Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,595 members • 38,699 posts

All posts for October 2021

GCA returns

I have managed to keep off pred for about a year, but the dreaded GCA has returned. Now on 40 a day. My post is to ask you lovely people if it’s ok to have my...

I have managed to keep off pred for about a year, but the dreaded GCA has return...

Kyrenia

•3 years ago

6 Replies

Just curious on who has been on pred and Actemora for long periods of time and if you successfully got off it

Who on this forum has been on prednisone and Actemra for long periods of time and successfully got off it/them? I remember PREMPRO said 12 years and I am...

Who on this forum has been on prednisone and Actemra for long periods of time an...

luv2read

•3 years ago

6 Replies

Feels like thin ice....

Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye....

Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the ...

Grammy80

•3 years ago

29 Replies

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Weening off Pred after 5years. Naturally?

Has anyone on here ever tapered completely off Pred naturally without having to take anything else medically....

Has anyone on here ever tapered completely off Pred naturally without having to ...

Lesibz

•3 years ago

64 Replies

Family personal issue

Hi all, I was debating posting this on the depression or family part of this website but thought here would get a better response. I have PMR and my son cant...

Hi all, I was debating posting this on the depression or family part of this web...

Hidden

•3 years ago

30 Replies

Rheumatologist

I had a good appointment with my rheumatologist yesterday. He says I seem to be on track with pred. I am Cutting down 1 mg a month hopefully to help with side...

I had a good appointment with my rheumatologist yesterday. He says I seem to be ...

Uglow

•3 years ago

6 Replies

Technology - a source of massive stress

Anyone else having this issue? I’m 78, a former university art instructor, and am finding myself increasingly stressed when having to deal with technology to...

Anyone else having this issue? I’m 78, a former university art instructor, and a...

Mstiles

•3 years ago

100 Replies

Thank you for your advice re steroid level preventing surgery

Thanks to so many of you who replied to me on this. After contacting my knee surgeon he said achieving 5mg a day was 'not written in stone' and that he will...

Thanks to so many of you who replied to me on this. After contacting my knee su...

Pinkcuffs

•3 years ago

4 Replies

Update No 2

As I said in my previous post, I made an appointment to talk with a private rheumatologist and this took place yesterday. He had a very different attitude to...

As I said in my previous post, I made an appointment to talk with a private rheu...

Janann25

•3 years ago

15 Replies

Risks of osteoporosis while taking prednisone for nearly 2 years.

Hello everyone! I have been on prednisone for nearly 2 years now having been diagnosed with PMR in November 2019 and starting on 15 mg with a horrible GP who...

Hello everyone! I have been on prednisone for nearly 2 years now having been dia...

BPlady

•3 years ago

21 Replies

Immunocompromised and Active Virus Vaccine

I’m currently on 6.5mg/day prednisolone for PMR. My 6 week old granddaughter has just received her first Rotavirus live vaccine. Is there any risk for me...

I’m currently on 6.5mg/day prednisolone for PMR. My 6 week old granddaughter has...

Prahran

•3 years ago

5 Replies

Just had a Basal cortisol test

Follow to a question I asked a week or so ago , I have to wait till Nov to speak to Rheumy about my potential introduction to MTX. So I asked my GP for the...

Follow to a question I asked a week or so ago , I have to wait till Nov to speak...

Gaz227

•3 years ago

5 Replies

Think I am having a spike should I hold tight?

Hi all First time posting here but very impressed with the knowledge and support available. I was diagnosed with PMR in Feb this year but had symptoms going...

Hi all First time posting here but very impressed with the knowledge and suppor...

Kingswaywhite

•3 years ago

14 Replies

Low dose prednisolone

Hi there it might seem a silly question but it 5mg of prednisolone a relatively safe dose to be on long term please . Because of other meds I am On I darent...

Hi there it might seem a silly question but it 5mg of prednisolone a relatively...

Looby60

•3 years ago

25 Replies

Starting treatment for PMR

My doctor has agreed to a trial of pred to confirm my PMR diagnosis, any advice on taking it for the first time to get the maximum benefit. He is starting me...

My doctor has agreed to a trial of pred to confirm my PMR diagnosis, any advice ...

Booklover21

•3 years ago

10 Replies

Synacthan test results

I mentioned six weeks ago that my test had been cancelled and some asked me to keep up to date. I had my test last Tuesday and results today say suboptimal...

I mentioned six weeks ago that my test had been cancelled and some asked me to k...

Hidden

•3 years ago

25 Replies

Covid Booster

Is everyone who has had PMR or still has it taking the covid booster

Robinsnest72

•3 years ago

9 Replies

Is Methotrexate a route worth taking??

Does anyone actually have anything good to say about sparing agent Methotrexate. Is it it out of the frying pan and into the fire I wonder???

