A flare??

[Ronzy]

Could a pain like tooth hake in small hours of morning in both shoulders going down to arms be classed as a flare .Then it takes 4 or 5 hour to be pain free.

Still after starting on 15 pred mhg not tablets 🤣 ,also would I be correct in thinking more chance of contacting GCA on too little , than too much

Thanks 🥺

[123-go]

I found you under Rocketronzy when you joined the forum in 2017 and that you previously came off Prednisolone. I really feel that your GP should refer you to a rheumatologist as I would say that you need more specialist care. Please ask your GP if she will arrange this for you. If she refuses it may well be time to change your doctor. Perhaps your lovely family will support you in doing this.

[Ronzy in reply to 123-go]

Hi ,my lovely family think I am rather ott 🤷🏽‍♂️😢 .seams to me one needs to have it to understand it .just feel I’m in for a battle,I am going to make it clear I am most disgruntled 😢.don’t know about anyone els but I am now finding mi Sen ,mmm how con I put it mmm ……………………… depressed ,carnt lett it go p****** off ,just clallify in one word at moment

It must be terrible for people that’s got it much worse than myself, iam sure they must be

Thousands .MUST STOP MOANING 😵‍💫🤷🏽‍♂️

Best of luck to all you lovely people,hope you all get big improvement soon 🍀🍀🍀🍀🥰

[piglette in reply to Ronzy]

I think a lot of people do not appreciate how awful some people feel when they are feeling OK.

[SheffieldJane]

Was the pain in your tooth? Sorry you’ve explained already .If so try the dentist. Under-treating PMR could make you more vulnerable to GCA. An unusual headache, jaw pain when chewing and any eyesight issues are the warning signs. I agree with 123-go. A Rheumatologist ought to take a look at you. You clearly are suffering at the moment and get kind of brushed off by your doctor. Any of the GCA symptoms and you need to go to the emergency room pronto.

[piglette in reply to SheffieldJane]

I think Ronzy was saying the pain in her shoulders and arms was like a toothache. Not actual toothache.

[SheffieldJane in reply to piglette]

Yes I just realised that and amended it. I was thinking jaw pain. It is a toothache-like pain.

[piglette in reply to SheffieldJane]

I suppose a toothache type pain in the shoulders is unusual. I find it very difficult to describe my pain. Must be difficult being a doctor and understanding people’s aches and pains.

[calibriel]

Sounds like a flare to me, but your doctor should confirm

[Sharitone]

Looking back at your former posts, it sounds like 15mg has never sorted out the pain. It is a low starting dose, so how about asking your GP whether it needs to be increased? If you've only been on pred a couple of weeks, I take it you've got a blood test in the neat future, to check inflammation levels?

[Ronzy in reply to Sharitone]

Done that’s to no avail she says ,that is the correct does I CARNT GIVE YOU ANYMORE😱 with me luck it wouldn’t show too bad ,I’m not too good with marker’s 😵‍💫 All the best thx 🍀🍀🍀

[piglette in reply to Ronzy]

What is wrong with these people? If they read the guidelines it says up to 25mg not 15mg as a starter dose.

[Ronzy in reply to piglette]

Absolutely,now finally got it upt to 30 mg what a relief 🤪

[DorsetLady PMRGCAuk volunteer in reply to Ronzy]

Good, let’s hope that sorts it out!