Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,456 members • 38,372 posts

All posts for January 2022

CGA possibility???what to do

Hi need advice. Had a flare and now on 12.5 for about 10 days and last night started to get pain in jaw - somewhat uncomfortable when chewing. Unable to see...

Hi need advice. Had a flare and now on 12.5 for about 10 days and last night st...

Artwatercolour

•2 years ago

22 Replies

Hi, my name is Diane

Hello to the community. I read about this and am eager to share and to learn from others. Experience is a great teacher.

Hello to the community. I read about this and am eager to share and to learn f...

Messenger3

•2 years ago

11 Replies

Newby

Hi everyone, I’m new to the group and look forward to sharing with you

Lassie1234

•2 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Fourth Covid Vaccine

Well had my fourth vaccine on New Years Eve and ended up in bed for 2.5 days. This time I had the Moderna vaccine and it knocked me sideways . Banging...

Well had my fourth vaccine on New Years Eve and ended up in bed for 2.5 days. Th...

Hollybee21

•2 years ago

59 Replies

COVID-19: guidance for people whose immune system means they are at higher risk

I thought some of you may be interested....

piglette

•2 years ago

9 Replies

This is just a test- sorry folks

Just asked to test if I can post anything xx

Jackoh

•2 years ago

11 Replies

Am I taking enough Predisolone?

SusanLynne. Hi I'm new to this site. I've been taking Predisolone for four years this March. My dosage has gone up and down like a rollercoaster. One...

SusanLynne. Hi I'm new to this site. I've been taking Predisolone for four yea...

Archiethedog

•2 years ago

5 Replies

Alondronic Acid with PMR

Hello everyone, just wanted to ask if anyone is taking alondronic acid and what are your experiences of it? I am bit worried about taking it as pharmacist has...

Hello everyone, just wanted to ask if anyone is taking alondronic acid and what ...

Cler

•2 years ago

35 Replies

Positive result

Good start to the year ! My PCR test came back positive yesterday. I have a rotten tickly cough , runny nose and a sore throat. My symptoms began on New Years...

Good start to the year ! My PCR test came back positive yesterday. I have a rott...

York54

•2 years ago

61 Replies

More Prednisone Please

I have been on 15mg, a very strict dosage from my irritating rheumatologist. I bore the pain, but it grew and grew in my shoulders, arms, sides and legs until...

I have been on 15mg, a very strict dosage from my irritating rheumatologist. I ...

Trevgrrl

•2 years ago

9 Replies

PMR symptoms have flared since the booster

I had the booster on fifth of November and have had increased pain and tiredness. Rheumatologist recommended not upping my dose of Pred due to omicron high...

I had the booster on fifth of November and have had increased pain and tiredness...

Bobbikins

•2 years ago

11 Replies

2022

I would like to wish for everybody a Happy, healthy, prosperous New Year, Have lots of blessings, joy, peace, and fun in 2022!

I would like to wish for everybody a Happy, healthy, prosperous New Year, Have l...

Panni

•2 years ago

1 Reply

Any help

Any. Pain relief tips for chronic arthritis pain, anything is appreciated

Annabellastella

•2 years ago

6 Replies

Tapering and Covid shots

Hello this my first post i started at 40 mg of prednisone in June for my pmr reduced down to 8 mg then relapsed went up to 15 and am now at 13.5 and will...

Hello this my first post i started at 40 mg of prednisone in June for my pmr red...

Skier321

•2 years ago

5 Replies

Breathless and feeling off. PMR symptom? Also coated Prednisolone with omeprazole.

Three years in and managed to reduce to 7.5 mg of prednisolone, using very slow drops of 0.5 over several weeks. I have had some stiffness after using muscles...

Three years in and managed to reduce to 7.5 mg of prednisolone, using very slow ...

Ebiker

•2 years ago

23 Replies

4th attempt!

Dear fellow sufferers and particularly our expert PMR Pro, I started my most recent taper to 7mg of prednisolone on Christmas Day but similar to my previous...

Dear fellow sufferers and particularly our expert PMR Pro, I started my most re...

AnniesRyder5

•2 years ago

23 Replies

Pain control using codine & paracetamol

Happy new year to everyone. I’m looking for some advice please. I was diagnosed in September 2019 like most I started at 15mg of prednisone .. that went to...

Happy new year to everyone. I’m looking for some advice please. I was diagnose...

Adelee1961

•2 years ago

21 Replies

PMR diagnosis , Pred, and slightly high CK maybe statin induced pain.

Hi, Misseyj55 here , Jo for short. I've always had a tendency to be in pain in the places people complain with PMR. over the last 6 months I resorted to taking...

Hi, Misseyj55 here , Jo for short. I've always had a tendency to be in pain in t...

