Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,638 members • 38,787 posts

All posts for October 2021

THIS IS WHAT THE NHS SAYS ABOUT THE BOOSTER COVID DOSE

https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-vaccination/book-coronavirus-vaccination/book-or-manage-a-booster-dose-of-the-coronavirus-covid-1

https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-vaccination/book-...

piglette

•3 years ago

1 Reply

Surprise surprise

Hi everyone, I’ve just had a call from my doctors, they have booked me in for Saturday to have 3 vaccine, hoorah I hear you all say, no, when I asked the...

Hi everyone, I’ve just had a call from my doctors, they have booked me in for S...

2013mayo

•3 years ago

29 Replies

Any help or advice please

Thank you to everyone who answered my first post on here I'm sorry I didn't answer you all . I have been having a lot of different health problems for a long...

Thank you to everyone who answered my first post on here I'm sorry I didn't answ...

Lucy5555

•3 years ago

7 Replies

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Surprised in a bad way.

Thank God I have a leason Nurse batting for me! He called me in to have Cortisol levels checked as I have been steadily lowering my Prednisolone under...

Thank God I have a leason Nurse batting for me! He called me in to have Cortisol...

AncientMariner

•3 years ago

105 Replies

What to eat when taking pred before breakfast

Hi a quick question please. We are going away this weekend, staying in a B&B. Breakfast is not till 8.30. I have found I need to take my pred by 7am so I can...

Hi a quick question please. We are going away this weekend, staying in a B&B. Br...

Broseley

•3 years ago

17 Replies

Off the scale

I have been immobilised for the last five days with excruciating pain in my left buttock, outer thigh and down to my knee. I can rarely get comfortable and if...

I have been immobilised for the last five days with excruciating pain in my left...

bBarnabus

•3 years ago

33 Replies

3rd vaccine

Hi everyone, Well I’ve heard it all now, my husband who has common variable immune deficiency has been told by consultant at his specialist dept, yes he...

Hi everyone, Well I’ve heard it all now, my husband who has common variable i...

2013mayo

•3 years ago

87 Replies

3rd primary vaccine,

Had A nice surprise this afternoon, A text message to book my 3rd primary vaccine and got it booked for tomorrow, although GP practice fully booked so going to...

Had A nice surprise this afternoon, A text message to book my 3rd primary vaccin...

Rosbud

•3 years ago

9 Replies

Weak knees, How good should I feel before I taper?

Hi everyone, I joined this forum about a month ago and have had some good advice. I was struggling at 1mg due to a flare up at 0 .5mg. I have been on...

Hi everyone, I joined this forum about a month ago and have had some good advice...

paintpots

•3 years ago

20 Replies

Fybromyalgia or polymyalgia

My daughter saw Gp today with terrible pain in hips arms and she couldn’t finish her ablutions in wc or brush her hair without awful pain. She was diagnosed...

My daughter saw Gp today with terrible pain in hips arms and she couldn’t finish...

Uglow

•3 years ago

31 Replies

Bladder problems

It was four times the last 2 days

Crommie

•3 years ago

3 Replies

Does anyone know why I have just started needing to get up during the night to go to the loo? I am on 9mg. Do have a sensitive bladder.

Bladder issues

Crommie

•3 years ago

9 Replies

PMRGCAuk calendar 2022

The PMRGCAuk calendar is also available to buy now. It's a slim wall calendar with a month per page and each page has a lovely image from the competition we...

The PMRGCAuk calendar is also available to buy now. It's a slim wall calendar wi...

Fran_Benson

Partner•3 years ago

Be the first to reply

Cushings??

Had a phone call from the Lovely Nurse yesterday. She'd been doing some research, and told me she thinks "they" had given me Cushing's Diseased. She's still...

Had a phone call from the Lovely Nurse yesterday. She'd been doing some researc...

ChrisinNam

•3 years ago

34 Replies

PMRGCAuk Christmas cards available

Dear members, our Christmas cards are now available to order. We have two lovely, seasonal designs, The cards are available in packs of 10 (single design) and...

Dear members, our Christmas cards are now available to order. We have two lovely...

Fran_Benson

Partner•3 years ago

4 Replies

Telephone consultation

I was diagnosed with PMR in March 2020 after I !! requested a blood test because I was experiencing such awful pain in both buttocks and shoulders and had been...

I was diagnosed with PMR in March 2020 after I !! requested a blood test because...

AnniesRyder5

•3 years ago

18 Replies

Rheumatologist needed

Does anyone know a good rheumatologist in or around Midland Michigan USA for PMRAnd GCA?

Does anyone know a good rheumatologist in or around Midland Michigan USA for PMR...

Skrtjg

•3 years ago

2 Replies

10,9,8 or 10,9.5, 9,

I wrote recently that my rheumy moved me from 10 pred to 7.5 in one go and it didn't work. Gp put it back to 10 and wait until l see phone rheumy again. He...

