Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,027 posts

All posts for November 2021

Covid

If you get COVID with polymyalgia on prednisone what can you expect

Uglow

•3 years ago

3 Replies

Leflunomide concern

Anyone taking Leflunomide and experiencing extreme weakness? I have had weakness and dizziness a couple of times now and I have notified my GP and...

Anyone taking Leflunomide and experiencing extreme weakness? I have had weaknes...

Alebeau

•3 years ago

11 Replies

Covid Vaccine information Via JCVI

I am posting this for purely information relating to the immunosuppressed and Covid vaccination, it is a letter I received today from the Hospital. " Please...

I am posting this for purely information relating to the immunosuppressed and Co...

AncientMariner

•3 years ago

9 Replies

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How long do dissolvable stitches take to dissolve?

I had my temporal biopsy 2 months ago. I was told the stitches would dissolve, but they're still all there and I find myself fiddling with them! Shouldn't they...

I had my temporal biopsy 2 months ago. I was told the stitches would dissolve, b...

Broseley

•3 years ago

9 Replies

Methotrexate study to be carried out

"About 1.3 million people in the UK are on methotrexate........ A previous study from Korea showed that a fortnight's break from methotrexate immediately after...

"About 1.3 million people in the UK are on methotrexate........ A previous study...

ignatz

•3 years ago

2 Replies

Ored

Do I need to increase pred anyone

Uglow

•3 years ago

6 Replies

Sorry also

Does anyone feel like they on another planet. I feel stoned and not taken anything. Fuzzy head blurred vision on snd off, hot, generally rubbish

Does anyone feel like they on another planet. I feel stoned and not taken anythi...

Uglow

•3 years ago

20 Replies

Tooth extraction

Hi I did write this post a few days ago but think it might have gone astray, probably my fault, so here goes and if it has appeared somewhere here in the last...

Hi I did write this post a few days ago but think it might have gone astray, pro...

Dukeyears

•3 years ago

15 Replies

Flare or not

I reduced prednisone on 2/11 now 11:11 and my hips don’t lie lol I’m not sure if I’m having a flare or just in pain. But painkillers not shifting. I hate the...

I reduced prednisone on 2/11 now 11:11 and my hips don’t lie lol I’m not sure if...

Uglow

•3 years ago

Be the first to reply

Delayed appointment. How are we meant to cope?

I wrote before about my difficulties in getting a hospital appointment. My last telephone appointment was in May but nobody called me. It was only a month...

I wrote before about my difficulties in getting a hospital appointment. My last ...

Marijo1951

•3 years ago

13 Replies

CRP levels “ off the scale “

Hi ! Have managed to reduce to 5mgs of Prednisolone from 20mgs prescribed March 2020 . Had a recent blood test done and hip and lower back X-ray because of...

Hi ! Have managed to reduce to 5mgs of Prednisolone from 20mgs prescribed March ...

Geordieland

•3 years ago

14 Replies

Waving white flag

As some of you may know I have a 99 year old mother and a 44 year old autistic son and have recently achieved move to Wiltshire. The caring falls on me as an...

As some of you may know I have a 99 year old mother and a 44 year old autistic s...

Poshdog

•3 years ago

99 Replies

Back up to 40 mg pred

I wrote here how I was down to 10mg pred in 4 months. You all said that was too fast and I didn’t want to believe you. My headaches were coming back so...

I wrote here how I was down to 10mg pred in 4 months. You all said that was too ...

nallufl24

•3 years ago

22 Replies

Helpful advice needed

Ok so I need more help. 14 months into my PMR journey and was down to 5.5 mg of prednisalone a day. However the last couple of weeks I have been having some...

Ok so I need more help. 14 months into my PMR journey and was down to 5.5 mg of ...

Deneez99

•3 years ago

6 Replies

Please vote for us to win £1,000

Hello everyone, we really need your help to be awarded a £1,000 grant in the Ecclesiastical 12 Days of Giving campaign they run each December. With everyone's...

Hello everyone, we really need your help to be awarded a £1,000 grant in the Ecc...

Fran_Benson

Partner•3 years ago

59 Replies

High risk of developing type 2 diabetes

Hi. I need some reassurance. I was diagnosed in mid-July with PMR and was put on 15mgs Pred. My doctor (who I like and who listens to what I want) kept me on...

Hi. I need some reassurance. I was diagnosed in mid-July with PMR and was put ...

jinoadby

•3 years ago

14 Replies

Cutting coated Pred tablets.

Is there any reason for saying you should not cut coated Pred tablets? My pill cutter will chop them in half. So there must be another reason for not doing so.

Is there any reason for saying you should not cut coated Pred tablets? My pill c...

HalleysComet

•3 years ago

16 Replies

Chance to participate: Barriers for vaccination - research study for immunosuppressed patients with inflammatory condtions.

As you know I always like to support any research, and Paul Howard at LupusUK has found another opportunity:...

As you know I always like to support any research, and Paul Howard at LupusUK ha...

