Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,756 members • 39,022 posts

All posts for February 2022

Cyprus?

This is a random question but we are thinking about moving permanently to Cyprus,the Greek part of the island.I have been on pred for over 2 years and I was...

This is a random question but we are thinking about moving permanently to Cyprus...

Hampit54

•2 years ago

16 Replies

The strangest thing...

Strangest thing ever. Two weeks I had a bout of shingles. I’ve been prone to this since I was 24. Just a small patch, about the size of a £1 coin, on the back...

Strangest thing ever. Two weeks I had a bout of shingles. I’ve been prone to thi...

PuttyPenguin

•2 years ago

4 Replies

4th vaccine

Hi all , I got my 4th vaccine on Monday afternoon and ended up in hospital Tuesday night massive headache violently sick and once again pain more on right side...

Hi all , I got my 4th vaccine on Monday afternoon and ended up in hospital Tuesd...

Rottsuzi

•2 years ago

16 Replies

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Fall

Hi good friends Today I had a bad fall which resulted in an ambulance taking me to hospital. I received amazing attention and care. X ray showed a break in...

Hi good friends Today I had a bad fall which resulted in an ambulance taking me...

Tinasleepyhead

•2 years ago

63 Replies

Cortisal Results

Hello fellow sufferers, I took my 3 monthly blood test, they like to to see how my Adrenal gland is performing, the last test a few months ago my results...

Hello fellow sufferers, I took my 3 monthly blood test, they like to to see ho...

Southmead

•2 years ago

12 Replies

Lansoprazole and Entric coated Prednisalone

I confidently stated to my GP that I couldn’t take Lansoprazole because I was taking Entric coated Prednisalone. She disputed this and was quite cross, clearly...

I confidently stated to my GP that I couldn’t take Lansoprazole because I was ta...

SheffieldJane

•2 years ago

63 Replies

tapering and symptoms

recently tapered to 4.5. having severe gastrointestinal issues. gas and diarrhea, literally liquid for two days straight. some cramping. neg covid test....

recently tapered to 4.5. having severe gastrointestinal issues. gas and diarrhe...

icu2

•2 years ago

22 Replies

When should I start to reduce pred

Hello everyone, a bit worried about what to do next, started on 20mg pred in November 2021 was also on Meloxicam 15mg, inflammation markers were at 49...

Hello everyone, a bit worried about what to do next, started on 20mg pred in Nov...

Cler

•2 years ago

16 Replies

reducing pred by pill splitting or 1 day a week

Hi everybody----back again. Hubby has just about recovered from the presumed side effects of MTX and just had call from rheumy nurse who was offering the MTX...

Hi everybody----back again. Hubby has just about recovered from the presumed sid...

piggylovesgolf

•2 years ago

29 Replies

Flare or sustainable state?

I feel like I'm in a permanent state of mild flare (a little in shoulders; slightly more in hips). This has been for about 4 months, since I got below 6mg....

I feel like I'm in a permanent state of mild flare (a little in shoulders; slig...

Sanekate

•2 years ago

7 Replies

Targeted cortisone injection

I twice had a targeted cortisone injection for inflammation in the shoulder. It helped the shoulder pain and by the way my severe headaches disappeared for a...

I twice had a targeted cortisone injection for inflammation in the shoulder. It ...

mepoly20

•2 years ago

5 Replies

~Any one with PMR had PVI for Artial Fibrillation ?~

~Hi dear friends Haven't posted in a while but tried to reduce my hydrocortisone Sept 2021 D/L dsns method over 3 months of only 0.50mg - by Nov/Dec felt...

~Hi dear friends Haven't posted in a while but tried to reduce my hydrocortisone...

Megams

•2 years ago

15 Replies

An update in my quest …

Hi All, I have had a letter back from the State Health Department regarding my endeavours to get an extension to my allocation of tocilizumab. Thing is, it’s...

Hi All, I have had a letter back from the State Health Department regarding my e...

LemonZest11

•2 years ago

10 Replies

dark red blotches on lower legs

I started on prednisone (20 mg) on Sept 5, 2021. Bruising on my arms and legs had been a problem (sun damage) even before beginning my treatment for PMR but...

I started on prednisone (20 mg) on Sept 5, 2021. Bruising on my arms and legs ...

monroeglen

•2 years ago

7 Replies

Shingles pain

cmToddy

•2 years ago

1 Reply

Final upt dose of pred to 30mg from 15.Is a split dose as effective as all on morning?

Split dose effect.

Ronzy

•2 years ago

3 Replies

Steroid-induced diabetes

Does anyone out there have it? How do you manage it, especially given the fact that many of are stuck on pred long-term?

