Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,087 members • 39,890 posts

All posts for June 2022

Should I continue to taper not sure if flare or part of physio for ankle recovery ?

Hi. As some of you know from my questions previously, I broke my ankle in March. Currently having hydro therapy and land physio to learn to walk on it and...

Hi. As some of you know from my questions previously, I broke my ankle in March...

Buttonshutton

•2 years ago

10 Replies

Suddenly dizzy

I was at 7 mg. of prednisone from 4/4 thru 5/7/22. Then started DL's 5 week taper to 6.5. Got thru 17 days. Then tested positive for covid. Twice....

I was at 7 mg. of prednisone from 4/4 thru 5/7/22. Then started DL's 5 week tape...

orangemax

•2 years ago

14 Replies

how to reduce pain in fingers without Methotraxate?

I’ve had PM since March 2016 but finally diagnosed September 2016 and prescribed 20 mg Pred, quickly reduced to 15 mg and then 10 mg. Slow reduction after...

I’ve had PM since March 2016 but finally diagnosed September 2016 and prescribed...

kulina

•2 years ago

47 Replies

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Weight gain

Please can anyone tell me. I have just read on internet that you only start to put on weight with prednisolone. After 6 months. Is that correct. I thought...

Please can anyone tell me. I have just read on internet that you only start to ...

zoey12

•2 years ago

64 Replies

My daughter has PMR

You have helped me so much through my journey with pmr. I was diagnosed in october 2019 but it took 40 mgs of Pred to knock my symptoms on the head. My journey...

You have helped me so much through my journey with pmr. I was diagnosed in octob...

Vaggers

•2 years ago

12 Replies

Now the covid jabs get tested

Other half started coughing on Friday 3rd June. We thought it was the dust from cutting out a bit of ceiling to fit a loft ladder. Did a test next morning....

Other half started coughing on Friday 3rd June. We thought it was the dust from ...

Nagswoman

•2 years ago

4 Replies

How long should the steroids reduction pain last

Hi just wondering 🤔 how long I should expect steroid reduction pain before it settles down,x

Hi just wondering 🤔 how long I should expect steroid reduction pain before it s...

Harrywogan

•2 years ago

7 Replies

Update on Wedding trip to USA and THANKYOU

Two weeks before our trip I was really worried and getting stiff neck muscles etc having almost reached 1mg on DSAS method after 2yr 3 months. Thanks to...

Two weeks before our trip I was really worried and getting stiff neck muscles et...

KerryIreland

•2 years ago

10 Replies

Flash Rash?

Hi Folks, I went for a 3km walk with my wife yesterday wearing a short-sleeve shirt under a waterproof rain jacket that is supposedly breathable. Near the end...

Hi Folks, I went for a 3km walk with my wife yesterday wearing a short-sleeve s...

MikeVanBC

•2 years ago

7 Replies

Bracelet or Tag

Is there any definitive information about the necessity or requirement to wear a bracelet or tag showing that I am on Prednisolone ? If I should, what is the...

Is there any definitive information about the necessity or requirement to wear a...

Golf-1

•2 years ago

12 Replies

Flare and hair loss

Had pmr for 2years now and been on 5mg since May 2021. Doctors advised to stay on that dose for a year!! 6weeks ago started on 4mg twice a week 5mg on the...

Had pmr for 2years now and been on 5mg since May 2021. Doctors advised to stay o...

Lily-fly

•2 years ago

18 Replies

Swollen Leg

Has anyone else experienced this? My left leg is swollen, I’m in A&E and they are checking for blood clots. So far it doesn’t appear that they have found any...

Has anyone else experienced this? My left leg is swollen, I’m in A&E and they ar...

Thelmarina

•2 years ago

11 Replies

Giant cell arteritis and supra trochlea nerve inflammation on left eye help!

Hi everyone- i started having inflammation on my supratrochlea nerve on left eye (u can see skin inflammed) at the same time i noticed my left temporal artery...

Hi everyone- i started having inflammation on my supratrochlea nerve on left eye...

Ca96753

•2 years ago

1 Reply

Weight Loss since tapering

I’ve managed to taper down to 2 mg still lot of joint pain in shoulders, tops of arms hips etc. Was advised to take 1 mg every other day but got too much of a...

I’ve managed to taper down to 2 mg still lot of joint pain in shoulders, tops of...

Brears

•2 years ago

15 Replies

Pinned posts unavailable?

It may be my dodgy internet, but I can’t get pinned posts to open. When I click on Pinned Posts I get a search window with the pinned post keyword below...

It may be my dodgy internet, but I can’t get pinned posts to open. When I clic...

OutdoorsyGal

•2 years ago

2 Replies

What to do when I need up my dose.

Three times I’ve tried to go down ,succeeded once to go down to nil. After about five days got very I’ll again ,went up to five, spoke to specialist,he told me...

Three times I’ve tried to go down ,succeeded once to go down to nil. After about...

