Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,024 posts

All posts for February 2022

4th jab a no go

I posted 2 weeks ago about the fact that I’ve been asked by the nhs to book my 4th jab. My gp won’t give me the appropriate paperwork and have asked my rheumy...

I posted 2 weeks ago about the fact that I’ve been asked by the nhs to book my 4...

Suet3942

•2 years ago

70 Replies

Antibody results for covid

I have an antibody result stating N which means I haven’t had Covid, And an S result which means I have some antibodies. No further info. I assume that’s good?...

I have an antibody result stating N which means I haven’t had Covid, And an S re...

Rosina1871

•2 years ago

16 Replies

Methotrexate, and prednisone

PMR , dr added Methotrexate with my prednisone. Feeling hung over and hurting more than before. Has anyone had this effect? I’m fatigued all the time, hips...

PMR , dr added Methotrexate with my prednisone. Feeling hung over and hurting mo...

Huntinghelp

•2 years ago

58 Replies

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Bone Profile Result.

Hi all, at my Rheumatology appointment last October, they took a full blood count test which included a bone profile result. I just wondered if the following...

Hi all, at my Rheumatology appointment last October, they took a full blood coun...

Cact

•2 years ago

6 Replies

PMR flare or not so gentle yoga?

Greetings, I have had PMR about 2.5 years now and managed to taper off prednisone summer of 2021. I realize that is a rather short amount of time to be on...

Greetings, I have had PMR about 2.5 years now and managed to taper off prednison...

SandyBoots

•2 years ago

13 Replies

Could it be pmr?

I’ve had umpteen doctors appointments since I collapsed 18 months ago with severe cramp all over with fatigue and slurred speech. Not a stroke, according to...

I’ve had umpteen doctors appointments since I collapsed 18 months ago with sever...

Mag999

•2 years ago

13 Replies

Depomedrone

Hi Does anyone know how long depomedrone inj lasts?I was given one 2 weeks ago and had my pred increased to 2.5 enteric coated from 2 mg uncoated as had bad...

Hi Does anyone know how long depomedrone inj lasts?I was given one 2 weeks ago ...

bakingD

•2 years ago

3 Replies

Pains

I am down to 1mg since june 2018 or 17 can't quite remember. I am in so much pain in back, legs knees, elbows I know is tennis elbow. I walk as tho drunk, I...

I am down to 1mg since june 2018 or 17 can't quite remember. I am in so much pai...

Hidden

•2 years ago

19 Replies

LDN

Hi Everyone, As I have reported on here, I am in the very slow process of lobbying to get an extension of my allocation of TCZ. This will take ages, I know …...

Hi Everyone, As I have reported on here, I am in the very slow process of lobby...

LemonZest11

•2 years ago

19 Replies

Shortness of breath

I have been off prednisone since the end of October my rheumatologist took me off . I feel stiffness and muscle pain and extremely tired. It’s been a about 4...

I have been off prednisone since the end of October my rheumatologist took me of...

Athena2020

•2 years ago

6 Replies

A flare??

Could a pain like tooth hake in small hours of morning in both shoulders going down to arms be classed as a flare .Then it takes 4 or 5 hour to be pain free....

Could a pain like tooth hake in small hours of morning in both shoulders going ...

Ronzy

•2 years ago

13 Replies

PMR back

Hi everyone it is with a saddened heart that it looks like my PMR has returned. Prednisolone didn't really suit me, gave me mental health issues (now have...

Hi everyone it is with a saddened heart that it looks like my PMR has returned. ...

Karendeena

•2 years ago

7 Replies

week two in the big brother house

The end of week 2 with PMRGCA with the addition of a Coronary thrombosis. Looking back this all started in early September 2021, I am a self employed Tutor...

The end of week 2 with PMRGCA with the addition of a Coronary thrombosis. Look...

Burnley1959

•2 years ago

29 Replies

Now I Know What A Flare Feels Like!

I felt small pain a week ago so I went from 5 to 8. Helped a little. 2 days ago I got really wobbly, bumped a wall a couple times. Yesterday morning I fell...

I felt small pain a week ago so I went from 5 to 8. Helped a little. 2 days ago ...

OldGolfer

•2 years ago

22 Replies

Thigh pain

Hi me again! I have over last few days developed pain in my thighs at front. It feel like a burning restriction when I first stand with the pressure of...

Hi me again! I have over last few days developed pain in my thighs at front. It ...

Uglow

•2 years ago

31 Replies

Increase pred or cope with some pain?

Good morning. I am looking for advice. Diagnosed 2.5 years ago both hips and arms aged 56. I have been on pred since then with attempts to taper being halted...

Good morning. I am looking for advice. Diagnosed 2.5 years ago both hips and arm...

Pawscat11

•2 years ago

51 Replies

Anyone have any issues with stomach cramp/ pain ?

Have successfully tapered my pred. Down to 7.5mg but recently seem to be getting a lot of stomach cramps/ pain after eating. Anyone else noticed any...