I wrote recently that my rheumy moved me from 10 pred to 7.5 in one go and it di...

Elbowpiece

•3 years ago

6 Replies

Small Fibre Neuropathy and PMR

Hi does anyone know if there’s any link between PMR and small fibre neuropathy? I have it quite badly in my feet and lower legs and slightly in the tips of my...

Hi does anyone know if there’s any link between PMR and small fibre neuropathy? ...

susanspurs

•3 years ago

6 Replies

3rd Covid vaccine and booster in UK are not the same.

Posting this again as there still seems to be confusion. In England at least, vulnerable people are getting a Third primary dose now as well as a Booster. The...

Posting this again as there still seems to be confusion. In England at least, vu...

Roltuba

•3 years ago

11 Replies

Had to go back

I had a appointment with rheumatology yesterday,I told him about my headaches I been getting,and aches and pains,he was more worried headaches.so he has put me...

I had a appointment with rheumatology yesterday,I told him about my headaches I ...

Flosy

•3 years ago

39 Replies

Just wondered……..

So I’m on 450mg if Pregablin and 40mg of Amitripyline along with an anti viral. What I was wondering is do these drugs also help with PMR? I only ask as I’ve...

So I’m on 450mg if Pregablin and 40mg of Amitripyline along with an anti viral. ...

Griggser

•3 years ago

6 Replies

Anomaly

Hello everyone, I’ve just had my blood results back and my ESR is 27 (was 29 last check) CPR 28 (this has gone up from previous 21). The strange thing is I...

Hello everyone, I’ve just had my blood results back and my ESR is 27 (was 29 la...

Pangolin43

•3 years ago

17 Replies

Have you seen this....?

"You are NOT Alone" - DVD made specifically for Patients, Family, and Friends Skinnyjonny• Three months ago•1 Reply Maybe I could share it, but I don't know...

"You are NOT Alone" - DVD made specifically for Patients, Family, and Friends Sk...

Grammy80

•3 years ago

6 Replies

What to do?

I’m so sorry it’s me again but I feel really desperate and don’t know what to do next. As many of you know, my journey with PMR has been difficult, to put it...

I’m so sorry it’s me again but I feel really desperate and don’t know what to do...

Janann25

•3 years ago

84 Replies

Bursitis of hip

Have had PMR for 3 years 3 months- on 2 mg Pred.4 weeks ago I twisted my hip getting off an electric bike- no pain at the time then over past 4 weeks had...

Have had PMR for 3 years 3 months- on 2 mg Pred.4 weeks ago I twisted my hip get...

bakingD

•3 years ago

5 Replies

Legs covered in tiny veins

Hi wonderful people. Was diagnosed in April 21 and currently using slow taper and down to 8mg daily. I have always bruised easily and my legs in particular...

Hi wonderful people. Was diagnosed in April 21 and currently using slow taper an...

Rymer

•3 years ago

4 Replies

Adrenals working?

I have reduced from 2mg to 1.5mg but still have sweats to head and neck. Could it be my adrenal glands are not working and how can I find out pleas

I have reduced from 2mg to 1.5mg but still have sweats to head and neck. Could i...

Pinkpepper

•3 years ago

20 Replies

What do you think?

Good Morning Lovely PMR People, So my Covid 19 experience is mostly over and my self-isolation ends at midnight on Tuesday 12th October. My question is -...

Good Morning Lovely PMR People, So my Covid 19 experience is mostly over and my...

whitefishbay

•3 years ago

31 Replies

Your advice is always valued..

Dear forum, I have been sitting on 3mg of prednisilone since December 2020 after a slow taper. Everything was fine until my second AZ jab in May. Since then...

Dear forum, I have been sitting on 3mg of prednisilone since December 2020 after...

Herman99

•3 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2021

THIS IS WHAT THE NHS SAYS ABOUT THE BOOSTER COVID DOSE

Surprise surprise

Any help or advice please

Surprised in a bad way.

What to eat when taking pred before breakfast

Off the scale

3rd vaccine

3rd primary vaccine,

Weak knees, How good should I feel before I taper?

Fybromyalgia or polymyalgia

Bladder problems

Does anyone know why I have just started needing to get up during the night to go to the loo? I am on 9mg. Do have a sensitive bladder.

PMRGCAuk calendar 2022

Cushings??

PMRGCAuk Christmas cards available

Telephone consultation

Rheumatologist needed

10,9,8 or 10,9.5, 9,

Small Fibre Neuropathy and PMR

3rd Covid vaccine and booster in UK are not the same.

Had to go back

Just wondered……..

Anomaly

Have you seen this....?

What to do?

Bursitis of hip

Legs covered in tiny veins

Adrenals working?

What do you think?

Your advice is always valued..

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