Merrybell11

•2 years ago

8 Replies

Challenging case of Giant Cell Arteritis

Hello, I received this email today from Cleveland Clinic and thought the group might find it interesting. Here’s the link:...

Hello, I received this email today from Cleveland Clinic and thought the group m...

lizg0017

•2 years ago

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Fatigue - PMR or side effect of Pred?

My PMR symptoms (muscle pain) started at the end of March. Extreme tiredness started on 20 May but I was in a lot of pain at that point. I was diagnosed with...

My PMR symptoms (muscle pain) started at the end of March. Extreme tiredness sta...

Lyra42

•2 years ago

5 Replies

Dose issue today

Hi all - arrived safely in South Africa - some nervous moments especially in Nairobi airport with what I think was a bad reaction to something. I have been...

Hi all - arrived safely in South Africa - some nervous moments especially in Nai...

Slosh

•2 years ago

6 Replies

Heat rash query!

Hello all. I just wondered if Pred/AA/Omeprazole has made anymore vulnerable to getting heat rash? We are venturing abroad next week for the first time...

Hello all. I just wondered if Pred/AA/Omeprazole has made anymore vulnerable to...

Doraflora

•2 years ago

8 Replies

GCA at young age?

Hello, I have been suffering from symptoms over the last few weeks and I am struggling to get any progress with hospitals. I am 26 years old and I have never...

Hello, I have been suffering from symptoms over the last few weeks and I am stru...

Capybara95

•2 years ago

23 Replies

Palpitations

I noticed that soon after starting taking steroids I was experiencing palpitations. My dr prescribed beta blockers and they helped. I have been tapering slowly...

I noticed that soon after starting taking steroids I was experiencing palpitatio...

Ana-16

•2 years ago

15 Replies

Is this a flare

I have been on steriods for 9 years , I have had difficulty getting down I am now. on 2 and a half , had a blood test 2 months ago and levels were okay , but...

I have been on steriods for 9 years , I have had difficulty getting down I am no...

Choosepink

•2 years ago

13 Replies

Messed up my back

Yesterday I bent over nd felt somthing snap in my lower back. I I've.w.ent to the walk in clinic and was advised to increase my pred. I've been tapering from...

Yesterday I bent over nd felt somthing snap in my lower back. I I've.w.ent to th...

ancientprune

•2 years ago

11 Replies

I can't seem to catch a break

I thought my pain was my prolapse but this week I realized iam in a bad flare.The familiar symptoms of pmg reared its head.Hard to walk,sore legs,arms and all...

I thought my pain was my prolapse but this week I realized iam in a bad flare.Th...

Hunter134

•2 years ago

28 Replies

Bacterial Eye infection/conjunctivitis

I have a rather nasty bout of conjunctivitis which is getting me down somewhat. I have been using Chloramphenicol ointment for 3 days but it seems to make the...

I have a rather nasty bout of conjunctivitis which is getting me down somewhat. ...

HappyDiamonds

•2 years ago

11 Replies

1000 mg of B3 a day?

My dermatologist is pushing me to take 1000 mg of oral Nicotinamide, a form of vitamin B3, a day because it can ward off skin cancer. I am Scandinavian by...

My dermatologist is pushing me to take 1000 mg of oral Nicotinamide, a form of v...

LIVEORDIEHEREIAM

•2 years ago

2 Replies

Help needed 2 years in

Hello all. I have been reading this forum a lot lately but now I feel I need some bespoke advice from all you knowledgable and kind people. I was diagnosed...

Hello all. I have been reading this forum a lot lately but now I feel I need som...

marionofnorwich

•2 years ago

69 Replies

Sore Tongue

I've had a sore tongue for 3 years since being diagnosed with pmr. My dentist just said its typical with autoimmune illness. I looked up Thrush but I didn't...

I've had a sore tongue for 3 years since being diagnosed with pmr. My dentist ju...

Paperroses

•2 years ago

11 Replies

Thanks

Thank you for all you do

Rosh99

•2 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Should I continue to taper not sure if flare or part of physio for ankle recovery ?

Suddenly dizzy

how to reduce pain in fingers without Methotraxate?

Weight gain

My daughter has PMR

Now the covid jabs get tested

How long should the steroids reduction pain last

Update on Wedding trip to USA and THANKYOU

Flash Rash?

Bracelet or Tag

Flare and hair loss

Swollen Leg

Giant cell arteritis and supra trochlea nerve inflammation on left eye help!

Weight Loss since tapering

Pinned posts unavailable?

What to do when I need up my dose.

Challenging case of Giant Cell Arteritis

Fatigue - PMR or side effect of Pred?

Dose issue today

Heat rash query!

GCA at young age?

Palpitations

Is this a flare

Messed up my back

I can't seem to catch a break

Bacterial Eye infection/conjunctivitis

1000 mg of B3 a day?

Help needed 2 years in

Sore Tongue

Thanks

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