eventually upped dose - after virus - swollen legs - PMRGCAuk

PMRGCAuk

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eventually upped dose - after virus - swollen legs

Slosh profile image
11 Replies

Hi,

After contracting some virus at the end o f July, feeling like the PMR was flaring - and after much humming and ha-ing (sp) - I eventually upped my dose from 5.5mg to 10mg for a week, then 8.5 for a day, 7 ofr 3 days, then started 6 today.

My legs have been so swollen in that last two days and today they really won't go down. I have lay down with my legs up the wall and now put on support knee highs.

I also feel quite wobbly (dizzy) today in my head - and like I have fluid retention there too.

Any advice please.

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Slosh profile image
Slosh
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11 Replies
piglette profile image
piglette

My adrenal glands caused me to feel dizzy and wobbly. I have had fluid retention and thin skin from the steroids.

Slosh profile image
Slosh in reply topiglette

Thanks for this. I wonderered whether I only took 2mg this am instead of 6mg ??? I havent had swollen legs for months and months. - well not often - only if I sit at my desk too long.What mg are you on now?

piglette profile image
piglette in reply toSlosh

I should 2mg instead of 6mg might make you feel pretty rough! Put your feet up and relax!! I am currently back on 2mg but I think I really need at least 2.5mg.

PMRpro profile image
PMRproAmbassador

Is it likely you only took 2mg? I think some medical advice is called for if you don't feel well.

Slosh profile image
Slosh in reply toPMRpro

I have no idea actually. But took another 5 in case - really did not want to be dealing with an adrenal crisis of any sort.

Why would my legs be swelling again? Had fish and chips last night - from the chippy. I never do that and they salted it there. I eat very few processed or packaged goods and so only use a bit of sea salt. However they were swollen before that too. - its been about two days.

I have been walking a bit further (on my daily walk) than usual?

I will see how I feel later or tomorrow. What would you be concerned about?

Thank you.

PMRpro profile image
PMRproAmbassador in reply toSlosh

I found that eating saltier food than I am used to at home when we were on holiday resulted in football feet after a few nights. That's one positive of Covid I suppose - no holidays and eating out!!! But I do notice if I eat processed meats (for example) I gain up to a couple of pounds with fluid retention for a couple of days until it is flushed out - doesn't go to my ankles though.

I remember having swollen feet and ankles when we were in southern Italy for a meeting years ago - suspect it had a bit to do with the temperatures! I used to lie on my back with my feet up the wall too!

Slosh profile image
Slosh in reply toPMRpro

Thanks for your input.

Can't think what caused it yesterday.

I do think that I have had less water too over the last few days.

When I was on higher Pred I often had swollen legs - but not had for a while now.

Slosh profile image
Slosh

Im also at a new surgery - do not know the doctors and they dont seem to have a handle on PMR.

Noosat profile image
Noosat

I am now taking 5mg up from 2.5 as felt had mild flare. Every 30 minutes I get up and exercise for 3 minutes. Have not had swollen legs as problem. Ankles mildly swollen once in a while when on higher dosage

Slosh profile image
Slosh in reply toNoosat

Thanks for your input. I’m going to get up now from my desk - and bounce on my bouncer

herdysheep profile image
herdysheep

That will be good for your eyes, too. They were not designed for screen work! We don't blink enough, these days, apparently.

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