Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for September 2021

Tocilizumab

I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital...

I am seeing a new rheumatologist following an urgent referral from the hospital ...

MavisEllen

•3 years ago

7 Replies

PMR , immunocompromised, and boosters

I found this article about our (PMR patients) antibody reaction to the Covid vaccinations, and our qualifying for the booster as we may be considered...

I found this article about our (PMR patients) antibody reaction to the Covid vac...

Danrower

•3 years ago

9 Replies

Is it wise to have flu jab and covid booster vaccination together?

Have been invited by GP to have flu jab and In the letter it says ‘’may also be offered a covid booster at the same time’’ Personally I’m against having both...

Have been invited by GP to have flu jab and In the letter it says ‘’may also be ...

Reddev

•3 years ago

34 Replies

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Latest Rheumy Nurse Appointment

Saw my lovely Rheumy Nurse on Monday. She was happy that I am now down to 4 mg of prednisilone, but not so happy with my blood pressure! So she is doubling my...

Saw my lovely Rheumy Nurse on Monday. She was happy that I am now down to 4 mg o...

Theziggy

•3 years ago

22 Replies

Tocilizumab & Covid vaccine

I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally...

I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that c...

Bachblues

•3 years ago

4 Replies

Bowel upset on Lansoprazole

I have been taking Lansoprazole along with Prednisolone as my doctor says I must as I am on anticoagulants (apixaban for afib). I have been on the drugs now...

I have been taking Lansoprazole along with Prednisolone as my doctor says I must...

Karendeena

•3 years ago

11 Replies

Prednisolone tapering

Has anyone experienced head pain on prednisolone tapering? I am a week into 20mg reduced from 30mg previously for GCA. I have pain at the back of my head, not...

Has anyone experienced head pain on prednisolone tapering? I am a week into 20mg...

Graciejack4

•3 years ago

26 Replies

Preds and Paracetamols

First I must say a huge thank you for everyone's welcome to me yesterday ,I was astonished, you all made me feel I had someone who has my back. :-) question...

First I must say a huge thank you for everyone's welcome to me yesterday ,I was ...

seamaid

•3 years ago

10 Replies

How unlikely is it for me to have temporal arteritis at 23?

Hello. I’d say around two months ago I started having some jaw pain ,chest and neck pain. Along with my blood pressure rocketing up by around 40 points on...

Hello. I’d say around two months ago I started having some jaw pain ,chest and n...

BartyJ97

•3 years ago

15 Replies

Rheumatoid arthritis + PMR?

I had some painful swelling in my foot behind the toes for about 2 weeks and then it faded away. I saw the specialist rheumatoid nurse today and as she was...

I had some painful swelling in my foot behind the toes for about 2 weeks and the...

Hidden

•3 years ago

80 Replies

How does chest X-ray help with diagnosis of PMR?

Awaiting result of chest X-ray my gp requested to diagnosis PMR

Baner

•3 years ago

9 Replies

Flu jab

Yesterday I went to volunteer at our hospice shop and all the staff had been to the next door chemist to have their flu jab. So I went as well. Woke up at 2am...

Yesterday I went to volunteer at our hospice shop and all the staff had been to ...

Suet3942

•3 years ago

31 Replies

Weight loss on prednisolone

Losing weight on prednisolone…. Can it be done? I’m getting so depressed with my weight gain …3 stones now …. does drastically cutting carbs work? All...

Losing weight on prednisolone…. Can it be done? I’m getting so depressed with my...

Tayzee

•3 years ago

5 Replies

7 hours in A&E.

I experienced a very severe pain at the back of my skull, accompanied by extreme dizziness that made me sink to my knees. My husband took my blood pressure and...

I experienced a very severe pain at the back of my skull, accompanied by extreme...

SheffieldJane

•3 years ago

113 Replies

Diverticulitis

Just spent some time at the hospital with a diverticulitis attack, something which I'd never experienced before. I'm back home and taking antibiotics and pain...

Just spent some time at the hospital with a diverticulitis attack, something whi...

winfong

•3 years ago

39 Replies

Gerd

Apparently it’s Gerd not costrochronditis. Oh my the pain. Given large dose emprozol and gaviscon no eating after 7 I really hope it works

Apparently it’s Gerd not costrochronditis. Oh my the pain. Given large dose emp...

Uglow

•3 years ago

6 Replies

Methotrexate

Just had my appointment with the Rheumatologist, he was concerned that I am coming up to 3 years on Steroids (Dec) and wants me to take Methotrexate instead...

