Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for May 2022

Itchy Scalp

I started methotrexate 18th March 2022 on the advice of my rheumatologist as I have been on steroids since August 2018, (I have GCA/ PMR) these past 2 weeks...

I started methotrexate 18th March 2022 on the advice of my rheumatologist as I h...

Phed

•2 years ago

13 Replies

Advice please ahead of an important day

Hello all, tomorrow I am taking some of my lovely school choir to sing at a Jubilee Tea Party organised by our Community library service . Pre PMR I would have...

Hello all, tomorrow I am taking some of my lovely school choir to sing at a Jubi...

Jigsawlass

•2 years ago

25 Replies

Acceptance

Strange I was diagnosed with PMR last aug and have steadily tapered on prednisone to 5mg, the last 4 wks my body to struggling to cope I’m working as hard as I...

Strange I was diagnosed with PMR last aug and have steadily tapered on prednison...

Mmjj

•2 years ago

37 Replies

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severe lower back pain

I am male 83 years old I was diagnosed with GCA six years ago with some symptoms of PMR. after reducing prednisolone from 20mgs with ups and downs I am...

I am male 83 years old I was diagnosed with GCA six years ago with some symptoms...

astley123

•2 years ago

2 Replies

doing a test post

test post

astley123

•2 years ago

2 Replies

Exasperation

Waiting for my phone call appointment with Rheumy yesterday, have ing been reminded by text the day before. Hours ticked by, I then noticed a message on my...

Waiting for my phone call appointment with Rheumy yesterday, have ing been remin...

Alazarin

•2 years ago

4 Replies

Blood test results

So my GP organised for me to have a full set of blood tests, an MOT in her words. I got the results back and the only abnormal result was my CRP level was 29...

So my GP organised for me to have a full set of blood tests, an MOT in her words...

Griggser

•2 years ago

10 Replies

Can Covid trigger PMR?

I’ve been diagnosed with PMR this morning. My symptoms started the week immediately after my son tested positive for Covid-19. I have never tested positive for...

I’ve been diagnosed with PMR this morning. My symptoms started the week immediat...

Lyra42

•2 years ago

7 Replies

Disable badge

Hi I have had PMR for 2 years, my main trouble are my legs cant walk very far at all, both knees are painful if i walk, but cant stay indoors forever, has any...

Hi I have had PMR for 2 years, my main trouble are my legs cant walk very far at...

Harrigan

•2 years ago

9 Replies

Stress

I don’t understand why stress affects pmr! How can your emotions make pmr so much harder is their a chemical reason. X

I don’t understand why stress affects pmr! How can your emotions make pmr so muc...

Uglow

•2 years ago

29 Replies

Update on tapering journey

I have now reached week 5 on 10mg and feeling okay. Getting ready to start tapering to 9mg from this Sunday using DL taper plan. I spoke to my GP yesterday and...

I have now reached week 5 on 10mg and feeling okay. Getting ready to start taper...

Middleton22

•2 years ago

8 Replies

Steriods card

Thank you to everyone for your help and replies. I can see I will have to sort out the red and blue card. Soon also a I d bracelet. Thanks for all your...

Thank you to everyone for your help and replies. I can see I will have to sort...

zoey12

•2 years ago

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My appointment

Hi everyone, I had my appointment with my consultant Monday told him of my episode with palpitations he said it could have been just a one off incident, but...

Hi everyone, I had my appointment with my consultant Monday told him of my episo...

24paula

•2 years ago

2 Replies

Adrenals on 3.5mg

Sorry if this has been addressed before. Im down to 3.5mg and some days I feel good and have plenty of energy although I still pace myself, and then some days...

Sorry if this has been addressed before. Im down to 3.5mg and some days I feel g...

Rosina1871

•2 years ago

8 Replies

STRESS INJURIES R/T PRED

Anyone else suffer from muscle stress injuries while on prednisone. Currently chair bound related to right leg IT-Band syndrome. Never had it before. Didnt do...

Anyone else suffer from muscle stress injuries while on prednisone. Currently ch...

SMH4CRNA

•2 years ago

52 Replies

Anyone in Corfu?

Hi everyone, probably a little unlikely, but I’ve recently moved from the UK to Corfu, Greece and was wondering if there were any fellow sufferers here that I...

Hi everyone, probably a little unlikely, but I’ve recently moved from the UK to...

Coco63

•2 years ago

8 Replies

Normal Bloods

Hi, Can you have Polymyalgia and have normal blood test, showing no inflammation

Hi, Can you have Polymyalgia and have normal blood test, showing no inflammation...

