Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2022

Side effects after Prednisolone withdrawal

After 3 1/2 years on Prednisolone for GCA (confirmed by biopsy), I have managed the very slow taper off the drug, had bloods done after 3 weeks and all seems...

After 3 1/2 years on Prednisolone for GCA (confirmed by biopsy), I have managed...

Saxsoprano

•2 years ago

3 Replies

Timings of meds...

Morning everyone. GCA since last September. Tapering on the 5 week, DSNS programme coming down by half mg, now on 9, heading towards 8and half. Meds are...

Morning everyone. GCA since last September. Tapering on the 5 week, DSNS progr...

Temoral

•2 years ago

2 Replies

Additional meds from my GP?

Hi Everyone, First to say I am pleased to have just about survived the first Mothering Sunday since my wife Sue's death. Not only the Mum of our lovely 3...

Hi Everyone, First to say I am pleased to have just about survived the first Mo...

Hopingsail

•2 years ago

15 Replies

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Wired cramping feet and hands 😬

These cramps are wired hands and feet, or should I say finger and toes , It pulls my fingers Then this evening ,it felt as something was reaching my toes...

These cramps are wired hands and feet, or should I say finger and toes , It pull...

Ronzy

•2 years ago

11 Replies

Chicken pox

Inhave just come off pednisalone after 4 years…would I be at risk if I went and helped with a granddaughter with chicken pox

Inhave just come off pednisalone after 4 years…would I be at risk if I went and ...

Ambler54

•2 years ago

22 Replies

Forgetting your meds!!!

Does anyone know what I should do because I STUPIDLY forgot to take my preds one morning. Only found out the next day when that day's compartment was still...

Does anyone know what I should do because I STUPIDLY forgot to take my preds one...

grannyouch

•2 years ago

25 Replies

Weight loss as a symptom of PMR ?

Has anyone on the forum experienced weight loss before/after being diagnosed with PMR? when I first developed signs of PMR pain and stiffness I also lost a...

Has anyone on the forum experienced weight loss before/after being diagnosed wi...

carport

•2 years ago

28 Replies

Bad neck and shoulder pain

I have very bad neck pain, it hurts to move my neck. My shoulders are very sore as well. I was able to reduce my prednisone to 4 recently from 4 1/2. I hate...

I have very bad neck pain, it hurts to move my neck. My shoulders are very sore ...

Plains

•2 years ago

20 Replies

Swollen optic nerves - both sides

Has anyone had swollen optic nerves? I noticed a misty area in my left eye. My optometrist sent me straight to ER. My spinal fluid level is good - 16. 2...

Has anyone had swollen optic nerves? I noticed a misty area in my left eye. M...

Jane424

•2 years ago

7 Replies

I was able to have my fourth Covid vaccination....

I thought you may be interested that yesterday I was able to have my fourth Covid vaccination. I was diagnosed with PMR in December last year and began with a...

I thought you may be interested that yesterday I was able to have my fourth Covi...

Rostom

•2 years ago

6 Replies

Reflexology

Thanks everyone. Think I’ll save my money for now.

Vidag

•2 years ago

1 Reply

Second booster

I just got notice that I'm due for second booster for Covid vaccine. Since January 2021, I cheerfully tromped in to get all the prior jabs, and with the last...

I just got notice that I'm due for second booster for Covid vaccine. Since Jan...

Purplecrow

•2 years ago

17 Replies

Long time on Pred

Hello my learned fellow sufferers. I’m reading Kate Gilbert’s incredibly useful book on PMR. One quote that has struck me was the consultants quote “ If they...

Hello my learned fellow sufferers. I’m reading Kate Gilbert’s incredibly usefu...

Southmead

•2 years ago

33 Replies

So sorry

Its the brain fog. I’m actually reducing from 5.5 to 5mg. Its the 1day new dose 6 days old - 1day new 5 days old and so on for 26 days then whole thing in...

Its the brain fog. I’m actually reducing from 5.5 to 5mg. Its the 1day new dose ...

Vidag

•2 years ago

6 Replies

Low back pain

Hello fellow polymyalgia sufferers, I was just wondering if low backache is a symptom of polymyalgia? I have lowered the pred as directed by the doctor from...

Hello fellow polymyalgia sufferers, I was just wondering if low backache is a sy...

Dartmoor4

•2 years ago

67 Replies

Would Reflexology Help

Ive had PMR for 2yrs. Age 77 yrs. currently reducing Pred from 6.5 to 5 using Mrs Nails tapering plan and feel awful. Its mostly sort of burning pain and...

Ive had PMR for 2yrs. Age 77 yrs. currently reducing Pred from 6.5 to 5 using M...

Vidag

•2 years ago

5 Replies

Advice please

PMR 20 months since diagnosis. No flares and now down to 4 mg. Tested positive for Covid 11 days ago. Todays test still positive . Have intense pain at the...

