Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2022

Does anyone else get palpitations?

And if so, is it from a prednisone taper? I’m only on 3 mg, down from 50 They also added methotrexate. Could methotrexate cause palpitations?

And if so, is it from a prednisone taper? I’m only on 3 mg, down from 50 They...

USAGCA

•2 years ago

11 Replies

Taking steroids

Hi. My husband was diagnosed with PMR just over a year ago. Initially when he was started on steroids (20mg) the pain and stiffness reduced significantly and...

Hi. My husband was diagnosed with PMR just over a year ago. Initially when he wa...

BlueMozart

•2 years ago

15 Replies

Geographic tongue

Hi.has anyone heard of this.some advice would be good.thanks.

Flosy

•2 years ago

6 Replies

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2nd booster, fourth shot, all is well

Was a bit nervous getting booster shot ( worried about reactions). Received my fourth shot Friday, bit of sore arm, and flushed face in evening were only after...

Was a bit nervous getting booster shot ( worried about reactions). Received my f...

Elephants2019

•2 years ago

2 Replies

Prolia

Hi all. My rheumatologist is suggesting prolia injection for osteoporosis. Any info anyone please. I think I want to go down naturally route as the side...

Hi all. My rheumatologist is suggesting prolia injection for osteoporosis. Any i...

Uglow

•2 years ago

12 Replies

Very few posts!

Hi everyone, Just wondered if anyone else has experienced receiving what seems to be an abnormally low level of posts over the past 48hrs? I've only had 5 new...

Hi everyone, Just wondered if anyone else has experienced receiving what seems ...

Kendrew

•2 years ago

47 Replies

Flare

Flare Hi having gone down to 5 fairly easily, attempt at 4 resulted in a flare, I upped to 7.5 for ten days, no change, so now on 10, approximately twelve...

Flare Hi having gone down to 5 fairly easily, attempt at 4 resulted in a flare, ...

Carathedog

•2 years ago

6 Replies

Off Daily Pred , So is it Flareups or arthritis?

When I was diagnosed with PMR January of 2021, my rheumatologist put me on 15 mg of pred and tapering by 1 or 2 mg monthly. I have been off pred since the...

When I was diagnosed with PMR January of 2021, my rheumatologist put me on 15 mg...

Crowmaven

•2 years ago

2 Replies

So sorry - me again!

As I’ve already posted, I had the possibility of GCA - thankfully not - two weeks ago and, having been prescribed 60mg Pred as a precaution for three days,...

As I’ve already posted, I had the possibility of GCA - thankfully not - two week...

Janann25

•2 years ago

9 Replies

Is this a Flare?

After 4 years I eventually reached 4mg pred 2 weeks ago. I was in hospital with stomach pains 2 days ago. I had a doctor visit yesterday as very weak, unable...

After 4 years I eventually reached 4mg pred 2 weeks ago. I was in hospital with...

Jantayl

•2 years ago

2 Replies

Is this a Flare?

After 4 years I eventually got to 4mg pred 2 weeks ago. I now have severe pain on right side of neck, up past ear and into top of head. Could this be return...

After 4 years I eventually got to 4mg pred 2 weeks ago. I now have severe pain ...

Jantayl

•2 years ago

15 Replies

Diet ? ? ?

Have just been reading this post. I was diagnosed October 2020, but around April last year I got one of the awful side-effects of long-term Pred use....

Have just been reading this post. I was diagnosed October 2020, but around Apri...

ChrisinNam

•2 years ago

33 Replies

Need Advice please

I was instructed to reduce pred by my GP some time ago, dispite the fact that I've had 2 flares of the illness in the past due to reducing below 5mg. I've...

I was instructed to reduce pred by my GP some time ago, dispite the fact that I'...

pats555

•2 years ago

10 Replies

What a difference a consultant makes!!

After having my first face to face appt in Dec 2021 (after diagnosis in Oct 2020) which went really well, sadly that particular registrar then got a...

After having my first face to face appt in Dec 2021 (after diagnosis in Oct 2020...

Sophiestree

•2 years ago

50 Replies

Painful wrist.

I have had pmr for 3 years, a couple of flares along the way, now down to 6.5mg, just finished slow taper. Last year my right thumb joint at the wrist was very...

I have had pmr for 3 years, a couple of flares along the way, now down to 6.5mg,...

Iloveholidays

•2 years ago

68 Replies

Disassociated feeling

I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have...

I'm currently on Tocilizumab for GCA under the direction of a specialist physi...

redhouts

•2 years ago

37 Replies

Latest

For those of you who followed my posts about my possible - but thankfully, not - GCA diagnosis, I thought I’d let you know that I received a text this morning...

