Long covid

[Uglow]

Has anyone noticed the symptoms of long covid are similar to polymyalgia,fybromyalgia, ME it’s scary Iv only been diagnosed with poly 2 months

The tiredness is not just tiredness it’s totally zapping fog. What’s happening.

The pains can be unbearable

[SheffieldJane]

There really are subtle differences between the conditions. Like Polymyalgia Rheumatica has painful symptoms bilaterally. Fibromyalgia also has a pattern of affected parts of the body. Long COVID seems to share typical post viral exhaustion, aches and pains etc.You seem to be experiencing significant anxiety Uglow. Without meaning to offend, I would urge you to share this with your doctors. I speak from experience, anxiety makes everything feel much worse.

[Uglow in reply to SheffieldJane]

Thanks

[123-go]

You really should be noticing a marked difference in pain level now that you've been on Pred for around 3 months if you are on the correct dose and if it's only PMR causing the pain. Pain can cause great anxiety and depression. I totally agree with Sheffield Jane that you should have a good talk with your doctor. Write down what you want to say before the appointment and tick off as the conversation proceeds. 🌸

[PMRpro Ambassador]

It has been obvious to me (and a lot of others) for some time that Long Covid is just a new version of ME/CFS and most autoimmune disorders which are often finally triggered by a viral infection. It is nothing new - just a lot of cases arising in a short period of time with a directly attributable common cause. I posted about it 6 months ago.

healthunlocked.com/pmrgcauk...

and someone else had mentioned it before that

healthunlocked.com/pmrgcauk...

Long Covid is almost certainly an autoimmune condition - but it probably isn't a single disorder. It seems to have a lot of vasculitis-related features.

The fatigue of autoimmune disorders is common - and there is a discussion of that here:

healthunlocked.com/pmrgcauk......

I agree with SJ and 123-go - you need to speak to your doctors. If you have "just" PMR, then you shouldn't be in so much pain once you are on the right dose of pred. If you are still in extreme pain then you either need a higher dose of pred for now to get things under control or the diagnosis is incorrect. That of course is assuming that you are doing YOUR part of managing PMR.