Misseyj55

•2 years ago

6 Replies

afternoon

I'm taking 10.05 mgs pred at 3 am.I have covid and it's causing meto sleep throughmydose timeToday I took my 3pm dose at 615 now I don't know what to do at...

I'm taking 10.05 mgs pred at 3 am.I have covid and it's causing meto sleep thro...

ancientprune

•2 years ago

5 Replies

Hearing loss on right side.

I am currently tapering my prednisolone dose from 15mls. to 7mls. I was speaking to my brother in Florida Christmas day and I noticed I was having trouble...

I am currently tapering my prednisolone dose from 15mls. to 7mls. I was speakin...

pomeranion

•2 years ago

19 Replies

Upping predisolone with pneumonia

I came back from abroad on the 30th of Dec feeling really ill. Went to drop in centre and have pneumonia. Given a 3 day course of antibiotics and told to up...

I came back from abroad on the 30th of Dec feeling really ill. Went to drop in c...

Chia123

•2 years ago

12 Replies

Blood tests negative

Hello again friends, and Happy New Year! I am diagnosed with PMR by symptoms only - all blood work including ESR and CRP are negative. Just wondering if anyone...

Hello again friends, and Happy New Year! I am diagnosed with PMR by symptoms onl...

SapoKiko

•2 years ago

8 Replies

Does anyone else have normal blood tests (sed rate/crp)and still have pain???

I have been on prednisone since October 2020.(20 mgs) I am now tapered down to 3 mgs a day. blood tests are normal but pain is horrible.

I have been on prednisone since October 2020.(20 mgs) I am now tapered down to ...

Penny1955

•2 years ago

35 Replies

Red eye and GCA

I have had a red eye for 3 days. No pain just uncomfortable and not affectiing sight. I have had GCA diagnosed since March (second time around) and now on 6 mg...

I have had a red eye for 3 days. No pain just uncomfortable and not affectiing s...

MaryHelen2

•2 years ago

16 Replies

Grumpy me

I have a lovely cleaner who comes twice a week but she absolutely steadfastly refuses to have the vaccine. To be fair to her, the way her life is if it will go...

I have a lovely cleaner who comes twice a week but she absolutely steadfastly re...

Billiebobdog

•2 years ago

43 Replies

Want to start tapering again but am also on Naproxen... what do I do first?

Before Christmas, I had a flare. I was on 7mg of steroids, 10mg of methotrexate and was given 2 Naproxen a day to try and help the pain in my hands and wrists....

Before Christmas, I had a flare. I was on 7mg of steroids, 10mg of methotrexate ...

Mamamia21

•2 years ago

29 Replies

Don't rely on 119 giving postal collection times. My priority test not collected for 3 days

Positive on 26/12, no courier available. Post on Monday I was told despite telling them that my local box would not be collected for the bank holidays....

Positive on 26/12, no courier available. Post on Monday I was told despite telli...

Puddles51

•2 years ago

14 Replies

Question re low dose Pred

Has anyone had fuzzy head or thumping head, not painful when getting to a low dose. Sweating for no reason I am on 3mg going to 2.5 but not sure why I don’t...

Has anyone had fuzzy head or thumping head, not painful when getting to a low do...

Suffererc

•2 years ago

19 Replies

New to the diagnosis

I have only been diagnosed a few weeks and on Prednisone for 2+ weeks. When tapering do you still have some of the am pain always or do you have totally pain...

I have only been diagnosed a few weeks and on Prednisone for 2+ weeks. When tap...

Crazyhorsewoman

•2 years ago

5 Replies

Happy New Year

A very happy New Year to everyone. Wishing the best for all

Koalajane

•2 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2022

CGA possibility???what to do

Hi, my name is Diane

Newby

Fourth Covid Vaccine

COVID-19: guidance for people whose immune system means they are at higher risk

This is just a test- sorry folks

Am I taking enough Predisolone?

Alondronic Acid with PMR

Positive result

More Prednisone Please

PMR symptoms have flared since the booster

2022

Any help

Tapering and Covid shots

Breathless and feeling off. PMR symptom? Also coated Prednisolone with omeprazole.

4th attempt!

Pain control using codine & paracetamol

PMR diagnosis , Pred, and slightly high CK maybe statin induced pain.

afternoon

Hearing loss on right side.

Upping predisolone with pneumonia

Blood tests negative

Does anyone else have normal blood tests (sed rate/crp)and still have pain???

Red eye and GCA

Grumpy me

Want to start tapering again but am also on Naproxen... what do I do first?

Don't rely on 119 giving postal collection times. My priority test not collected for 3 days

Question re low dose Pred

New to the diagnosis

Happy New Year

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive