Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,639 members • 38,787 posts

All posts for April 2022

Lost my connection 😥

Haven't had a daily HU since the 14th. Don't know what happened. Help please. I miss it. Saskie

Haven't had a daily HU since the 14th. Don't know what happened. Help please. I ...

Saskie86

•2 years ago

1 Reply

Diet

Hi Is there a specific laid out diet to follow for PMR, I realise cutting carbs, no low fat, but it would be helpful if there was something specific to follow.

Hi Is there a specific laid out diet to follow for PMR, I realise cutting carbs,...

Carathedog

•2 years ago

46 Replies

‘Catching pain’ / spasms links to PMR?

OK I’ve been stupid - again. My partner is wheelchair bound: whilst on holiday (after three years) I pushed her up a steep hill to see some special wild...

OK I’ve been stupid - again. My partner is wheelchair bound: whilst on holiday (...

ChinaWuntoo

•2 years ago

11 Replies

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The chewing gum test

I was diagnosed with PMR April 2021 and GCA October 2021. I have been really struggling this last few months with pain all over and fatigue. GP would not...

I was diagnosed with PMR April 2021 and GCA October 2021. I have been really st...

Esmeruth7

•2 years ago

8 Replies

If I’m really stressed, and know it’s going to get worse before it gets better, should I change my dosage plan?

That’s it really. For context, PMR was diagnosed in June 2020 and by January this year I was doing really well. I had just reduced to 1mg every other day (my...

That’s it really. For context, PMR was diagnosed in June 2020 and by January thi...

calibriel

•2 years ago

4 Replies

Fatigue/depression/anxiety with pred tapering

I started on 40mg prednisone a day in April 2021. I am down to 8 mg a day and am so so fatigued, anxious and depressed--like I never have been before. Has...

I started on 40mg prednisone a day in April 2021. I am down to 8 mg a day and am...

emmamom

•2 years ago

12 Replies

Fisiocrem

Has anyone tried fisiocrem? Sounds a bit like deep heat. I wondered if it's OK to use alongside pred. I'm not holding out much hope for it but I'm willing to...

Has anyone tried fisiocrem? Sounds a bit like deep heat. I wondered if it's OK ...

Jontie

•2 years ago

16 Replies

Pred withdrawal itch

Hi all, I’m doing a very gradual reduction of prednisolone and am down to 4 mgs after 4 yrs. but I’m itching all over, with spots at the base of my skull and...

Hi all, I’m doing a very gradual reduction of prednisolone and am down to 4 mgs...

Wraysbury

•2 years ago

5 Replies

Gum boil - ouch!

I had a gumboil come up quite quickly after a couple of days niggly tooth. It burst in the night. Pain stopped great relief. Been rinsing in salt water. If...

I had a gumboil come up quite quickly after a couple of days niggly tooth. It b...

jaycee444

•2 years ago

21 Replies

At what reduced dose of pred might GCA flares occur?

have reduced from 80 to 50 ( with only 3 brief episodes of mild temporal pain then fine). If I have flares it might serve Dr indication it is GCA ( they are...

have reduced from 80 to 50 ( with only 3 brief episodes of mild temporal pain th...

Cobalt2sister

•2 years ago

4 Replies

Difficulties treating gastritis

Hi, I’d been taking famotidine for more than three months and have now been taking omeprazole for almost 4 weeks to deal with upper stomach pain as well as a...

Hi, I’d been taking famotidine for more than three months and have now been taki...

enjoyed

•2 years ago

21 Replies

Why not just stay on prednisone instead of taking a biologic

Well, my doctor is back to saying I most likely do have PMR. I have had flairs which prednisone has handled. Now he wants to put me on Cimzia to try and get me...

Well, my doctor is back to saying I most likely do have PMR. I have had flairs w...

Plains

•2 years ago

9 Replies

What is “pred” mean?

What does “pred” mean?

enjoyed

•2 years ago

4 Replies

Epilepsy and Steroids

While reading the site last night I came upon a post regarding the compatibility of anticonvulsants and steroids. I was diagnosed with epilepsy when I was 15,...

While reading the site last night I came upon a post regarding the compatibility...

Grammy80

•2 years ago

10 Replies

Double vision looking sideways

I was sitting in a chair and happened to look out of the window without moving my head so I looked sideways (left) with my eyes. There was double vision in the...

I was sitting in a chair and happened to look out of the window without moving m...

omits

•2 years ago

16 Replies

Does PMR increase risk for muscle injuries?

I am fighting a PMR flare that is mostly effecting my hamstring area. The other day I tripped & pulled my hamstring making it much worse so now I am dealing...