Have successfully tapered my pred. Down to 7.5mg but recently seem to be getting...

Crochetgardener

•2 years ago

9 Replies

Upset

My friend being diagnosed with P M R on steroids for a year then doc said no not P M R it's Fibroyed myalgia, taken into hospital with high blood pressure...

My friend being diagnosed with P M R on steroids for a year then doc said no n...

Harrywogan

•2 years ago

51 Replies

PMR with no hip involvement, common?

I have all shoulder/neck/upper arm pain and stiffness with PMR. My doctor told me it’s “strange” that I don’t have hip involvement. I told her I thought she...

I have all shoulder/neck/upper arm pain and stiffness with PMR. My doctor told m...

SLCR

•2 years ago

37 Replies

Strange business this pred drug. (Another Rant 😤)

As I see it doctors seam wired with it. Docs seam frightened to death with side effects. It’s a shame really as to me it is a inexpensive wonder drug . There...

As I see it doctors seam wired with it. Docs seam frightened to death with side ...

Ronzy

•2 years ago

9 Replies

Jonathan Van-Tam's 2021 Royal Institution Christmas lectures

For those of you unable to see this excellent, and informative, series of lectures on the BBC, and those who'd like to revisit them, Professor Sir Jonathan...

For those of you unable to see this excellent, and informative, series of lectur...

Balletomane

•2 years ago

12 Replies

A flare ,people mentioned allot.

What is it how would you describe a flare ,because I don’t think it would wash with this doctor of mine 😵‍💫😩

What is it how would you describe a flare ,because I don’t think it would wash w...

Ronzy

•2 years ago

14 Replies

Availability of Tocilizumab [TCZ] on NHS

The original NICE gidance on Tocilizumab , TA518, was to be reviewed in 2021. Has that review taken place? Have there been any indications that the 1 year...

The original NICE gidance on Tocilizumab , TA518, was to be reviewed in 2021. H...

GCA-TCZ

•2 years ago

8 Replies

Bye bye roof...

So Storm Eunice has dislodged my roof. I've had 8 fire fighters in my loft doing a temporary fix and I'm off to stay with my daughter for a few nights. I was...

So Storm Eunice has dislodged my roof. I've had 8 fire fighters in my loft doing...

Marijo1951

•2 years ago

20 Replies

Booster covid jab

I cannot seem to get a straight answer. I was advised not to have the booster jab because of an upcoming operation on my ears ( Im falling to bits for goodness...

I cannot seem to get a straight answer. I was advised not to have the booster ja...

Burnley1959

•2 years ago

12 Replies

What do emergency services actually do?

Hi since being diagnosed with PMR and GCA and at mo on 40mg steroids till end of month and then reducing. I understand about protecting sight, which is so...

Hi since being diagnosed with PMR and GCA and at mo on 40mg steroids till end of...

Richmond162

•2 years ago

15 Replies

Fatigue which I did not have before

I have got down to 13.5 dropped from 17.5 (see my previous notes) BUT all of a sudden feel horrible no energy at all. Still have some pain upon waking but...

I have got down to 13.5 dropped from 17.5 (see my previous notes) BUT all of a s...

Artwatercolour

•2 years ago

24 Replies

How to Tell Between Steroid Withdrawal and a Flare?

Hello All, I recently dropped to 3 and a half mgs pred and very excited to be there! It didn't last long though as horrible PMR symptoms re-appeared within...

Hello All, I recently dropped to 3 and a half mgs pred and very excited to be th...

Louisa1840

•2 years ago

4 Replies

Im new here

Diagnosed in January with PMRGCA, also angina caused by a blood clot right artery leading to the heart taking 40mg steroids and statins for the heart. Was...

Diagnosed in January with PMRGCA, also angina caused by a blood clot right arter...

Burnley1959

•2 years ago

29 Replies

1mg pred

Deciding, once more to attempt a taper from 2mgs to 1 1/2, I ordered 1 mg tablets (in order to cut in two) . Lo and behold I was given gastric resistant 1 mgs…...

Deciding, once more to attempt a taper from 2mgs to 1 1/2, I ordered 1 mg tablet...

tgca

•2 years ago

21 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2022

4th jab a no go

Antibody results for covid

Methotrexate, and prednisone

Bone Profile Result.

PMR flare or not so gentle yoga?

Could it be pmr?

Depomedrone

Pains

LDN

Shortness of breath

A flare??

PMR back

week two in the big brother house

Now I Know What A Flare Feels Like!

Thigh pain

Increase pred or cope with some pain?

Anyone have any issues with stomach cramp/ pain ?

Upset

PMR with no hip involvement, common?

Strange business this pred drug. (Another Rant 😤)

Jonathan Van-Tam's 2021 Royal Institution Christmas lectures

A flare ,people mentioned allot.

Availability of Tocilizumab [TCZ] on NHS

Bye bye roof...

Booster covid jab

What do emergency services actually do?

Fatigue which I did not have before

How to Tell Between Steroid Withdrawal and a Flare?

Im new here

1mg pred

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