For any new people on this forum.

[Estellemac]

Can you relate to the persons journey?

onlinelibrary.wiley.com/doi...

[Longtimer]

Interesting, lots sound very familiar....love the description of taking the "devil's tic tacs"........

[PMRpro Ambassador]

Good one I think!

[tangocharlie]

Good article, I share his views about how every individual is different and treatment and dose of pred needs to be a two-way dialogue with doctors to gt good quality of life

[Longtimer in reply to tangocharlie]

Yes, something we have all known for years....but do they listen.....no....

[Bcol]

Really good article

[Viv54]

Yes i can !! So close to home in so many ways !

[Estellemac]

No need to apologise your reply will help others x

[bBarnabus]

Loved the article. I will forward it generously

[AyJayBass]

I joined the Facebook group referred to in the article at about the same time as I joined this group, The contrast between the groups is stark. Here we get good reasoned, reliable advice from very knowledgeable people. On the FB group you see some posts advocating downright dangerous things. I think it could be better moderated but it is a very large group and it must be a huge task to keep on top of all of the posts.

[PMRpro Ambassador in reply to AyJayBass]

No walk in the park here either!!!!

[Bcol in reply to AyJayBass]

I briefly joined this group after reading the article, then left it as equally quickly.

[Sharitone]

Good one. So nice to be reminded that patients are allowed to be educated and have brains.

[Jonimoroni]

this is a really good report on living with PMR and corticosteroids - thanks for sharing it!