think the heat is helping either.
Thank you KASHMIRI1.
It seems we’re all in the same boat!
Spelling for me was usually good… now I doubt myself with it! The prescriptive text on our devices doesn’t help either.
Awful, but I find this heat unbearable now - being on Pred does not help in so many areas, but we cannot do without it!! 🙂
Yes, it happens to me too. I find it interesting because it's the high doses of chronic glucocorticoids that kill neurons in the hippocampus (as found in various studies), yet it's not while I'm on the high doses that I notice the brain fog - it's when I taper.
I have had brain fog too while reducing. I backed into my garage door, I forgot it was open and I hit the remote and it closed on top of my car. Two hundred dollar later it was fixed. I try to be careful with everything I do now.... lol
Oh no I’m sorry! 😩😵💫 Bloody Brain Fog. As long as you’re okay that’s all that really matters.
I’m like you … very careful! Brain Fog is so ageing. I feel 105 right now. UK is under heat dome which is AWFUL, and that is stultifying too! 🌺
Interesting isn’t it …. today is an 8 mgm day of reduction and I feel so much better. Even 0.5 mgm lower makes a difference - yesterday was 7.5mgm. Tomorrow another 8 mgm day.
Next week it’ll be more challenging, but the weather will be cooler, hopefully, so that will help! 🌺. Thanks for your interesting post!
It’s this blurry eyes that’s doing my head in struggling to text. 🤯☹️
Feeling much the same here. After increasing pred during an infection am fumbling my way to find the right level again. Brain fog isn't in it. Feels as though I have a tumble drier at teh back of my brain. Spent a good five minutes searching for the tomatoes which were exactly where I put them ready to chop ... asked for the kimchi (which we don't have) but husband who knows nothing of such things guessed I meant the sauerkraut. Tried to explain to him I wanted parsley sowing (old wive's tale, germinates better for the male) except called it everything else: coriander, Basil, Sage - we end up in a guessing game where he shouts possible answers and I say no until he hits the right one. Sadly, still haven't found the sunglasses I misplaced in June ... that'll be interesting.
🤣🤣😂
For me personally, fatigue and brain fog go together and indicate a flare. I know if I increase Pred it usually helps, so conclude the brain fog is actually caused by inflammation rather than the Pred. But that's just me. I've also got brain fog from being 61, post menopausal, chronically sleep deprived and having a type of vertigo called MdDs so if it's not one thing it's another. It's also feels more than just brain fog, it stops me thinking logically and concentrating and even communicating on bad days, like today. It can't be lack of sleep this time as I slept really well las t night but stull woke up tired
It’s the fatigue right now I’m feeling as doing a 7 week DL plan to reduce from 8 mgm to 7.5 mgm. The heat doesn’t help either and the sweats have been horrid during the day. Also I was diagnosed with glaucoma last month as have something called pseudoexfolation syndrome which has affected the IOL and makes the lens wobble. Making me feel rather low! If it’s not one thing it’s another. 🤔
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