Carathedog

•2 years ago

24 Replies

Short term ibuprofen

I have a lot of non-pmr pain, Tylenol isn’t cutting it, 1/2 tramadol makes me very ill with nausea and wooziness. My doc suggested I take a 5-7 day course of...

I have a lot of non-pmr pain, Tylenol isn’t cutting it, 1/2 tramadol makes me ve...

Twopies

•2 years ago

18 Replies

A Thank You

I think it was Mrs Nails or Dorset Lady who mentioned taking Magnesium for restless legs. I was being kept awake for hours with this problem in legs and...

I think it was Mrs Nails or Dorset Lady who mentioned taking Magnesium for restl...

PastelsinArt

•2 years ago

20 Replies

Please vote for us to win £1,000

It's that time of year when Ecclesiastical run their fabulous scheme donating £1,000 grants to charity. To help us win, all you have to do is vote for us. The...

It's that time of year when Ecclesiastical run their fabulous scheme donating £1...

Fran_Benson

Partner•2 years ago

18 Replies

Given sulfasalazine and told to increase prednisone

Good morning ☺️ So after my long awaited follow up appt after my disastrous experience taking Methotrexate , dizziness , feeling nauseous all day and rocketing...

Good morning ☺️ So after my long awaited follow up appt after my disastrous expe...

Geordieland

•2 years ago

2 Replies

GCA-When to start Actemra?

What if Rheumatologist doesn't want to start administering steroid reducer? Any suggestions from this knowledgeable group.

What if Rheumatologist doesn't want to start administering steroid reducer? Any...

pomeranion

•2 years ago

4 Replies

Pain last week on right side of head

Just to say thanks to everyone who wrote back to me last week regarding the pain in right side of my face. It has now worn off and after being a little tired...

Just to say thanks to everyone who wrote back to me last week regarding the pain...

zoey12

•2 years ago

2 Replies

Steroid card

Could anyone tell me if I should be carrying a steroid card. I live in uk. I am on predoslone since jan 2022. Now on 7 mg. and feeling fine. With pmr...

Could anyone tell me if I should be carrying a steroid card. I live in uk. I a...

zoey12

•2 years ago

53 Replies

Covid: What difference the number of vaccination jabs makes - and does a breakthrough infection make any difference

After all the posts recently about 5th jabs and breakthrough infections with Omicron I thought you might be interested in this article:...

After all the posts recently about 5th jabs and breakthrough infections with Omi...

PMRpro

Ambassador•2 years ago

3 Replies

Flare or relapse?

Hello everyone. I am here on holiday in Norfolk and my holiday jinx has proved true again as we have hailstones! So I thought I would take up your time to ask...

Hello everyone. I am here on holiday in Norfolk and my holiday jinx has proved t...

Nightingales

•2 years ago

5 Replies

Tramadol

I’m amazed how much better I feel with my breathing after one Tramadol. Move better feel better and faster 🤷 My theory is it relaxes the chest muscles so...

I’m amazed how much better I feel with my breathing after one Tramadol. Move bet...

Ronzy

•2 years ago

11 Replies

DEXA scan....success

I asked for a DEXA scan a few months in to my PMR/GCA journey around 3.5 years ago. Thanks to the good advice on this forum I wanted to get a reading before I...

I asked for a DEXA scan a few months in to my PMR/GCA journey around 3.5 years a...

Waves2

•2 years ago

2 Replies

Flare? Taper? Nothing at all?

hi dear folks. Curious about this reaction which came and went. Have GCA. Been tapering from 80 and now at 40. 28 days after reduction to 40 had a one day...

hi dear folks. Curious about this reaction which came and went. Have GCA. Been t...

Cobalt2sister

•2 years ago

5 Replies

Mental energy!

I am slowly learning to pace and beginning to understand what may trigger fatigue. I rested most of the weekend, and had a good, albeit busy day at work. I was...

I am slowly learning to pace and beginning to understand what may trigger fatigu...

Jigsawlass

•2 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2022

Itchy Scalp

Advice please ahead of an important day

Acceptance

severe lower back pain

doing a test post

Exasperation

Blood test results

Can Covid trigger PMR?

Disable badge

Stress

Update on tapering journey

Steriods card

My appointment

Adrenals on 3.5mg

STRESS INJURIES R/T PRED

Anyone in Corfu?

Normal Bloods

Short term ibuprofen

A Thank You

Please vote for us to win £1,000

Given sulfasalazine and told to increase prednisone

GCA-When to start Actemra?

Pain last week on right side of head

Steroid card

Covid: What difference the number of vaccination jabs makes - and does a breakthrough infection make any difference

Flare or relapse?

Tramadol

DEXA scan....success

Flare? Taper? Nothing at all?

Mental energy!

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