PMR 20 months since diagnosis. No flares and now down to 4 mg. Tested positive ...

Nanny71

•2 years ago

9 Replies

Reducing from 21.5 pred

What is the best plan. I want to get off high dose.

Artwatercolour

•2 years ago

16 Replies

Update after eye doctor

well dr.said my Neuro ophthalmologist is the one who is most in know (GCA) but she was very concerned. See retina specialist this week she urged. ( he's out I...

well dr.said my Neuro ophthalmologist is the one who is most in know (GCA) but s...

Cobalt2sister

•2 years ago

3 Replies

Fatigue ....again !

As you may know, I posted about Fatigue recently and had so many helpful responses. I'm new to the world of steroids so my question is , do they add to...

As you may know, I posted about Fatigue recently and had so many helpful respon...

Jigsawlass

•2 years ago

6 Replies

Cataract surgeries with no PMR flare

Just finished cataract surgeries, and vision is 20-20! Better yet...no PMR consequences, although I was afraid I might have a flare of symptoms. Currently...

Just finished cataract surgeries, and vision is 20-20! Better yet...no PMR cons...

Purplecrow

•2 years ago

12 Replies

Headache for 2 weeks

I’m down to 4 mg prednisone and Actemra monthly infusions for past 4 months. My rheumatologist thinks I should be totally off of pred now but I followed his...

I’m down to 4 mg prednisone and Actemra monthly infusions for past 4 months. My...

nallufl24

•2 years ago

19 Replies

PMR back, blood OK?

My PMR came back after four years, but this time there is no indication of it in the blood work. I definitely feel the pain, but there's no objective evidence....

My PMR came back after four years, but this time there is no indication of it in...

Steve2002

•2 years ago

9 Replies

Pred Before Surgery

I am due to have replacement hip surgery soon and one of the instructions pre op is not to have anything to drink that contains milk 6 hours before my...

I am due to have replacement hip surgery soon and one of the instructions pre op...

Retallack

•2 years ago

13 Replies

5th Covid Vaccine

Had a text last night inviting me to have my 5th Covid Vaccine (2nd booster). Something in the back of my mind tells me that I had read this would be six...

Had a text last night inviting me to have my 5th Covid Vaccine (2nd booster). So...

Hollybee21

•2 years ago

24 Replies

Prednisolone tapering and flare up

Hi there advice needed. I have been taking Prednisolone for 27 months and had managed to taper from two to one mg Prednisolone, but I am having a flare up ....

Hi there advice needed. I have been taking Prednisolone for 27 months and had m...

bru12

•2 years ago

8 Replies

Covid, severe arythymia, hypoglycaemia, Low cortisone ??? NOW SEEM TO BE RUNNING ALOW GRADE / HAVING A FLARE FEVER

Hi all UPDATE: I have felt quite poorly since yesterday afternoon again - feel like I have a low grade fever (but I have a very low body temp naturally -...

Hi all UPDATE: I have felt quite poorly since yesterday afternoon again - feel...

Slosh

•2 years ago

10 Replies

Support with weight.

Fighting steroids....have been following Slimming World, lost 2 stone got to target then PMR Struck! Put nearly a stone back on but managing to maintain weight...

Fighting steroids....have been following Slimming World, lost 2 stone got to tar...

Allcraft

•2 years ago

10 Replies

Crazy update from neuron ophthalmologist appt.

well went for follow up after temporal artery biopsy was negative. I've been on 80 prednisone for 2 weeks ( some metropolitan packs before that). Had trip to...

well went for follow up after temporal artery biopsy was negative. I've been on ...

Cobalt2sister

•2 years ago

24 Replies

Update from the Music Lady

Well good news, they have confirmed no GCA at this point for me, however the Rheumatologist says my PMR has not gone into remission yet, as I have had too many...

Well good news, they have confirmed no GCA at this point for me, however the Rhe...

Musiclady18

•2 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2022

Side effects after Prednisolone withdrawal

Timings of meds...

Additional meds from my GP?

Wired cramping feet and hands 😬

Chicken pox

Forgetting your meds!!!

Weight loss as a symptom of PMR ?

Bad neck and shoulder pain

Swollen optic nerves - both sides

I was able to have my fourth Covid vaccination....

Reflexology

Second booster

Long time on Pred

So sorry

Low back pain

Would Reflexology Help

Advice please

Reducing from 21.5 pred

Update after eye doctor

Fatigue ....again !

Cataract surgeries with no PMR flare

Headache for 2 weeks

PMR back, blood OK?

Pred Before Surgery

5th Covid Vaccine

Prednisolone tapering and flare up

Covid, severe arythymia, hypoglycaemia, Low cortisone ??? NOW SEEM TO BE RUNNING ALOW GRADE / HAVING A FLARE FEVER

Support with weight.

Crazy update from neuron ophthalmologist appt.

Update from the Music Lady

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