Irritable bladder and Ad-Cal

[Crochetgirl65_]

Once again this forum has proved to be the BEST source of support and info! I have been suffering badly from almost constant stinging for months. Trying lots of different treatments, nothing worked. Felt exhausted as I was getting little sleep. Saw the post about calcium supplements and stopped taking them. Within a few days much better and after a week plus irritation almost gone!!! Thank you so much everyone for dicussing the topic on here i would never have made the connection otherwise,

[SnazzyD]

Brilliant! I cut down the dose and went up until I found a level that didn’t irritate. Or you can go for food input.

[Crochetgirl65_ in reply to SnazzyD]

I am lucky enough to be down to 2mg pred starting journey to 1.5 this week so I am hoping that coming off ad-cal will be ok. I have started having yoghurt 'smoothies' for lunch and I have porridge with milk for breakfast. Also eat a lot of sweet potato, butternut squash, broccoli, spinach and oily fish. I am still taking a high dose Vit D everyday so I am hoping that will be enough. Any other suggestions gratefully received 👍 Thanks so much for your reply,

[PMRpro Ambassador in reply to Crochetgirl65_]

Much the same as I do - gave up the calcium a couple of years ago at least and rely on dietary calcium and 4000 IU vit D - at the last dexascan it seemed to be OK

[Hidden in reply to PMRpro]

I have Interstitial Cystitis; is this caused by calcium too? I don’t take any supplements except cod liver oil and vitamin D and my diet is full of dairy.

[PMRpro Ambassador in reply to Hidden]

Not usually - it is a condition in its own right. Calcium supplements can make it worse but there is also medication to calm it down when that isn't enough.

[Hidden in reply to PMRpro]

Thank you

[York54 in reply to PMRpro]

Me too but I take 2000 IU vitamin D .

[SheffieldJane]

I had the same experience. If I get cystitis symptoms now I find that Mannose - D deals with it. I do think that long term Pred can also cause some sensitivity of the mucus membranes. I stopped taking Adcal but have a calcium rich diet and take high dose vitamin D.

[Crochetgirl65_ in reply to SheffieldJane]

Is it ok to take with pred?

[PMRpro Ambassador in reply to Crochetgirl65_]

Yes - it is just a form of sugar that encourages the bacteria to be flushed outl

[Crochetgirl65_ in reply to PMRpro]

Fantastic! Thank you so much!

[SheffieldJane in reply to Crochetgirl65_]

It works very quickly. Buy the powdered form. The tablets are ridiculously huge. Great stuff. Perfectly safe.

[Blearyeyed in reply to SheffieldJane]

And it can be beneficial for men as well as women . My Uncle took it along with cranberry supplements because of recurrent UTIs associated with his prostate issues , it worked well for him. His D Mannose was prescribed by the bladder clinic.

[PuttyPenguin in reply to SheffieldJane]

you can get smaller tablets now from Sweetcures

[Blearyeyed in reply to Crochetgirl65_]

Yes , I'm another D- Mannose user since having this years awful three month issue. I also drink a cranberry and apple juice each day and plenty of water. When I was on steroids I had a similar problem with recurring bladder and kidney infections , I reduced the calcium and increased calcium in my diet until , like Pro , I did not need the Calcium supplement ( above what I get in my diet and daily vitamin/ mineral tablet ) but I kept up the Vitamin D , and will take the extra Vit D long term , but that is because of my other health issues rather than my GCA/ PMR which is in remission.

[TheMoaningViolet]

Hi, I had the same problem, but I switched to calcium citrate and that fixed it.