Does anyone actually have anything good to say about sparing agent Methotrexate....

Lesibz

•3 years ago

24 Replies

Positive talking to myself

Every morning I have chat with myself. I say what is PMR going to fling at me today. It maybe nothing it maybe a new pain but then I say you can deal with it....

Every morning I have chat with myself. I say what is PMR going to fling at me to...

Uglow

•3 years ago

10 Replies

Anyone else been called for third jab due to being immune suppressed? I was surprised as there was no previous prioritising of my condition!

And I get booster in six months too! Very happy! Just curious!

Pongo13

•3 years ago

11 Replies

Has anyone got any experience of taking beta blockers whilst on prednisolone?

I've been having problems with my heart rate staying high after exercise and not returning to normal for nearly 24 hours sometimes. I'm on predisolone for GCA...

I've been having problems with my heart rate staying high after exercise and not...

sequeluk

•3 years ago

54 Replies

Advice re decreasing

Diagnosed with pmr March 2020 started on 20mg prednisone and decreased to 6mg by January 2021.Then had flare up March 2021 so back to 12mg & decreased slowly &...

Diagnosed with pmr March 2020 started on 20mg prednisone and decreased to 6mg by...

Glyngin

•3 years ago

13 Replies

Can a head cold lasting 3 weeks+ cause PMR symptoms, and if so should I increase, 10.5, up to 15mgs, to stop inflammation getting embedded?

Thanks!

Predderman2020

•3 years ago

1 Reply

First taper

I was diagnosed with PMR by my GP and put on 20mg on 10 Sept 2021. This was increased to 30mg on 21 Sept as I was still in pain. Last Friday GP suggested first...

I was diagnosed with PMR by my GP and put on 20mg on 10 Sept 2021. This was incr...

Mirrordinghy

•3 years ago

22 Replies

Hyper & sleeplessness

Hi, I am down from 20 mg to 4mg of prednisone. I hear a lot of you talking about fatigue, but I am just the opposite- hyper! I will go a night, sometimes...

Hi, I am down from 20 mg to 4mg of prednisone. I hear a lot of you talking ab...

507Trail

•3 years ago

9 Replies

Stomach and bowel problems, are these due to the medication?

I have posted before about this subject but my GP now thinks I have become so anxious I've developed IBS! Has anyone here suffered from intermittent diarrhoea...

I have posted before about this subject but my GP now thinks I have become so an...

Karendeena

•3 years ago

5 Replies

Please don't post about covid boosters and vaccines - check out FAQs instead.

We're seeing a lot of posts about 3rd vaccines and boosters. Please, if you have a question about 3rd vaccine and boosters, please read the pinned post on this...

We're seeing a lot of posts about 3rd vaccines and boosters. Please, if you have...

Fran_Benson

Partner•3 years ago

1 Reply

Dorset Lady

Thank you for the article it is helpful. Others have mentioned low adrenal function. Results of my blood tests come back this week but I know without option my...

Thank you for the article it is helpful. Others have mentioned low adrenal funct...

cmToddy

•3 years ago

1 Reply

"Interesting" Couple of Weeks

Hi all, have missed you all recently with a couple of weeks of stress filled activity. Started off with a horrendous family problem, still not totally solved,...

Hi all, have missed you all recently with a couple of weeks of stress filled act...

Bcol

•3 years ago

11 Replies

Vaccine

Just to say I have had both jabs plus booster and so has my husband.my son 47ys also my son and family and my husband all caught covid luckily I've escaped as...

Just to say I have had both jabs plus booster and so has my husband.my son 47ys ...

castingcollectives

•3 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2021

GCA returns

Just curious on who has been on pred and Actemora for long periods of time and if you successfully got off it

Feels like thin ice....

Weening off Pred after 5years. Naturally?

Family personal issue

Rheumatologist

Technology - a source of massive stress

Thank you for your advice re steroid level preventing surgery

Update No 2

Risks of osteoporosis while taking prednisone for nearly 2 years.

Immunocompromised and Active Virus Vaccine

Just had a Basal cortisol test

Think I am having a spike should I hold tight?

Low dose prednisolone

Starting treatment for PMR

Synacthan test results

Covid Booster

Is Methotrexate a route worth taking??

Positive talking to myself

Anyone else been called for third jab due to being immune suppressed? I was surprised as there was no previous prioritising of my condition!

Has anyone got any experience of taking beta blockers whilst on prednisolone?

Advice re decreasing

Can a head cold lasting 3 weeks+ cause PMR symptoms, and if so should I increase, 10.5, up to 15mgs, to stop inflammation getting embedded?

First taper

Hyper & sleeplessness

Stomach and bowel problems, are these due to the medication?

Please don't post about covid boosters and vaccines - check out FAQs instead.

Dorset Lady

"Interesting" Couple of Weeks

Vaccine

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