This website is New Zealand based, but I think it is really good. The veterans on this site may already know it. There is a link towards the bottom for PMR too, which has a nice list of pred side effects. bpac.org.nz/bpj/2013/june/a...
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Broseley
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Extra cranial (LVV) is mentioned, but article is over 8 years old, and if I think back to when I was diagnosed, not sure that term was used as much as it is now. Although it was obviously about.
This is useful confirmation Broseley. The taper sounds challenging - it must be flexible and symptom led. As someone with GCA/LVV I am also concerned that I didn’t present with typical cranial symptoms. My diagnosis was achieved via specialist ultrasound scan, abnormal cells being found in my left armpit.It is useful to read the results of NZ research, thanks for sharing!
I have it bookmarked and have used it quite a bit in the past - but as it warns at the top, over years old and a bit dated. You might be surprised how much has happened just in the last 5 years.
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