Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,614 members • 38,761 posts

All posts for October 2021

Carpel Tunnel or PMR

Hello, I have been able to reduce my predisone to 5 1/2 MG a day. I take 1 1/2 mg am and 4mg at night. Recently I have had pain and numbness in my right wrist...

Hello, I have been able to reduce my predisone to 5 1/2 MG a day. I take 1 1/2 m...

Plains

•3 years ago

6 Replies

PMR or is it?

Hello, I am new to this forum but have had PMR for five years now. Have been doing quite well on 7mg of prednisolone for a while now. Five years ago I was so...

Hello, I am new to this forum but have had PMR for five years now. Have been do...

Bleakley1

•3 years ago

9 Replies

PMR Survey to help make life better for people with PMR

Dr Sarah Mackie, consultant rheumatologist at Leeds University hospital, Lorna Neil and Margaret Grover (both from the PMR community) have created an online...

Dr Sarah Mackie, consultant rheumatologist at Leeds University hospital, Lorna N...

Fran_Benson

Partner•3 years ago

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Off Pred - cortisol level high - feeling awful

Hi All . I’m back looking for your wisdom ! 😍 I was weaned off steroids for PET scan which showed minimal inflamm in aorta so my rheumy wants to keep me off...

Hi All . I’m back looking for your wisdom ! 😍 I was weaned off steroids for PET...

Ballywilliam

•3 years ago

7 Replies

Just a note to say thanks

After six and a half years, my Rheumy tells me that the PMR is gone, and true to say, virtually all the pains around my neck and shoulders have diminished. CRP...

After six and a half years, my Rheumy tells me that the PMR is gone, and true to...

Hidden

•3 years ago

10 Replies

Steroid sparer

What is meant by "steroid sparer"? My rheumy wants me to stay on Leflunomide, and in fact put the dose up recently when my CPR went up. When I ask him what it...

What is meant by "steroid sparer"? My rheumy wants me to stay on Leflunomide, a...

Maryis80

•3 years ago

10 Replies

My pump

I use this everyday for a hour for my lymph problem in my right foot and lower leg! It is really helping me!

I use this everyday for a hour for my lymph problem in my right foot and lower l...

calicojoy41

•3 years ago

7 Replies

Hip pain , pelvic muscle aching , knees and thighs

Hello everyone I am now down to 1 mg of prednisone , it’s been one month that I’ve been having aching thighs and hips especially at night when I’m sleeping the...

Hello everyone I am now down to 1 mg of prednisone , it’s been one month that I’...

Athena2020

•3 years ago

14 Replies

Pain control and depression

I have had PMR for 10 years. I am on 5 mg of Prednisone. I haven't ever gone into complete remission. My symptoms now are classic- hip and shoulder pain...

I have had PMR for 10 years. I am on 5 mg of Prednisone. I haven't ever gone i...

Judyroo

•3 years ago

12 Replies

Hot Flashes

What causes hot flashes when tapering to lower doses of prednisone. They are constant.

What causes hot flashes when tapering to lower doses of prednisone. They are con...

Lauren103

•3 years ago

5 Replies

Diagnosed with PMR late Sept 2021

I was diagnosed with PMR about a month ago. I took 15 gm of Prednisolone for three weeks, and started to reduce this to 12.5gm 2 days ago. Initially the pain...

I was diagnosed with PMR about a month ago. I took 15 gm of Prednisolone for thr...

Maestegmamma

•3 years ago

7 Replies

15mg

I’m still on 15mg pred. And slowly tapering. I was going to go down to 13 next week Iv been on 15for 2 weeks. Is that to much down ? Also is there an mg dose...

I’m still on 15mg pred. And slowly tapering. I was going to go down to 13 next w...

Uglow

•3 years ago

4 Replies

Socialising??

I just wondered how other people feel about meeting up with others now. My son in law's family are keen to have a Christmas gathering in a rented property, as...

I just wondered how other people feel about meeting up with others now. My son i...

Melti

•3 years ago

40 Replies

Dentist

I have dental work under sedation do I have to adjust prednisone please

Uglow

•3 years ago

4 Replies

Can anyone explain to me what the PURPOSE of taking prednisone is, as you understand it?

Can anyone explain to me what the PURPOSE of taking prednisone is, as you understand it? Is it to “cure” PMR (stop the processes that cause it) or to eliminate...

Can anyone explain to me what the PURPOSE of taking prednisone is, as you unders...

emmamom

•3 years ago

9 Replies

High CRP but GP says ok

Two weeks ago I began to feel ill, bad stomach and back pain. Lay on sofa gently moaning to my dog’s bewilderment. I took a urine sample to surgery on 8th...

Two weeks ago I began to feel ill, bad stomach and back pain. Lay on sofa gently...

Hirondelle

•3 years ago

27 Replies

I think I’m having a flare but unsure what to do

I was diagnosed with PMR in August 2020. Started on 15mg Pred and currently on 8mg with a few ups and downs on the way. I think I’m flaring on 8mg although...

