Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,610 members • 38,757 posts

All posts for January 2022

Peculiar electrical experience

My Rheumy put me onto Leflunomide instead of Prednisolone a few years ago. During Lock-down I had a sudden recurrence of PMR symptoms but couldn't obtain help...

My Rheumy put me onto Leflunomide instead of Prednisolone a few years ago. Duri...

43tripandskip

•2 years ago

19 Replies

Hi I need help

Hi I am finding not sleeping a problem I might get 3 hours a night .Can anyone help me what are you doing to fix the problem.I started out on 40 mg on November...

Hi I am finding not sleeping a problem I might get 3 hours a night .Can anyone h...

Shortfoot

•2 years ago

13 Replies

Actemra and positive covid

Has anyone tested positive for COVID whilst on Actemra inj.? If so is it o.k to carry on with inj. or should you stop until all clear.

Has anyone tested positive for COVID whilst on Actemra inj.? If so is it o.k to ...

Petcut

•2 years ago

11 Replies

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Taping

Hi.its me again,was just wondering when I start,tapering,been on 10mgs now for 2 nearly 3 months,so shall I start now and what should I go to.thank you.

Hi.its me again,was just wondering when I start,tapering,been on 10mgs now for 2...

Flosy

•2 years ago

3 Replies

A lump near the collarbone

Hi all I’ve had this fatty looking lump near my collarbone I thought it was from the prednisolone but the nurse has said it’s not has anyone ever had this ?

Hi all I’ve had this fatty looking lump near my collarbone I thought it was from...

Rottsuzi

•2 years ago

28 Replies

Long Covid and Chronic Fatigue Syndrome/ME

I’d like to share a very interesting article about research being done on the similarities between long Covid and ME/CFS. This is an article published by Radio...

I’d like to share a very interesting article about research being done on the si...

bright-horizon

•2 years ago

12 Replies

A happy ride with Prednisone!

Hello Skier 321, I went on Prednisone almost exactly 1 year ago after a P.M.R. diagnosis. I started using between 15 and 20mgs and then after a month when...

Hello Skier 321, I went on Prednisone almost exactly 1 year ago after a P.M.R. ...

Henley2010

•2 years ago

12 Replies

Basophil Count

Hi following a blood test that my doctor passed as no further action I noticed that my Basophil result was classed as above range at 0.14x10 9/L(0.02-0.1) any...

Hi following a blood test that my doctor passed as no further action I noticed t...

Iamfedup

•2 years ago

7 Replies

GCA, PMR, now vasculitis

Hi folks! Diagnosed with GCA in 2015, with PMR in 2021, and now they tell me I have Vasculitis. I am to have a kidney biopsy soon and this is all too...

Hi folks! Diagnosed with GCA in 2015, with PMR in 2021, and now they tell me I ...

GinnyMa

•2 years ago

5 Replies

Hmm, What be Going on??

Think IT is having a hiccup or three I seem to be getting all the earlier e-mail replies and alerts sent to me again.

Think IT is having a hiccup or three I seem to be getting all the earlier e-mail...

Bcol

•2 years ago

27 Replies

Is there any information I might access about diet and GCA and PMR? Can someone suggest a reference?

I live in Canada and am new to the group. It has already been a help to me. I was diagnosed this past November, but had GCA 12 years ago. There is much new...

I live in Canada and am new to the group. It has already been a help to me. I w...

SBJwalk

•2 years ago

5 Replies

Increase - now decrease

I was diagnosed in March 2020, started on 15mg and have slowly decreased dosage. Over the past few months I have noticed that a few weeks into a drop in dose...

I was diagnosed in March 2020, started on 15mg and have slowly decreased dosage....

Burroughs123

•2 years ago

5 Replies

Update on my health

Good morning from London, I’ve written in the past about my PMR journey. As a recap, I can’t take prednisolone (due to side effects) so have not been taking...

Good morning from London, I’ve written in the past about my PMR journey. As a re...

Smallstepsforward

•2 years ago

22 Replies

A Thought

Just had an interesting "chat" with OH about booster jabs. I said that in reality I hadn't had a booster jab yet, end of Jan hopefully, she said.... won't go...

Just had an interesting "chat" with OH about booster jabs. I said that in realit...

Bcol

•2 years ago

23 Replies

Test other than template biopsy to confirm gca

Wishing everyone happy and healthy new year 🙏🙏 My , wife could not do template biopsy but she have symptom similar to gca headache, pressure on eye and ear...

Wishing everyone happy and healthy new year 🙏🙏 My , wife could not do template...

Rajuguide

•2 years ago

3 Replies

Kafir,

I have been taking 20mg Omeprazole since March 2019 but I find it upsets my stomach, whilst it's not terrible, it is draining having to visit the toilet 3 or 4...