PMRpro

Ambassador•3 years ago

14 Replies

Update ... flare has nicely abated...not on methotrexate YET! what do I do when medical insurance stops my cover for PMR?

Sorry for long post ... I took jinasc's advice and went up to 15mg Pred (rather than 12.5 for 2 weeks suggested by rheumie) for 5 days, then dropped by 10% to...

Sorry for long post ... I took jinasc's advice and went up to 15mg Pred (rather...

Sufferinginsilence

•3 years ago

27 Replies

Do foods contribute to the disease lasting?

I am on 5.5 years with prednisone for pmr and get rather depressed. My active life has changed significantly. My husband has been my savior but he is wearing...

I am on 5.5 years with prednisone for pmr and get rather depressed. My active l...

Ronswife

•3 years ago

11 Replies

Help!!!

Damn PMR. I am due to get Moderna booster next week but am reading it is not a good idea if I am on Prednisone. Won't be effective. I will be tapered to 12 mg...

Damn PMR. I am due to get Moderna booster next week but am reading it is not a g...

Logic

•3 years ago

10 Replies

Tail wagging the dog

Phoned GP surgery to advise that despite emails and telephone calls my repeat prescription is not providing adequate medication to last until the next repeat...

Phoned GP surgery to advise that despite emails and telephone calls my repeat pr...

Singr

•3 years ago

40 Replies

Update....Post-Immunization/booster. Covid over. PMR Flare Blazing. YIPPEE! .... .

Hi folks, Update on my Covid infection... I had two Pfizer injections, then the Booster as it came available, and my annual flu jab. No fever with Covid...

Hi folks, Update on my Covid infection... I had two Pfizer injections, then the ...

Purplecrow

•3 years ago

18 Replies

Low neutrophils after vaccinations

Hi I'm new here. I've had PMR since the Autumn of 2019, diagnosed in January 2020, then GCA diagnosed in February 2020. I had a blood test which was by...

Hi I'm new here. I've had PMR since the Autumn of 2019, diagnosed in January 20...

PastelsinArt

•3 years ago

2 Replies

Can methotrexate cause muscle pain

I’ve been taking methotrexate 10mg once a week for 5 months now but the last 2 months my muscles all over my body have been so painful feel like I have flu...

I’ve been taking methotrexate 10mg once a week for 5 months now but the last 2 m...

Rachyroo74

•3 years ago

8 Replies

The too young saga continues

Hi. Seen rheumatologist again. Asked how I am on her horrible taper of 2.5 a week. Said I can tell I'm stiff and aching again. she said I'm too young at 51...

Hi. Seen rheumatologist again. Asked how I am on her horrible taper of 2.5 a we...

Buttonshutton

•3 years ago

24 Replies

Help! Do I have to increase Pred?

A few weeks ago I was so pleased with myself as I’d got down to 4 and a half mg of pred and feeling good and pain free. Started to get sore around my shoulders...

A few weeks ago I was so pleased with myself as I’d got down to 4 and a half mg ...

Loyd

•3 years ago

5 Replies

I cannot blame the PMR

Saw another ENT doctor yesterday (never the top dog) and they had the results of my MRI. My sudden hearing loss was not the result of my autoimmune issues -...

Saw another ENT doctor yesterday (never the top dog) and they had the results of...

whitefishbay

•3 years ago

38 Replies

Vitamin K2 Mk7

Good morning. I have just ordered this as I have learned from this site that I should be taking this with AdCal to help the absorption of the calcium into my...

Good morning. I have just ordered this as I have learned from this site that I s...

Retallack

•3 years ago

16 Replies

Pre

Hi.i am on 10mg,on 16th,go down to 10mg.,then on 1st Dec down to 7.5mg.just want to know how I get 7.5mg.havent had to take that dose before.thanks.

Hi.i am on 10mg,on 16th,go down to 10mg.,then on 1st Dec down to 7.5mg.just want...

Flosy

•3 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2021

Covid

Leflunomide concern

Covid Vaccine information Via JCVI

How long do dissolvable stitches take to dissolve?

Methotrexate study to be carried out

Ored

Sorry also

Tooth extraction

Flare or not

Delayed appointment. How are we meant to cope?

CRP levels “ off the scale “

Waving white flag

Back up to 40 mg pred

Helpful advice needed

Please vote for us to win £1,000

High risk of developing type 2 diabetes

Cutting coated Pred tablets.

Chance to participate: Barriers for vaccination - research study for immunosuppressed patients with inflammatory condtions.

Update ... flare has nicely abated...not on methotrexate YET! what do I do when medical insurance stops my cover for PMR?

Do foods contribute to the disease lasting?

Help!!!

Tail wagging the dog

Update....Post-Immunization/booster. Covid over. PMR Flare Blazing. YIPPEE! .... .

Low neutrophils after vaccinations

Can methotrexate cause muscle pain

The too young saga continues

Help! Do I have to increase Pred?

I cannot blame the PMR

Vitamin K2 Mk7

Pre

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