Does anyone out there have it? How do you manage it, especially given the fact ...

winfong

•2 years ago

24 Replies

Macular oedema and steroids

I have diabetic macular oedema and my opthamologist said today that although my eyes are not getting any worse my right eye maybe needs some laser. She said...

I have diabetic macular oedema and my opthamologist said today that although my ...

Koalajane

•2 years ago

10 Replies

Advice

Hi, I had to get my Pred increased to 20mg as 15mg wasn’t doing the job, I have noticed a difference, I am very stiff and sore in arms and hips in a morning...

Hi, I had to get my Pred increased to 20mg as 15mg wasn’t doing the job, I have ...

Tilian

•2 years ago

12 Replies

Back on Prednisolone

Just an update from my previous post. My polymyalgia is back after 3 months off prednisolone. I saw a Rheumatologist tonight privately who was very thorough...

Just an update from my previous post. My polymyalgia is back after 3 months off ...

Karendeena

•2 years ago

14 Replies

Please check the Covid FAQs if you have any questions

We've had a few questions about boosters and vaccines in the last few days. If you have a question on these topics, please do look at the following posts:...

We've had a few questions about boosters and vaccines in the last few days. If y...

Fran_Benson

Partner•2 years ago

4 Replies

4th jab

Thankyou everyone for all your support and help with the fact I was having trouble getting my 4th jab. I went to a walk in centre today and they were really...

Thankyou everyone for all your support and help with the fact I was having troub...

Suet3942

•2 years ago

1 Reply

Re Booster Jabs.

I have just been told I am not eligible inspite of being sent the letter. That is the decision of the hub the Office Manager had referred me to. I am on 3mg of...

I have just been told I am not eligible inspite of being sent the letter. That i...

prunus

•2 years ago

2 Replies

Turned away for 4th Covid jab due to Pred dose

I had a text,email and letter inviting me to book a 4th jab which I duly did. However when I got there a nurse who had a list of qualifying factors turned me...

I had a text,email and letter inviting me to book a 4th jab which I duly did. Ho...

Retallack

•2 years ago

34 Replies

New info on exercise and breathing issues for some with Autoimmune afflictions

This study relates to exercise and breathing and indicates a delayed recovery for folks with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and...

This study relates to exercise and breathing and indicates a delayed recovery fo...

Greytree

•2 years ago

3 Replies

Trigeminal neuralgia and gca

Hi everyone, when I was first diagnosed with gca had jaw claudication for quite some time which is now resolved on 50 mg prednisone and hoping to taper to 40...

Hi everyone, when I was first diagnosed with gca had jaw claudication for quite ...

Charkha

•2 years ago

4 Replies

Prednisolone and blood pressure

Prepare yourselves for a ramble: I posted on here recently about an increase in my Pred dosage (from 4 to 10mg) because I was having shoulder pain (which I’ve...

Prepare yourselves for a ramble: I posted on here recently about an increase in ...

Doraflora

•2 years ago

18 Replies

PMR and arm numbness

Hello - at 7mg at almost a year with PMR. Doing okay until this week my thumb started going numb/tingly throughout the day. I tried to search for past posts...

Hello - at 7mg at almost a year with PMR. Doing okay until this week my thumb st...

Sunnyday365

•2 years ago

17 Replies

Tocilizumab was refused.

Any idea why my rheumo told me that I can't have tocilizumab? She would not elaborate. MTX was making me sick.

Any idea why my rheumo told me that I can't have tocilizumab? She would not elab...

Nagswoman

•2 years ago

25 Replies

Do personal PMR symptoms change?

Is it usual for one’s personal typical PMR symptoms to change? When diagnosed (August 2020) my pain and stiffness was from lower back to knees. Could not...

Is it usual for one’s personal typical PMR symptoms to change? When diagnosed ...

ImC_

•2 years ago

36 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2022

Cyprus?

The strangest thing...

4th vaccine

Fall

Cortisal Results

Lansoprazole and Entric coated Prednisalone

tapering and symptoms

When should I start to reduce pred

reducing pred by pill splitting or 1 day a week

Flare or sustainable state?

Targeted cortisone injection

~Any one with PMR had PVI for Artial Fibrillation ?~

An update in my quest …

dark red blotches on lower legs

Shingles pain

Final upt dose of pred to 30mg from 15.Is a split dose as effective as all on morning?

Steroid-induced diabetes

Macular oedema and steroids

Advice

Back on Prednisolone

Please check the Covid FAQs if you have any questions

4th jab

Re Booster Jabs.

Turned away for 4th Covid jab due to Pred dose

New info on exercise and breathing issues for some with Autoimmune afflictions

Trigeminal neuralgia and gca

Prednisolone and blood pressure

PMR and arm numbness

Tocilizumab was refused.

Do personal PMR symptoms change?

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