I have been taking 20mg Omeprazole since March 2019 but I find it upsets my stom...

paintpots

•2 years ago

21 Replies

Foreign travel and time zones

I am debating a short trip away (under a week) but the time change is 4 hours back, how do people deal with their Preds times? Do you just carry on at the U.K....

I am debating a short trip away (under a week) but the time change is 4 hours ba...

Billiebobdog

•2 years ago

6 Replies

Please recommend me a dose!

Hi. Been on steroids for pmr for 4.5 years. Was down to 3.5mg and pain free. Two weeks after reducing to 3mg the neck ache started to return. This coincided...

Hi. Been on steroids for pmr for 4.5 years. Was down to 3.5mg and pain free. Two...

Jontie

•2 years ago

18 Replies

Steroid Taper Web Application

Hi there, I've been using this fantastic free app to work out my steroid tapers but am now finding it keeps crashing. Is anyone having the same experience? I...

Hi there, I've been using this fantastic free app to work out my steroid tapers ...

Elizamcc

•2 years ago

10 Replies

Synacthen test

Hi everyone, Happy New Year. I’m pleased to say, I managed to stay at 0mg Pred over Christmas and am still there. I did have stinking cold which started on...

Hi everyone, Happy New Year. I’m pleased to say, I managed to stay at 0mg Pred...

Liby57

•2 years ago

45 Replies

Irritable bladder and Ad-Cal

Once again this forum has proved to be the BEST source of support and info! I have been suffering badly from almost constant stinging for months. Trying lots...

Once again this forum has proved to be the BEST source of support and info! I h...

Crochetgirl65_

•2 years ago

16 Replies

Knee bursitis

My PMR began with slight stiffness in hips and then progressed to shoulders etc. At the same time one knee developed bursitis which made walking difficult....

My PMR began with slight stiffness in hips and then progressed to shoulders etc...

Miserere

•2 years ago

19 Replies

Raised Potassium

I had bloods taken last week for nothing specific, fbc, thyroid function etc. I didn’t take much notice of what was requested . On Tuesday I had a call from my...

I had bloods taken last week for nothing specific, fbc, thyroid function etc. I ...

ParsnipSoup

•2 years ago

23 Replies

Prednisolone

Hi If I take pred at night will my side effects be easier to deal with because I’ll sleep through worse!

Hi If I take pred at night will my side effects be easier to deal with because I...

Uglow

•2 years ago

31 Replies

Any info gratefully received…..

Does having pmr increase infections. Not sure if it’s the Prednisilone that does that or if the condition itself that does that…. Thanks for being here. xxxx

Does having pmr increase infections. Not sure if it’s the Prednisilone that doe...

Fiddlemum

•2 years ago

5 Replies

Atorvastatin and PMR

Does anyone take Atorvastatin who has been diagnosed with PMR? I was diagnosed with PMR nine years ago. Couldn’t get below 3mg and have been put on a ‘...

Does anyone take Atorvastatin who has been diagnosed with PMR? I was diagnosed ...

wendyanne49

•2 years ago

13 Replies

An update - what happens next????

Some of you may recall my monstrous 3 part move with soon to be 100 year old mother and autistic adult son. Moving away from the multigenerational setting to...

Some of you may recall my monstrous 3 part move with soon to be 100 year old mot...

Poshdog

•2 years ago

20 Replies

Please don't post about your covid jabs and boosters.

We've had a few vaccination posts recently and while we understand that some of you want to be reassured about other people's reactions or to discuss aspects...

We've had a few vaccination posts recently and while we understand that some of ...

Fran_Benson

Partner•2 years ago

8 Replies

4th jab and all well

I received my fourth jab last week. It was the pfizer one like my other three and so far so good. Delighted to have further immunisation. Beethovenite

I received my fourth jab last week. It was the pfizer one like my other three ...

beethovenite

•2 years ago

6 Replies

Hi all 4th vaccine coming up

Hi all 4th vaccine coming up think it could be moderna and after reading a post from someone who said thy had reactions to it , anyone had a morderna and 3...

Hi all 4th vaccine coming up think it could be moderna and after reading a post ...

Harrywogan

•2 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2022

Peculiar electrical experience

Hi I need help

Actemra and positive covid

Taping

A lump near the collarbone

Long Covid and Chronic Fatigue Syndrome/ME

A happy ride with Prednisone!

Basophil Count

GCA, PMR, now vasculitis

Hmm, What be Going on??

Is there any information I might access about diet and GCA and PMR? Can someone suggest a reference?

Increase - now decrease

Update on my health

A Thought

Test other than template biopsy to confirm gca

Kafir,

Foreign travel and time zones

Please recommend me a dose!

Steroid Taper Web Application

Synacthen test

Irritable bladder and Ad-Cal

Knee bursitis

Raised Potassium

Prednisolone

Any info gratefully received…..

Atorvastatin and PMR

An update - what happens next????

Please don't post about your covid jabs and boosters.

4th jab and all well

Hi all 4th vaccine coming up

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