For those of you who followed my posts about my possible - but thankfully, not -...

Janann25

•2 years ago

17 Replies

Reducing from 10mg to 7.5!

So on the instructions of my rheumatologist, who says I haven’t got PMR, I have reduced the Prednisolone from 10mg to 7.5 this morning and am wondering if I...

So on the instructions of my rheumatologist, who says I haven’t got PMR, I have ...

Jayveedee

•2 years ago

15 Replies

HOPE

Thank you all, you are so encouraging, and informative, I have hope!

Poodleshrimp

•2 years ago

1 Reply

Any advice, a few questions 🤔

Aside from a healthy diet, and moderate exercise, what else does anyone recommend, when dealing with PMR. I take 9mg of prednisone, I try to eat healthy, and...

Aside from a healthy diet, and moderate exercise, what else does anyone recommen...

Poodleshrimp

•2 years ago

7 Replies

Fatigue

After starting prednisolone 15 mg 2 weeks ago I am pleased to be NEW me or the old me. No (almost) pain, lost of muscle strength and energy. I am wondering...

After starting prednisolone 15 mg 2 weeks ago I am pleased to be NEW me or the o...

krillemy

•2 years ago

20 Replies

Ever decreasing circles….

I thought I’d write a separate post to avoid writing to each person individually - I hope that’s OK? After being told the Eye Clinic was appointment only, I...

I thought I’d write a separate post to avoid writing to each person individually...

Janann25

•2 years ago

39 Replies

Spoons

I sometimes think my husband isn’t interested in my PMR but then this happened. The other day I mowed our well overdue lawn. He came home from work, walked...

I sometimes think my husband isn’t interested in my PMR but then this happened. ...

MiloCollie

•2 years ago

16 Replies

Need help and advice

Hi all, My husband has had PMR for over 11 years now. He had got down to 5mg of pred for maintenance and his specialist was happy for him to stay on 5mg. 8...

Hi all, My husband has had PMR for over 11 years now. He had got down to 5mg of...

Buenavista

•2 years ago

13 Replies

I feel dreadful

I know I sound a bit dramatic but I really do feel dreadful. Following the high Pred doses due to suspected GCA, I’ve reduced according to the doctors...

I know I sound a bit dramatic but I really do feel dreadful. Following the high ...

Janann25

•2 years ago

14 Replies

Low dose side effects?

Hello everyone, I was diagnosed with PMR in March last year after a couple of years of pain and feeling generally unwell. I started on 15mg Prednisolone and...

Hello everyone, I was diagnosed with PMR in March last year after a couple of y...

LeighDelaine

•2 years ago

8 Replies

4th Booster Covid jab

As I am due to fly in June, to grand-daughter's wedding, I would really like this before I go, but no letters seem to be arriving. Anyone in Scotland having...

As I am due to fly in June, to grand-daughter's wedding, I would really like thi...

Maudie19

•2 years ago

4 Replies

Hiatus Hernia

Hi, I’ve been on here before about this problem. I’m wondering if anybody else has choking and coughing with phlegm that leaves you breathless and heaving...

Hi, I’ve been on here before about this problem. I’m wondering if anybody else h...

Diver6

•2 years ago

12 Replies

Covid booster with NO side effects

Having had severe reactions with two of my three Covid jabs (Phizer), I was feeling anxious about needing my second booster. I cleared my schedule and bravely...

Having had severe reactions with two of my three Covid jabs (Phizer), I was feel...

Purplecrow

•2 years ago

12 Replies

Does this ever go away on its own?

Does anyone ever get over this PMR? if so, can you tell me how long it took? how did you taper steroids. Did you just live with the pain and not do steroids at...

Does anyone ever get over this PMR? if so, can you tell me how long it took? how...

ifeelold

•2 years ago

80 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2022

Does anyone else get palpitations?

Taking steroids

Geographic tongue

2nd booster, fourth shot, all is well

Prolia

Very few posts!

Flare

Off Daily Pred , So is it Flareups or arthritis?

So sorry - me again!

Is this a Flare?

Is this a Flare?

Diet ? ? ?

Need Advice please

What a difference a consultant makes!!

Painful wrist.

Disassociated feeling

Latest

Reducing from 10mg to 7.5!

HOPE

Any advice, a few questions 🤔

Fatigue

Ever decreasing circles….

Spoons

Need help and advice

I feel dreadful

Low dose side effects?

4th Booster Covid jab

Hiatus Hernia

Covid booster with NO side effects

Does this ever go away on its own?

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