Dr Sarah Mackie, consultant rheumatologist at Leeds University hospital, Lorna Neil and Margaret Grover (both from the PMR community) have created an online survey for people living with PMR in 2021. They want to come up with ideas to make things better for people with PMR.
If you'd like to take part, the survey should take no more than 10 minutes and will ask you to think about a "meaningful moment" that you have experienced along your PMR journey. It could be a big or small thing, but what matters is the significance and meaning it has to you.
Once you have completed the survey, you will be invited to attend a workshop (one will be face to face but there will also be the opportunity for online involvement) where the consented "meaningful moments" will be anonymously shared and discussed. From this they hope to pull out even more insight about the experiences of PMR patients.
The survey and further information can be found at leeds.onlinesurveys.ac.uk/p...
The survey will close on Monday 25th October.
If you know others who are living with PMR, please do share this email with them. They want to hear from as many people as possible and it is open to everyone regardless of where they live.
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