Just had my appointment with the Rheumatologist, he was concerned that I am com...

Abbey17

•3 years ago

32 Replies

Bath Group Leader

Hello Has anyone got contact details for the Bath Group please?

Estellemac

•3 years ago

3 Replies

Oral thrush

Woke up today with thrush will see what Gp says wonder what’s causing that now. Fed you one thing after another. 😩

Woke up today with thrush will see what Gp says wonder what’s causing that now. ...

Uglow

•3 years ago

24 Replies

New , and naive about PMR, :-(

Hello all. I am 80 and new here and still trying to come to terms with all that seems to be happening now, I was diagnosed with PMR six weeks ago and...

Hello all. I am 80 and new here and still trying to come to terms with all that ...

seamaid

•3 years ago

34 Replies

Hip pain

I was on 4mg pred down from 5mg and developed a sharp knife like pain in my hip just where the leg joins slightly towards the back. As soon as I reduced the...

I was on 4mg pred down from 5mg and developed a sharp knife like pain in my hip...

Bee2222

•3 years ago

22 Replies

Scalp tenderness when on low dose pred

Diagnosed with GCA in May 2020 I’m now down to 2.5 mg pred daily. I’ve had occasional scalp tenderness off and on since my original diagnosis but at the moment...

Diagnosed with GCA in May 2020 I’m now down to 2.5 mg pred daily. I’ve had occas...

Agavegirl

•3 years ago

8 Replies

PMR diagnosis June 21 - pain in head today

Hi there, today I’ve been experiencing headaches (I don’t normally get headaches). Then I developed nerve type pain on the RHS of my face. Sore right ear,...

Hi there, today I’ve been experiencing headaches (I don’t normally get headaches...

Smallstepsforward

•3 years ago

34 Replies

Eczema breakout

Hi, Im in my 3rd year of PMR and have now just developed eczema all over my body, has anyone else had this?

Hi, Im in my 3rd year of PMR and have now just developed eczema all over my bod...

Daisy246

•3 years ago

37 Replies

Electrolytes

Killer cramps. In weird and wonderful places. I knew about, but never got round to trying, electrolyte supplements. Wow! Two days dosage and a taxing, draining...

Killer cramps. In weird and wonderful places. I knew about, but never got round ...

Legsy0714

•3 years ago

9 Replies

Journey and funeral

Hi everyone I’m off to a funeral next week. So to ease the pressure of journey 1.5 hours I booked a b & b for night before as funeral is at 12. I really don’t...

Hi everyone I’m off to a funeral next week. So to ease the pressure of journey 1...

Uglow

•3 years ago

11 Replies

THIN SKIN UPDATE

Hi All, quick update on skinned shin. I have seen the nurse for dressings twice now and last time she took a swab to check for infection. She said that she...

Hi All, quick update on skinned shin. I have seen the nurse for dressings twice ...

jules1955

•3 years ago

17 Replies

In Case of Emergency

Judyliz

•3 years ago

16 Replies

Confused about blood tests

After having had a slight flare while on my last tapering programme, my GP said that my inflammation markers were ok. However, when I got the print out of them...

After having had a slight flare while on my last tapering programme, my GP said ...

Doraflora

•3 years ago

5 Replies

3rd covid jab for immunosuppressed (England)

Hi all I had my 3rd covid jab today after being called by GP yesterday so the top ups are now happening. The criteria is fairly narrow but can be found on the...

Hi all I had my 3rd covid jab today after being called by GP yesterday so the t...

Coffeebeans

•3 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

Tocilizumab

PMR , immunocompromised, and boosters

Is it wise to have flu jab and covid booster vaccination together?

Latest Rheumy Nurse Appointment

Tocilizumab & Covid vaccine

Bowel upset on Lansoprazole

Prednisolone tapering

Preds and Paracetamols

How unlikely is it for me to have temporal arteritis at 23?

Rheumatoid arthritis + PMR?

How does chest X-ray help with diagnosis of PMR?

Flu jab

Weight loss on prednisolone

7 hours in A&E.

Diverticulitis

Gerd

Methotrexate

Bath Group Leader

Oral thrush

New , and naive about PMR, :-(

Hip pain

Scalp tenderness when on low dose pred

PMR diagnosis June 21 - pain in head today

Eczema breakout

Electrolytes

Journey and funeral

THIN SKIN UPDATE

In Case of Emergency

Confused about blood tests

3rd covid jab for immunosuppressed (England)

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