sunshine

[Bowred]

need sun advice Iam tapering down was on 15mg prednisone go down to 12.5mg then last tow weeks down to 10mg pain in my right shoulder so intense shall I go back up to 12.5mg

[PMRpro Ambassador]

I'm sorry - I don't follow the logic of your title and question.

If you have severe pain in just one shoulder, I would be inclined to say it is possibly another problem - bursitis or rotator cuff damage. I think you need to speak to a doctor about the specific shoulder problem as you can have that without it being directly the PMR. It is possible - it isn't always "just" the PMR. You could try going back up - and then reducing in smaller steps if it works.

[Bowred in reply to PMRpro]

Thank you for advice I was doing so good it seems when I when to 10mg steroids this is when problem started few days ago I don’t understand why from 12.5mg hospital said go down to 10.mg bit of jump

[PMRpro Ambassador in reply to Bowred]

It is a fairly standard reduction regimen - unfortunately, some people cannot tolerate that size of reduction step. We keep telling them - but it isn't generally suggested in the literature. Prof Mackie tries it and if it doesn't work then she goes back and changes the approach. Unfortunately, most doctors don't register the caveat in the guidelines saying that the reduction plans often need to be adjusted for the individual patient and then just go back, repeating the same concept and getting the patient into a yoyo pattern which in the long term just makes it all worse. Her face was a picture when I said not all doctors do reassess!!!

[DorsetLady PMRGCAuk volunteer in reply to Bowred]

As PMRpro says some can manage that drop, many cannot. Smaller steps -can you get 1mg tablets in BVI -if not then halve the 2.5mg - provided they are plain white ones.

But one sided pain may not be a flare -any other cause?

Just to pick up on another point, I see you give your posts similar titles -if you tried a more appropriate title you would get a list of related posts which may give you more information -

healthunlocked.com/pmrgcauk...

[Bowred in reply to DorsetLady]

Hi yes I got 1mg prednisolone

[Bowred in reply to Bowred]

Shall I 11.5mg just for now

[DorsetLady PMRGCAuk volunteer in reply to Bowred]

In that case, I would go with them in future…🤞

[Bowred in reply to DorsetLady]

Just need to ask with PMR do Doctor put udon any other medication or is just steroids

[DorsetLady PMRGCAuk volunteer in reply to Bowred]

Sometimes they add in a DMARD (usually Methotrexate) as a steroid sparer, and in some countries a biological - Actemra/Tocilizumab (not UK). But usually only if you’ve flared a few times or cannot reduce steroids..

[Bowred in reply to DorsetLady]

Thank you I have been putting ice pack on shoulder to day to see if helps it one should when I was first diagnosed it was both shoulders could not lift both of my arms above my head and other part of my muscles round body so hopefully it just flareup

[PMRpro Ambassador in reply to Bowred]

Steroids are the mainstay of management - for some patients methotrexate may help them not flare while reducing or even get them to a lower dose of pred. But it doesn't work for everyone and doesn't often replace pred.

[yorkieme in reply to Bowred]

I am a perfect example of the description within the post by PMRpro. Twice my rheumy put me on a reduction from 12.5mg to 10mg and twice I hit an almighty flare up.Eventually my rheumy accepted that I needed a slower reduction and so far it's working. I now realise that it didn't mean she was wrong ............... just that it didn't work for me.

[Bowred in reply to yorkieme]

Thanks you so it quit common with PMR 12.5mg down to 10mg to get flareups

[Bowred in reply to PMRpro]

Morning I read message that it could be bursitis or rotate cuff damage it just one shoulder it different kind of pain what I have had do I let shoulder heal on its own

[PMRpro Ambassador in reply to Bowred]

It is a good idea to get a proper examination and imaging if you can - some things will eventually heal on their own but proper management may make it faster or less painful in the process. And for a few things there are treatments that will make the longterm outcome far better - the lastthing you want to develop is a frozen shoulder and limited movement of that shoulder.

[Bowred in reply to PMRpro]

Thank you will speak to Doctor today 💜

[Bowred in reply to PMRpro]

Hi I have had PMR since March been on steroids 15mg tapering down to 8mg now had blood test done last week hospital rang me to day to say I have TB it sleeping so got go for X-rays Doctor said once he’s got X-rays back he get in touch with me and said medication it was surprise to me he said TB I feel good maybe because I am on steroids 💗

[Bowred in reply to Bowred]

Hospital said I caught it from places like London can are you more prone to catch viruses when on Steroids

[PMRpro Ambassador in reply to Bowred]

TB isn't a viral infection - it is bacterial. Steroids are immunosuppressive and can either make you more likely to catch infections, including TB, but also reactivate latent TB where you have been exposed to it in the past but never developed full blown infection. I'd have thought it was more likely to meet TB in the USA - my husband caught his from Americans, it was rife in the US army at the time.

[Bowred in reply to PMRpro]

Thank you for information it just understand TB how we’re have I got this from at moment it sleeping have X-rays on Monday then hospital will get in touch with me he did Say medication so I no more once Doctor get in touch with me would hospital give me medication before it wakes up

[Bowred in reply to Bowred]

Hospital did say in the meantime if I need to up my steroids to do so

[Jigsawlass]

I struggled from 12.5 to 10 so went up to 11 and stayed there for a month before going to 10 with no issues . Maybe give that a go

[Bowred in reply to Jigsawlass]

Thank you I will do 11mg for month then go down thank you so much much appreciated

[Nextoneplease]

I have also struggled to get from 12.5 to 10 so have gone down very slowly in 0.5mg drops. Have got to 11 now, and so far, so good 🤞

We’re all different. Good luck xx

[Bowred in reply to Nextoneplease]

I was doing so well on 12.5mg tow week on 10mg this morning so much intense pain in shoulder feels like I am going back woods with this pain it such jump from 12.5mg down to 10mg I will do this very slowly in 5mg I let you all no how I get on thank you 💜

[Bowred in reply to Bowred]

Well done you are doing well with your Taper down good to have sum great advice 💜

[piglette]

A 10% reduction may have been better. There is no way I could have managed that sort of drop. As the others say it may not be the PMR causing you the shoulder pain. Have you tried taking painkillers? If they don’t work you may be able to blame the PMR!

[Bowred in reply to piglette]

Thank for your advice help me to understand all what going on 💜