I was diagnosed with PMR in August 2020. Started on 15mg Pred and currently on ...

Tiggy70

•3 years ago

25 Replies

Travel

We are due to fly to the UK on Tuesday 19th of this month. I am a little worried about my immunity at the moment. I saw the rheumatologist 2 days a go and my...

We are due to fly to the UK on Tuesday 19th of this month. I am a little worrie...

Mahler2

•3 years ago

69 Replies

Help I’m panicking

Currently on 2/3 mg of Prednisolone for PMR. Started with GCA 5 years ago then PMR about 2 years ago. Have had a prickly scalp the last week but thought...

Currently on 2/3 mg of Prednisolone for PMR. Started with GCA 5 years ago then P...

Susanmod

•3 years ago

17 Replies

Update to post last week

After all your kind advice, I made an appointment with a very respected rheumatologist for this coming Tuesday. I felt better just knowing I had taken positive...

After all your kind advice, I made an appointment with a very respected rheumato...

Janann25

•3 years ago

5 Replies

bursitis and PMR

Hallo everyone. As far as I can make out, I seem to have developed bursitis; is this a common effect of PMR? Does anyone know what I can do about it? It is, to...

Hallo everyone. As far as I can make out, I seem to have developed bursitis; is ...

humlies

•3 years ago

40 Replies

Return of PMR?

I was able to get down to 0 Prednisone after 28 months. It was my third attempt. Every was good until about a week ago (4 weeks since last Prednisone) when I...

I was able to get down to 0 Prednisone after 28 months. It was my third attempt....

Pmrat60

•3 years ago

9 Replies

Eczema returning as steroids for PMR reduce

I am finding that as my steroids for PMR reduce my scalp exczema/dermatitis is returning with a vengeance. Has anyone else experienced this and, if so, have...

I am finding that as my steroids for PMR reduce my scalp exczema/dermatitis is r...

Miserere

•3 years ago

20 Replies

Hand and feet pain - PMR or something else?

Hello all - I’ve had PMR for 3 years, down to 1mg from 15mg after a bumpy ride. Had low level hand and foot pain for over a year but just recently it has...

Hello all - I’ve had PMR for 3 years, down to 1mg from 15mg after a bumpy ride. ...

Bloomsbury123

•3 years ago

30 Replies

Approaching operation

I’m wondering what information I should make sure the surgeon and the team have before the operation. They will have my health record I’m assuming but at a...

I’m wondering what information I should make sure the surgeon and the team have ...

DDKRM

•3 years ago

19 Replies

Am I being too hasty?

Had my spinal epidural Oct 8th. Today woke with burning pain in both legs. Have tapered down to 4.5 mgs pred and was seemingly ok with pmr although my sight...

Had my spinal epidural Oct 8th. Today woke with burning pain in both legs. Hav...

merril

•3 years ago

16 Replies

Covid booster and flu jab

Has anyone had both jabs at the same time? I'm booked in for both tomorrow and just a little concerned. Thought I may as well be a little rough for one or two...

Has anyone had both jabs at the same time? I'm booked in for both tomorrow and j...

Yealink

•3 years ago

9 Replies

2 Yrs without Omeprazole- Now they want me start taking again!

I've had PMR for 7 years, during the last year I've got down to 4mgs Pred a day, split early morning and evening ( 2 + 2) My electronic request for tablets has...

I've had PMR for 7 years, during the last year I've got down to 4mgs Pred a day,...

DavidMF

•3 years ago

51 Replies

Waste of time

Had a meeting with Rhumy yesterday. Well I thought it was with Rhumy but it turned out it was with a nurse. Rhumy was next door so there was much toing and...

Had a meeting with Rhumy yesterday. Well I thought it was with Rhumy but it turn...

Flivoless

•3 years ago

5 Replies

Lymphedema evaluation

Today I had a lymphedema eval at therapy where I go twice a week for 'lymphatic drainage massage'....very gentle and very! Effective. I'm in my 10th week of...

Today I had a lymphedema eval at therapy where I go twice a week for 'lymphatic ...

Grammy80

•3 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2021

Carpel Tunnel or PMR

PMR or is it?

PMR Survey to help make life better for people with PMR

Off Pred - cortisol level high - feeling awful

Just a note to say thanks

Steroid sparer

My pump

Hip pain , pelvic muscle aching , knees and thighs

Pain control and depression

Hot Flashes

Diagnosed with PMR late Sept 2021

15mg

Socialising??

Dentist

Can anyone explain to me what the PURPOSE of taking prednisone is, as you understand it?

High CRP but GP says ok

I think I’m having a flare but unsure what to do

Travel

Help I’m panicking

Update to post last week

bursitis and PMR

Return of PMR?

Eczema returning as steroids for PMR reduce

Hand and feet pain - PMR or something else?

Approaching operation

Am I being too hasty?

Covid booster and flu jab

2 Yrs without Omeprazole- Now they want me start taking again!

Waste of time

Lymphedema evaluation

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