I am fighting a PMR flare that is mostly effecting my hamstring area. The other ...

noslak

•2 years ago

14 Replies

10 months into PMR and GCA update

Happy post Easter everyone. It has been 4 months since I last posted an update and it has been a rocky passage since. Was up to 35mg pred. and tried to...

Happy post Easter everyone. It has been 4 months since I last posted an update a...

cycli

•2 years ago

52 Replies

Finally got “it” !

I have been on prednisone for 5 years and I’m currently taking 8 mg. I have been very cautious since COVID hit and my wife and I managed to avoid getting...

I have been on prednisone for 5 years and I’m currently taking 8 mg. I have bee...

rocketman42

•2 years ago

34 Replies

Hotel beds

Well here I am on my tour of Scotland upped steroids to 5 mgs from 2.5 . But a new bed every night and even in a top hotel the feather bed topper has lumps in...

Well here I am on my tour of Scotland upped steroids to 5 mgs from 2.5 . But a n...

Avadip12

•2 years ago

49 Replies

Cheap bum implants update!

Well thanks for all your good wishes since my fall. I just wanted a quick moan about my bum cheek. It’s 16 days since my fall and it’s STILL really sore and a...

Well thanks for all your good wishes since my fall. I just wanted a quick moan a...

MiloCollie

•2 years ago

5 Replies

Impact of COVID on remission

Came down with Covid a week before Easter. Had flu like symptoms accompanied by stiff neck and shoulders, and unusual back stiffness. Apart from a very sore...

Came down with Covid a week before Easter. Had flu like symptoms accompanied by...

squashie

•2 years ago

3 Replies

Worried

Due to the possibility that my PMR had turned to GCA about 10 days ago - thankfully it hadn’t - but it meant I was on 60mg Pred for 4 days (normally in 6mg)...

Due to the possibility that my PMR had turned to GCA about 10 days ago - thankfu...

Janann25

•2 years ago

14 Replies

My GCA/LVV experience

My GCA/LVV experience is a warning that the disease does not always present in the typical way we are alert for. I had headaches but no jaw claudication, no...

My GCA/LVV experience is a warning that the disease does not always present in t...

SheffieldJane

•2 years ago

65 Replies

Lower Abdominal pain and Tocilizumab

Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity...

Tocilizumab side effects: The main thing I have noticed is a proneness to infect...

SheffieldJane

•2 years ago

41 Replies

Omeprazole

Hope I’m right, yesterday had dreadful cramping both hands lasted nearly 3 hrs So painful. After it subsided I reviewed me medication, starting with...

Hope I’m right, yesterday had dreadful cramping both hands lasted nearly 3 hrs ...

Ronzy

•2 years ago

34 Replies

Questions and fear and pain

Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new symptom along with swollen ankle. Rheumy ordered ct scan for wednesday this week....

Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new sy...

Binty1

•2 years ago

10 Replies

Update from 5 days ago Flare

I do hope you are enjoying the Easter break in whatever way you can. We’ve been fortunate in having unseasonal sunshine which makes the world a better place....

I do hope you are enjoying the Easter break in whatever way you can. We’ve been ...

Tinasleepyhead

•2 years ago

11 Replies

GCA presentation

Mine started Oct 18, 2021. It started suddenly with a left temporal headache which i had never experienced before. I also noticed left jaw tightness/pain...

Mine started Oct 18, 2021. It started suddenly with a left temporal headache whi...

Jsaoughs

•2 years ago

38 Replies

FAQ

FAQ how do you find FAQplease

Suffererc

•2 years ago

30 Replies

Low iron levels

I have been put on Ferrous Sulphate tablets because my serum ferritin was only 11 (lower limit of normal is 15) It was picked up from a routine blood test but...

I have been put on Ferrous Sulphate tablets because my serum ferritin was only 1...

altywhite

•2 years ago

51 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2022

Lost my connection 😥

Diet

‘Catching pain’ / spasms links to PMR?

The chewing gum test

If I’m really stressed, and know it’s going to get worse before it gets better, should I change my dosage plan?

Fatigue/depression/anxiety with pred tapering

Fisiocrem

Pred withdrawal itch

Gum boil - ouch!

At what reduced dose of pred might GCA flares occur?

Difficulties treating gastritis

Why not just stay on prednisone instead of taking a biologic

What is “pred” mean?

Epilepsy and Steroids

Double vision looking sideways

Does PMR increase risk for muscle injuries?

10 months into PMR and GCA update

Finally got “it” !

Hotel beds

Cheap bum implants update!

Impact of COVID on remission

Worried

My GCA/LVV experience

Lower Abdominal pain and Tocilizumab

Omeprazole

Questions and fear and pain

Update from 5 days ago Flare

GCA presentation

FAQ

Low iron levels

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