Hi all. My rheumatologist is suggesting prolia injection for osteoporosis. Any info anyone please. I think I want to go down naturally route as the side effects sound awful along with steroids. I really don’t want to feel any worse.
Any advice appreciated. Thanks
Click on the link and read up - especially the information and support section.
With a bit of luck Heron will be along........in the meantime look in the FAQ's, more information.
If you look in FAQs there is, I believe, a wealth of information about the natural way to support and improve bone health. Heron wrote a pretty comprehensive post and improved her bone density. Prolia is a serious drug, and aren’t you on it for life?
What is your dexascan result like? Do you have osteoporosis or close to it? Are you already on any bone protection medication? Those are all factors you have to consider before deciding you'd rather go for a slower natural method since it may be too late for that.
Ask your rheumy how they intend to use it - you need either to have been on a bisphosphonate before you start Prolia or switch to a bisphosphonate when they decide to stop the Prolia/denosumab as otherwise there is a period of rapid bone density loss in the spine in the first year after stopping - exactly the opposite of what they want to achieve. The other alternative is to remain on Prolia for life.
My husband was put on Prolia - as far as I know he had no bad side effects after the injection. It is very conventient - a subcutaneous injection by a nurse every 6 months and no gastric risks.
I have osteoporosis. I am taking accrete d3 k2 cod liver oil my diet is high in calcium and protein I take multi vitamin. I have read up on Prolia and so many side effects. I’m seeing rheumatologist in next few weeks. I have stable vertebrae fractures but dexa scan is same as was in 2015
The problem with denosumab (Prolia) is once you start taking it you can;t come off it, or if you do you have to go on another medication anyway in order to avoid rebound osteoporosis which can be worse than the original condition. Couple of questions: Were you tested for "secondary causes of osteoporosis" because it's a mistake for a daoctor to simply assume it's aging, or pred, without testing. And the other question, do you take Vitamin K2 (not K1) as it is very important for calcium to actually be absorbed into the bones.
osteoporosis.ca/medical-con...
osteoporosis.ca/medical-con...
You are wise to question whether or not you should start with Prolia. My personal opinion (and I am not medically trained) is this is a valuable treatment but only as last resort, or for people who are indeed prepared to stay on it for the rest of their life. I have seen posted in bones forums that even people who stay on Prolia eventually end up finding it stops working and they fracture, but I don't know how rare or common this might be. No mdication is guaranteed of course. If an osteoporosis medication actually does the job it's supposed to you should be able to discontinue it within two or three years without fear of rebound, and carry on with natural means like nutrition and appropriate exercise, but you can't discontinue Prolia, or a couple of the other treatments. (Teriparatide- although that is not such a rapid change as when stopping Prolia apparently it does have to be followed up with something else as the improvements are lost. And romosozumab-aqqg, which is relatively new. It comes with a Black Box warning in in the US).
How severe though? If you have osteoporosis a high calcium diet and supplements won't build bone quickly - that is why Prolia is in the picture. If you think Prolia side effects are bad, wait until you develop repeated spinal fractures. But then - if you looked at the side effects of paracetamol you probably wouldn't take it either. It is all relative.
Truth! I’m absolutely terrified I don’t know what way to turn 😢
I've been on it a year, after a year of AA. It's much more convenient, just 2 injections a year. I wasn't given any info about it, and just accepted it because the GP felt the AA was causing some of the heartburn and indigestion. However, I have a couple of spinal compression fractures and a strong family history of osteoporosis, so I'm rather inclined to feel that if somebody wants to protect my bones, let them. Maybe it'll be long term, or I'll have to go bac k to AA, but in the meantime I feel that's a worry I can leave for the future! good luck wit your decision!
If you already have compression fractures I suspect it is ideal for you. Just don't let them stop it without another option to prevent rebound loss of bone density
Thank you but what do I say to them about not stopping please
I was prescribed Prolia when I started taking prednisolone as I have a history of osteoporosis and had already taken biphosphonates for 5years. I have had three injections so far with no side effects. However I was not told the risk about stopping by my rheumatologist which I have only learnt about on this forum.
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