message for Rummy

[Ronzy]

going to see him this Thursday ☹️

Ware am I at now 

Symptoms I have had Headaches. Jaw. Sore tongue. OutVery tired and we’rey. Out of breath. Blocked up Nose. very dry mouth

 6 tabs a day In morning wake up 3 or4With lumps of inflammation all over the place Neck under eyes. Chest arms knees arms.        Then take medication Sleep for 3Hrs sometimes Feel better (inflammation) Receding but varies Got a lot going on really Poor breathing also suspected heart problem Also ( v poor Circulation).

I’m planning of taking medication about 8 7. Interested of in the morning as symptoms should show up better hopefully

What Duse do you think.

🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀

[Hunter134]

I just wanted to say I hope you get it all sorted out.I don't have the answers you want but I really hope you feel better soon.

[winfong]

Wow, that's a lot. Please let us know what the rheumy says.

[Ronzy in reply to winfong]

👍👍

[SheffieldJane]

I just lost my post to you. A brief version sent with love and care.For my dry mouth I am prescribed Salvlix pastels - pretty effective. For the blocked nose I am prescribed Dymista nasal spray. For the breathlessness I have a tall fan blowing across my face in the night. I monitor my own blood pressure with a Blood pressure machine and I have a finger clip for the oxygen in my blood measure. My heart tests showed a bit of wear and tear in the Aorta but nothing that explained the breathlessness except lack of fitness caused by isolating. Good luck with your cardio tests and your Rheumie appointment. Let us know how you get on. Doctors like you to bring them blood pressure readings and the finger clip readings, they are reassuring and not too expensive to buy on-line. 🍀🍀🍀🍀🍀

[Ronzy in reply to SheffieldJane]

Wow we’re twins 😱😂got them all.What pred are you on now. O dear Jane take care 🌹 and thanks for that 😘🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀

[SheffieldJane in reply to Ronzy]

6 mgs. Not sure if any more would improve how I feel. I seem to be swamped by annoying symptoms related to medication and lack of physical fitness due to general malaise and fatigue. Wounded but not dead. 🌺🍀🍀🍀🍀

[Ronzy in reply to SheffieldJane]

No I tried hiring my dose made me feel worse 😱 But you must persevere with fitness chair aerobics is good do what you can little and often. I can’t believe how week I feel at times but I am up and down it’s weird. Thanks for your support 😍🌹🌹🌹🌹

[SheffieldJane in reply to Ronzy]

You are so right Ronzy. Up and down describes it perfectly. I get moments when I feel almost normal. 🍀🍀🍀🍀🍀

[Ronzy in reply to SheffieldJane]

I’ve had a good one today yesterday terrible, what a strange complaint l was begging to think it was me. So wired

[SheffieldJane in reply to Ronzy]

That will be the Pred. Are you on 30 mgs now ie 6 tabs of 5 mgs each? That will make you feel wired and possibly anxious too.

[Ronzy in reply to SheffieldJane]

Yes 30 mg. When I had pm a few years back I loved pred it gave me such a boost Now nothing 🥲

[SheffieldJane in reply to Ronzy]

The boost is the relief from pain I think. I could have turned cartwheels when I was first given it. 🤸🏼‍♀️

[Pixix]

Wot do I think? I think it’s good you are seeing a doctor, Ronzy!!!!! Good luck…I think there’s more going on & it’s up to the medics to sort it…but it’s a while until Thursday…if you get worse ring 111, or go to A&E! Good luck!

[Ronzy in reply to Pixix]

Thanks Pixix. If I get any chest pains I’m on that blower. 🍀🍀🍀🍀🍀

[Pixix in reply to Ronzy]

GOOD!!!

[Ronzy in reply to Pixix]

👍👍

[Koalajane]

Hope all goes well for you on Thursday. Keep us informed please